Dealing With Imposter Syndrome as a Chronic Illness Advocate

Today, I want to talk about something that has been weighing on my mind lately—a feeling that many of us, especially those of us advocating for chronic illness, know all too well: imposter syndrome. Yep, even as we bravely share our journeys and strive to make a difference, we sometimes feel like imposters in our own stories. Let’s dive into this tricky topic and see if any of this resonates with you.

The doubts that lurk

Imposter syndrome is that sneaky little voice that whispers, "Who do you think you are?" It's the nagging doubt that creeps in when you post about your experiences, share your tips, or even just speak up about your struggles. It tells you that you’re not “sick enough” or that others have it worse, so why should anyone listen to you? For those of us living with chronic illnesses, this can be an especially cruel twist of the knife.

The comparison trap

One of the biggest culprits feeding imposter syndrome is the comparison trap. We look at other advocates and think they’re doing so much more, handling things so much better or suffering so much worse. It’s easy to forget that everyone’s journey is unique and that comparison is the thief of joy. Your story is yours and is just as valid and important as anyone else's.

Balancing advocacy and self-care

Another layer to this is the balancing act of being an advocate while managing your own health. There are days when even getting out of bed feels like a monumental achievement. How can we advocate for others when we struggle to care for ourselves? This paradox can make us feel like we’re not doing enough, even though just existing with a chronic illness is a full-time job.

The perfectionism pitfall

Perfectionism plays a significant role in imposter syndrome. We feel we have to have all the answers, never show weakness, and always be strong for those who look up to us. But guess what? We’re human. We have bad days, make mistakes, and sometimes just lack energy. And that’s okay. Vulnerability is a strength, not a weakness. Showing our authentic selves, struggles and all, can be incredibly powerful and inspiring to others.

Embracing authenticity

So, how do we combat imposter syndrome as chronic illness advocates? It starts with embracing authenticity. Sharing our true selves—the good, the bad, and the ugly—creates a genuine connection with our audience. It reminds us and others that it’s okay not always to have it all together.

Celebrating small wins

Celebrate your small wins. Did you write a blog post today? That’s a win. Did you share an honest update about your health? That’s a win. Every step you take, no matter how small, is a step forward. Recognize your efforts and give yourself the credit you deserve.

Building a support network

Lean on your support network. Connect with other advocates who understand what you’re going through. Share your feelings about imposter syndrome with them—you might be surprised how many of them feel the same way. Support and uplift each other because we’re all in this together.

Remembering your "why"

Finally, remember why you started advocating in the first place. Whether it’s to raise awareness, support others, or simply share your story, your reasons are valid. Your voice matters. You’re making a difference by speaking out, even if it doesn’t always feel like it.

Imposter syndrome is a common, albeit unwelcome, companion on the advocacy journey. But we can overcome it by acknowledging it, sharing our truths, and supporting each other. Remember, you are not an imposter. You are a warrior, a survivor, and a beacon of hope for others navigating similar paths. Keep shining your light.