Balancing Advocacy and Privacy: A Parent's Journey in National Health AdvocacyWhen our daughter was diagnosed with the rare disease known as sickle cell anemia at just a few weeks old, our lives took an unexpected turn. We were faced with... By Elle Cole2 min readBookmark for laterReactions0reactionsComments4 comments
Navigating DM Requests for Money: 3 Thoughtful Responses for AdvocatesIn the digital age, having a following often comes hand in hand with unexpected direct messages asking for financial help. It’s a perplexing yet frequent occurrence—individuals assuming an advocate’s/public figure’s... By Elle Cole2 min readBookmark for laterReactions0reactionsComments8 comments
10 Insights for Those Living With Chronic Conditions and Their CaregiversAs a passionate advocate for those living with multiple chronic conditions, I've walked alongside numerous individuals facing ongoing health challenges. I've witnessed firsthand the difficult nuances of the healthcare journey... By Elle Cole3 min readBookmark for laterReactions0reactionsComments5 comments
Why Sharing Your Caregiver Story is ImportantAt first I was super nervous to even talk about my caregiver journey, I mean who really cares what a caregiver of someone with epilepsy or any chronic illness has... By Lorrie Forseth1 min readBookmark for laterReactions0reactionsComments3 comments
When You Can't Be Physically There to AdvocateI came into the Patient Leadership Council as a contributing author and moderator for BladderCancer.net. I was honored to be my Mom's primary caregiver throughout her bladder cancer battle. The... By Charles Anthony Ulloa4 min readBookmark for laterReactions0reactionsComments4 comments
