FeaturedActive todayTis the season for conferences! The season is upon us! Let's share & talk about all things CONFERENCES! - Which have you attended, or are you planning to attend? - We'd LOVE for you to...Reactions0reactionsComments10 repliesAdvocacyCommunityTips & Advice
FeaturedHow do you balance advocacy and a job?For those who have to juggle work and advocacy, how do you manage your time to be productive at both without burning all your energy?...Reactions0reactionsComments6 repliesWork & EmploymentMental HealthAdvocacy
FeaturedActive todayHave you ever considered getting or do you have a service, working, therapy, or emotional support animal to help with your medical condition?Share a picture of your furry-loved companion (does not have to be for your medical condition)! We'd love to see them! If you have a service, working, therapy, or emotional...Reactions0reactionsComments135 repliesCopingTips & AdviceAwareness
Active todayMedical Gaslighting: Tell Me a Time You Were Dismissed By Your DoctorCan you remember a time when you were medically gaslit? Medical gaslighting is the act of a healthcare provider ignoring or dismissing a patient's concerns or complaints and leaving them...Reactions0reactionsComments16 repliesCopingTips & Advice
Active todayChange of FriendsHave you found that your work in advocacy has changed the dynamics of your friend circle? How accurate is the saying that quality vs quantity of friendships is key, especially...Reactions0reactionsComments20 repliesCopingFriends & FamilyIntimacy & Relationships
Active todayWhat are you most proud of?Within your personal life, health journey, or advocacy work, what are you most proud of, or what accomplishment fills you with the most pride?...Reactions0reactionsComments34 repliesCommunity
Active todayI didn't even know how to pronounce Sarcoidosis I'm 48 years old I was diagnosed with a rare disease called Sarcoidosis in 2010. I told my dr u have what I knew nothing about it it can attack...Reactions0reactionsComments1 replies
Active todayInvisible Disabilities Awareness Week▪️In the U.S., Invisible Disabilities Awareness Week is October 20th – 26th, 2024. ▪️I live with Fibromyalgia, Ankylosing Spondylitis, Arthritis, Migraine Disorder, Degenerative Disc Disease, Irritable Bowel Syndrome, Anxiety, Ehlers...Reactions0reactionsComments0 repliesAwareness
FeaturedActive todayPatient & Caregiver Advocate Bulletin Board* Are you looking for other Patient Advocates to help with a project? * Want to share information about an upcoming event? * Working on an exciting project that you'd...Reactions0reactionsComments7 repliesCommunityAdvocacy
Active 4 days agoDo You Deal With Imposter Syndrome? Let's talk!Hello everyone. There was recently a topic posted by Admin about dealing with Imposter Syndrome. It hit home. It's not something I freely talk about with others in real life...Reactions0reactionsComments4 replies
FeaturedActive 4 days agoChronically Ill and Alone: Do You Have Fears of Being Sick and Single?One topic of discussion that isn't often broached often are our feelings and fears of being single and chronically ill. Many of us are not married nor have a significant...Reactions0reactionsComments16 repliesCopingCommunity