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10 Insights for Those Living With Chronic Conditions and Their Caregivers image

10 Insights for Those Living With Chronic Conditions and Their Caregivers

As a passionate advocate for those living with multiple chronic conditions, I've walked alongside numerous individuals facing ongoing health challenges. I've witnessed...

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By Elle Cole

3 min read
5comments
When You Can't Be Physically There to Advocate image

When You Can't Be Physically There to Advocate

I came into the Patient Leadership Council as a contributing author and moderator for BladderCancer.net. I was honored to be my Mom's...

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By Charles Anthony Ulloa

4 min read
4comments
Balancing Advocacy and Privacy: A Parent's Journey in National Health Advocacy image

Balancing Advocacy and Privacy: A Parent's Journey in National Health Advocacy

When our daughter was diagnosed with the rare disease known as sickle cell anemia at just a few weeks old, our lives...

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By Elle Cole

2 min read
4comments
Navigating DM Requests for Money: 3 Thoughtful Responses for Advocates image

Navigating DM Requests for Money: 3 Thoughtful Responses for Advocates

In the digital age, having a following often comes hand in hand with unexpected direct messages asking for financial help. It’s a...

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By Elle Cole

2 min read
8comments

Why Sharing Your Caregiver Story is Important

At first I was super nervous to even talk about my caregiver journey, I mean who really cares what a caregiver of...

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By Lorrie Forseth

1 min read
3comments

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