10 Insights for Those Living With Chronic Conditions and Their CaregiversAs a passionate advocate for those living with multiple chronic conditions, I've walked alongside numerous individuals facing ongoing health challenges. I've witnessed...reactions5comments
When You Can't Be Physically There to AdvocateI came into the Patient Leadership Council as a contributing author and moderator for BladderCancer.net. I was honored to be my Mom's...reactions4comments
Balancing Advocacy and Privacy: A Parent's Journey in National Health AdvocacyWhen our daughter was diagnosed with the rare disease known as sickle cell anemia at just a few weeks old, our lives...reactions4comments
Navigating DM Requests for Money: 3 Thoughtful Responses for AdvocatesIn the digital age, having a following often comes hand in hand with unexpected direct messages asking for financial help. It’s a...reactions8comments
Why Sharing Your Caregiver Story is ImportantAt first I was super nervous to even talk about my caregiver journey, I mean who really cares what a caregiver of...reactions3comments