FeaturedActive yesterdayTis the season for conferences! The season is upon us! Let's share & talk about all things CONFERENCES! - Which have you attended, or are you planning to attend? - We'd LOVE for you to...Reactions0reactionsComments6 repliesAdvocacyCommunityTips & Advice
FeaturedChange of FriendsHave you found that your work in advocacy has changed the dynamics of your friend circle? How accurate is the saying that quality vs quantity of friendships is key, especially...Reactions0reactionsComments18 repliesCopingFriends & FamilyIntimacy & Relationships
FeaturedActive todayHave you ever considered getting or do you have a service, working, therapy, or emotional support animal to help with your medical condition?Share a picture of your furry-loved companion (does not have to be for your medical condition)! We'd love to see them! If you have a service, working, therapy, or emotional...Reactions0reactionsComments125 repliesCopingTips & AdviceAwareness
Active yesterdayMedical Gaslighting: Tell Me a Time You Were Dismissed By Your DoctorCan you remember a time when you were medically gaslit? Medical gaslighting is the act of a healthcare provider ignoring or dismissing a patient's concerns or complaints and leaving them...Reactions0reactionsComments0 repliesCopingTips & Advice
Active yesterdayWhat are you most proud of?Within your personal life, health journey, or advocacy work, what are you most proud of, or what accomplishment fills you with the most pride?...Reactions0reactionsComments24 repliesCommunity
Active yesterdayHow do you leverage social media as a Health Leader?The internet and social media has created amazing opportunities for patient leaders to reach various healthcare communities. Patients go online to get answers and find support. Healthcare companies want to...Reactions0reactionsComments1 repliesAdvocacyHealth LeadershipSocial Media
FeaturedActive yesterdayPatient & Caregiver Advocate Bulletin Board* Are you looking for other Patient Advocates to help with a project? * Want to share information about an upcoming event? * Working on an exciting project that you'd...Reactions0reactionsComments6 repliesCommunityAdvocacy
FeaturedActive yesterdayWhat type of advocacy are you currently involved in or hoping to be?Our community would love to learn & hear more about your advocacy efforts. Join in on the conversation! What type of advocacy are you currently involved in or hoping to...Reactions0reactionsComments24 repliesAdvocacyCommunity
Busting the Myths: What Patient Advocacy Really MeansA common misconception surrounding patient advocacy and patient - centered care is that it solely involves speaking on behalf of patients who may feel powerless or unable to voice their...Reactions0reactionsComments3 repliesAdvocacy
Coping with a New Diagnosis and Managing Side EffectsHere's a structure to guide the discussion: Introductory Post: "I was recently diagnosed with [OCD]. I'm still learning about the condition, and I'm feeling overwhelmed by the side effects of...Reactions0reactionsComments3 repliesNewly DiagnosedSide Effects
What are your realistic limitations with advocacy as a career?We all have roadblocks when it comes to the career we want to have. But facing those roadblocks head on can help us to find new avenues to success without...Reactions0reactionsComments4 repliesAdvocacyHealth LeadershipWork & Employment