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Do you have tips or advice on making advocacy your career?

Our community would love to hear from you! Please share your experiences on how you have turned advocacy into your career or side gig.

  1. One of the most important aspects in my journey, has been being authentic. As a person that public speaking did not come naturally I, leaned into that as I found myself moving from speaking to a few people in my local hospital, to speaking at an international event. Being authentic, being vulnerable, sharing my story, and offering solutions has made a difference. Of course as a white male I am aware of the privilege a have that more vulnerable people do not.

    1. , did you find the transition to larger groups difficult? How did you navigate that? - Warmly, Donna (Team Member)

  2. Network, network, network! The more people you know the better. You never know who can help you spread your message and who you'll meet. Meet people OUTSIDE of your condition area so you can learn what they're doing. Don't recreate the wheel! I've seen so many patient leaders pick up an idea from another condition area and run with it in their own!

    1. I know somehow I want to help people avoid the pitfalls I've experienced in my sudden health journey.
      Mary

      1. , everyone's journey is different, but knowing things to avoid is so very helpful! Thank you for being willing to be vulnerable. - Warmly, Donna (Team Member)

    2. I know that advocating is my superpower so I make sure that I have personal conversations with the organization that I am with to make sure I would be a great fit for the outcome they are hoping for.

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