A Lifetime of Misdiagnoses

I was born with vascular Ehlers-Danlos Syndrome, however, no one knew. I had so many health problems from the time I was a baby with no answers. As I started to grow, my family started telling me if I say I don't feel well I won't.

I had sprains, inability to eat like everyone else, inability to go to the bathroom like normal people, headaches that took me down as far back as preschool, knots in the muscles in my neck and back that had to be massaged down to allow me to move. I would be given as aspirin and told to lay down until it was better. Of course things would get better at that age, but then reoccur very shortly after again.

My entire life I have been sick to my stomach without anyone believing me. I tried for years to get help from doctors. No one believed me. The drs all did that psychological mumbo jumbo misdiagnoses stuff so they didn't have to work hard enough to find out what was actually happening to my body.

As I got older, I stopped being able to eat because I could no longer go to the bathroom. I was 39 years old and had to start IV nutrition for food and hydration. I was 39 when my colon finally perforated and nearly killed me. So much poison dumped into my body. Now, 20 years later, I have survived more attempts on my life from this disease than I can count.

I ended up in hospice for a little more than a year and a half. At the end, when my body gave up and we said our goodbyes, I woke up in heaven, woke up in hospice, and came home. Words can not do justice to what heaven is like, but the love, the peace, the light, no pain or sickness at all was beyond anything here on earth.

I'm so glad God answered my prayer. I wanted to go home and not be sick anymore. All I felt was death. I could not get out of my bed for more than minutes at a time. I was alone all of the time. No friends. No family spending time. Constant isolation living with death.

When God brought me home for that brief time, He took death off of me and gave me life back. He did not take away the disease or the symptoms, but He did give me the feeling of life back. I can do more than I could before. I know God is carrying me in this body. Keeping me dependent on Him. I don't want to be anywhere else but dependent on God.

I break down. I cry. At times, I don't know why it was only a temporary visit and not a permanent stay. Only He knows. God has a purpose and I trust Him. I get confused because of how bad things are in so many ways, but I get down on my knees and pray. Prayer is simply talking to God about anything you want to and I want Him to know always that even though I don't understand, I am His and He has his purpose for me.

Thank you for letting me share my story.