Questions to Ask Your Doctor If You Have Metastatic Colorectal Cancer

When you are diagnosed with metastatic colorectal cancer (mCRC), it can be overwhelming. Asking your cancer doctor (oncologist) the right questions can help you better understand your treatment options, your prognosis, and what your quality of life might be. Here are some important questions to ask your oncologist and topics to discuss with your cancer care team.

Genetic testing or counseling

Metastatic colorectal cancer is sometimes linked to certain genetic mutations. These gene changes can affect your treatment options. Some questions you might ask on this topic are:^1,2

• Should I have genetic testing? Genetic testing can help determine whether you have any mutations, like BRAF V600E, that could affect your treatment.
• What can genetic counseling offer me? A genetic counselor can explain your test results and how they might affect your care plan.
• Should my family have genetic testing done? Knowing your genetic status might help your family members understand their own cancer risk. If you have a genetic mutation that can be passed down, your family members may also be at risk for colon cancer. Testing can help them understand their risk of developing colorectal cancer or other cancers.

Nutrition and lifestyle changes

One of the first questions you might ask your doctor is how your diet and lifestyle can impact your treatment and recovery. Some key questions might include:^1,3

• What should I eat during treatment? Treatments like chemotherapy can cause nausea and make it hard to eat certain foods. Your doctor or a dietitian can suggest light and low-fat foods that are easier on your stomach.
• Should I avoid any foods? Some foods might interfere with your treatment or make symptoms worse. Ask about any specific foods you should avoid.
• Can I continue exercising? Staying active is important for your health. But your energy levels will likely change during treatment. Ask your doctor what types of physical activity are safe and what your limits might be.

Ostomy bags

An ostomy bag is sometimes necessary after you have surgery to remove part of your colon. This allows waste to leave your body through a small opening in your stomach. Here are some questions you can ask your doctor regarding ostomies:⁴

• Will I need an ostomy bag? Your doctor can explain whether your surgery will require an ostomy and how long you might need it.
• How do I care for an ostomy bag? If an ostomy bag is needed, ask your healthcare team to teach you how to care for it.
• Can I reverse the procedure later? While this is not common, reversing the ostomy procedure may be an option. It depends on your specific case, and your doctor can help you understand whether you are a candidate.

Emerging research and clinical trials

Research on CRC is always evolving. Clinical trials may offer access to new treatments that are not yet widely available. Questions you can ask are:^1,5

• What emerging treatments should I know about? Your doctor can tell you about new therapies, including medicines or procedures, that could help treat your cancer.
• Are there any clinical trials that I qualify for? One main purpose of clinical trials is to test new treatments. Your doctor can help you find out whether you are eligible to participate in one.
• How do these new treatments compare to standard options? Clinical trials come with risks for certain side effects. Make sure you know about them before embarking on a new treatment.

Need for a caregiver

Cancer treatment can be tough, and you may need help from a caregiver. Ask your doctor about the level of support you might need. Here are some questions to ask:¹

• Will I need help at home? Some mCRC treatments can make you feel very tired or unwell. You may need someone to help with daily tasks like cooking, cleaning, or driving you to and from appointments.
• Should I hire a professional caregiver? In some cases, your needs may go beyond what a family member can handle. Your doctor can help you decide whether professional help is necessary.
• What can I do to prepare my family for my care needs? Preparing your loved ones ahead of time can reduce their stress and make sure you get the help you need.

Other available support

Living with mCRC can be physically and emotionally challenging. Here are some questions you can ask about your support options:¹

• Are there in-person or virtual support groups for people with metastatic colorectal cancer? Connecting with others who are going through the same thing can provide comfort and advice.
• What mental health resources are available? Counseling or therapy can help you cope with the emotional aspects of your condition.
• What can I do to improve my quality of life? Your doctor can recommend therapies, such as pain management or physical therapy, to help you feel better during cancer treatment.

No question is off-limits

Asking these questions can help you feel more informed and in control of your care. Do not be afraid to ask for clarification or more information if you need it. Your healthcare team is there to support you through every step of your treatment.¹