Strategies to Prevent Burnout in Patient Advocacy

Advocating for patients is a noble cause that comes with its unique challenges and rewards. Patient leaders often start their journey with great enthusiasm and dedication, aiming to make a positive impact on the lives of those they represent. However, as time passes, it is common to experience feelings of exhaustion and burnout. This phenomenon, known as "compassion fatigue," can affect individuals who invest their time and energy in advocating for others.

Reasons for burnout in patient advocacy

1. Repetitive scenarios

In the world of patient advocacy, it is not uncommon to encounter repetitive situations. Answering the same questions repeatedly, providing guidance on treatments, and addressing common concerns can be draining. As someone who runs an online support group of 45,000+ patients and caregivers, I find sorting through new posts and often answering the same questions can take a lot out of me.

To alleviate this burden, consider sharing responsibilities with trusted peers, creating FAQs to address common queries, and establishing clear boundaries for interactions within the advocacy community.

Remember, you do not have to be the be all, end all solution to all of life’s problems. Work smarter, not harder. Share the love, and plan ahead.

2. Balancing responsibilities

Patient advocacy is a vital aspect of our lives, but it is essential to strike a balance between advocacy work and other obligations. Juggling the demands of advocacy alongside professional commitments, family responsibilities, and personal interests can be overwhelming. Creating a structured schedule that prioritizes self-care, advocacy work, and personal obligations can help prevent burnout.

Perhaps, you only answer emails 3 days a week, do all your TikTok videos on Tuesday, and write for your blog on Thursday.

I also find that setting a schedule allows me to prioritize new projects so I don’t feel stressed about everything else I could be doing.

3. Imposter syndrome

Imposter syndrome, a feeling of inadequacy or self-doubt in one's advocacy role, can contribute to burnout. It is crucial to address internal biases, acknowledge privilege, and define your advocacy role authentically. Know when you are not the right fit for a role. We all have unique stories to tell, but perhaps trying to get your story to fit into a particular situation isn’t worth the energy. The good news is, there are so many great patient advocates out there who would be a perfect fit.

Maybe there is a new advocate who is not well known. Share the wealth and introduce them.

By uplifting diverse voices and aligning your advocacy efforts with your unique experiences, you can combat feelings of inadequacy and stay true to your mission.

4. Self-care and reflection

When burnout looms, remember that your well-being is paramount. Taking time to recharge, seek support, and reflect on your advocacy journey is crucial for long-term sustainability. Recognize the signs of burnout, prioritize self-care, and reassess your role in advocacy to ensure your continued impact.

Conclusion

In conclusion, preventing burnout in patient advocacy requires self-awareness, setting boundaries, and prioritizing self-care. By implementing strategies to combat burnout, patient leaders can navigate challenges more effectively and make a lasting impact on the lives of those they serve. Remember, your well-being is essential for sustained success in patient advocacy.