2025 Patient Leadership Council
The Patient Leadership Council (PLC) is a select group of Health Union Health Leaders and Social Health Awards winners who give feedback on Health Union projects.
The PLC includes and represents diverse voices across our chronic and terminal health communities, and aims to ensure our company efforts remain community-centered, inclusive, useful, and accessible. Health leaders chosen to serve on the PLC are compensated for their time, effort, and invaluable opinions and work during their year of PLC leadership.
Meet the 2025 PLC members below:
Social Health Award winners
Danielle Connolly: Rookie of the Year
Danielle is a rare disease, chronic illness, and disability advocate, as well as a content creator and business and marketing professional. Being born with a muscle disease that still has an unknown origin has given Danielle many unique life experiences that set the course for her various ambitions.
After taking her first vacation with friends as an adult, she realized that she is more capable of traveling than she thought. Upon returning from the trip, she promptly got her own mobility scooter and started planning more adventures.
The idea of documenting these adventures and giving accessibility reviews began to emerge, and then many other content ideas followed. Thus, "Daniellevates" was born! Daniellevates is a play on her name combined with "elevates" because the content is all about elevating ideas through humor, education, and adventures.
Michael Donohoe: Healthcare Collaborator
Michael has lived with type 2 diabetes since 1996. In 2007, he decided to "give it up," only to find himself diagnosed with diabetic retinopathy, diabetic peripheral neuropathy, a 10.0 A1C, and, in 2015, congestive heart failure. Despite years in pharmaceutical and healthcare marketing and advertising, Michael ignored the warnings. After open-heart surgery to replace a bicuspid aortic valve, surgeons discovered 3 nearly blocked arteries that hadn't been detected in earlier tests. The surgery saved his life.
People living with type 2 diabetes make up 90 percent of the patients in the diabetes space, yet people with type 1 diabetes are 90 percent of the voice in that space. This disparity, along with his family’s struggles with type 2 diabetes and chronic kidney disease, are what drive Michael’s advocacy.
About a year after his surgery, Michael started sharing information on his website, A1CWellness.com and getting involved with the American Diabetes Association. In 2018, inspired by his sons, he joined his local Lions Club and discovered its relationship with the International Diabetes Federation.
Michael soon joined the International Diabetes Federation and served as the District Chair of his local Diabetes Awareness and Action team in 2020. Michael loves to facilitate and bring people together. As a Patient Leader with many conditions and complications, he uses his experience in business, government, and politics to get people not only talking but also listening.
Emmitt Henderson: Advocacy Trailblazer
Emmitt Henderson was diagnosed with systemic lupus and lupus nephritis in 1995, though his symptoms began in 1980. Over the years, he has endured major complications, including heart, liver, kidney, and lung failures, avascular necrosis leading to shoulder and knee replacements, and a bone marrow stem cell transplant.
Determined to advocate for those affected by lupus and to discuss mental health, he founded Male Lupus Warriors Corp to raise awareness. Emmitt has created a safe space for men to meet and talk about their hardships in life, and he encourages everyone to not be a victim to their illness.
He travels nationwide to spread Lupus awareness and, in 2022, he did an advocacy campaign in Tanzania, which included climbing Mt. Kilimanjaro. During his climb, he suffered high-altitude pulmonary edema and kidney failure for the second time in his life. He is now doing home hemodialysis and is on the transplant list for another kidney.
Emmitt advocates for organ donation and educates others about home hemodialysis. Though he is waiting for a kidney, he still maintains his advocacy by being active on social media, facilitating support groups, and staying actively involved with other organizations.
Andrea Jensen: Caregiving Champion
Twenty-four years ago, Andrea’s 5-year-old son was hospitalized and diagnosed with asthma. Later, her other two children and Andrea herself were also diagnosed with asthma. This led to numerous ER visits, hospitalizations, and sleepless nights managing their conditions.
After having already earned a degree in interior design, Andrea returned to college to earn a public health degree as she was driven by the lack of asthma education her family received during their journey. She has since become a Certified Health Education Specialist and a Certified Asthma Educator.
Andrea also created and coordinated her county's asthma program and an asthma home visit program. She has presented at national asthma conferences, been published in peer-reviewed journals, and is active in statewide and national asthma education organizations.
Recruited by a national nonprofit allergy and asthma foundation, she now provides education globally. Andrea also manages “My Life as an Asthma Mom,” an award-winning blog, and writes for Asthma.net and Allergies.net.
Annually, Andrea’s family advocates during Allergy & Asthma Day on Capitol Hill in Washington, DC, addressing gaps in care and funding with their representatives. Her family attests to her unwavering passion for helping people with allergies and asthma, which is both her career and passion.
Tiffany Kairos: Social Media Master
Tiffany is a dedicated advocate and the founder of The Epilepsy Network. She has navigated life with epilepsy for 15 years, channeling her experiences into empowering others through her online community. As the creator of the blog "Rise Above Epilepsy," she shares invaluable insights and resources, fostering a sense of support and understanding.
Tiffany's impactful contributions have garnered recognition from esteemed platforms like GoodRx and Mayo Clinic, as well as leading publications such as Brain and Life Magazine. Her advocacy reaches far and wide, with appearances on influential podcasts like CURE Epilepsy and "Talk About It!”
Alongside her husband and two feline companions, Tiffany remains steadfast in her mission to advocate for epilepsy awareness and support.
Bethany Keime & Hannah Keime: Best Team
Bethany and Hannah are sisters and co-founders of HeartCharged. The jolts in their lives have become the "what" and "why" of their patient advocacy work. They thought they were average, active high schoolers until they found out they both have a deadly heart condition called hypertrophic cardiomyopathy.
As their conditions worsened, they were implanted with defibrillators. Just months later, 2 jolts from Hannah’s defibrillator saved her life when she went into sudden cardiac arrest in her sleep. They’re now trying to jolt the world into action to stop accepting the 9 percent survival rate from sudden cardiac arrest and undiagnosed heart conditions.
Their advocacy offers patient-to-patient support to the diagnosed. This includes donations of automated external defibrillators, training classes, and heart screening initiatives – and they only want to be louder and expand their reach to have the world Get HeartCharged.
Their social media health advocacy is especially charged. They have an engaged and dynamic patient community while spreading their message to the general public about overlooked symptoms and difficulties being diagnosed. Their posts include comedy, drama, parodies, podcast clips, article outtakes, hard life facts, and fun music videos. They will make you laugh, cry, learn, and take action.
Rwenshaun Miller: Lifetime Achievement
Rwenshaun Miller is an accomplished author, motivational speaker, counselor, consultant, and philanthropist dedicated to reshaping the negative connotations often associated with mental health and directly impacting the lives of those living with mental health challenges.
Among his many roles, Rwenshaun proudly serves as a Mental Health Change Agent, globally impacting lives through his awareness efforts. Rwenshaun’s passion and commitment stem from his personal experience living with bipolar disorder. Like many others with a mental health diagnosis, he faced acceptance challenges. However, he refused to let his diagnosis define him, embarking on a journey to uplift, empower, and teach others with mental health challenges how to “thrive” in life.
Through his nonprofit, Eustress, Inc., Rwenshaun built a platform to educate others and break the stigma associated with mental illness. Eustress also assists under-served youth in identifying and overcoming mental health challenges to lead healthier, more productive lives.
Recognizing the gaps in both self and public awareness, he has taken action to bridge those gaps worldwide. Understanding the importance of representation, he earned a master's degree in clinical mental health counseling to promote the availability of Black male therapists.
Rwenshaun is a mental health counselor in Charlotte, NC, at his private practice, The Good Stress Company, and he is pursuing a doctoral degree in international psychology. To further support those with mental health challenges, he created "Be Who You Needed," providing consultancy services and training to other therapists and like-minded people to empower them to make significant impacts in the mental health field. Rwenshaun is deeply invested in everyone's success.
Brittany “A Hot MS” Quiroz: Creative Contributor
Brittany Quiroz, also known as “A Hot MS,” was diagnosed with MS when she was 30 years old. For her, it was a “fight or flight, do or die” moment. Brittany has used her diagnosis to impact the lives of other warriors fighting through chronic illness and is a trusted voice in the community.
She is the host of “All the Odds With a Hot MS” podcast and founder of Art For a Cause, where she has taken her painting and art as a chance to give back. Fifty percent of all proceeds from her art help those with disabilities access unique and beautiful mobility aids.
Brittany, alongside her musical partner, recently released an album of all original music to empower and inspire the MS community. A percentage of sale proceeds is donated to the MS Society. A surprise single, “Never Have My Soul,” was released on May 30, 2024, to honor World MS Day, with 100 percent of the proceeds donated to the National Multiple Sclerosis Society!
Being transparent with zero filters allows Brittany’s readers to connect and know they are not alone in this fight while bringing some humor and positivity to the table – and to allow those struggling to use their pain as fuel to keep going.
Dr. Andrea Vassilev: Revolutionary Researcher
Dr. Andrea Vassilev is a passionate and effective mental health advocate and community leader with a doctorate in psychology as well as more than 25 years of experience living with bipolar disorder. She created "Overcoming Self-Stigma in Bipolar Disorder,” the world's first program addressing self-stigma in bipolar disorder, now used globally and translated into multiple languages. She is currently running a clinical trial to offer the program, free of charge, to hundreds of people.
Dr. Vassilev frequently collaborates with organizations like the International Bipolar Foundation, Mental Health Strong, and Bipolar Support Club International, where she presents on topics such as stigma, dual diagnosis, and wellness in bipolar disorder. Her insights are also shared through various podcasts, where she blends her extensive knowledge and personal experiences to provide relatable learning opportunities.
Dr. Vassilev contributes to several publications, has served on advisory boards, and organizes educational events featuring top doctors and researchers to share the latest insights with the bipolar community. She also co-founded a Depression and Bipolar Support Alliance support group for mental health clinicians with mood disorders, leveraging her expertise to support and educate both peers and professionals.
Jennifer "Gracefully Jen" Weaver : Community Cultivator
Jen is a mindset mentor and advocate for women's empowerment, especially for those facing chronic illnesses. Having lived with anxiety for 30 years, rheumatoid arthritis for 11 years, and medically induced psoriasis for 4 years, she understands the challenges these conditions bring.
To support women like herself, Jen created the "My Spoonie Sisters" community and podcast. This platform serves as a safe haven for women of all backgrounds to support each other, educate, learn, and share laughs. It addresses chronic illnesses such as fibromyalgia, lupus, and multiple sclerosis, offering a welcoming and supportive environment.
Jen reaches her followers through various social media platforms, sharing positive mantras, incredible stories, and humor to illustrate her journey and those of others. My Spoonie Sisters extends beyond the podcast with a private Facebook group, educational resources, and community events, providing support, camaraderie, and practical advice to empower women in managing their conditions.