FeaturedActive todayChange of FriendsHave you found that your work in advocacy has changed the dynamics of your friend circle? How accurate is the saying that quality vs quantity of friendships is key, especially...Reactions0reactionsComments12 repliesCopingFriends & FamilyIntimacy & Relationships
FeaturedActive todayHow Do You Balance Advocacy and a Job?For those who have to juggle work and advocacy, how do you manage your time to be productive at both without burning all your energy?...Reactions0reactionsComments4 repliesWork & EmploymentMental HealthAdvocacy
Active todayHow does your disease or condition impact your social life?Juggling your health demands can be exhausting, using up all your time and energy. How has it affected your social life?...Reactions0reactionsComments13 repliesCopingTips & Advice
Active todayDo you have an advocacy question? Need advice or tips from our team of expert patient advocates? Ask it here!...Reactions0reactionsComments3 repliesAdvocacyTips & Advice
Active todayMisconceptions What are some common misconceptions people have about patient advocacy?...Reactions0reactionsComments0 repliesAdvocacy
Active todayLegislative/Healthcare Policy AdvocacyAre you involved in health policy advocacy or looking to get started? Join in on the conversation & share your experiences! - How did you get started? - What tips/advice...Reactions0reactionsComments18 repliesLegislative AdvocacyAdvocacyTips & Advice
FeaturedActive todayHave you ever considered getting or do you have a service, working, therapy, or emotional support animal to help with your medical condition?Share a picture of your furry-loved companion (does not have to be for your medical condition)! We'd love to see them! If you have a service, working, therapy, or emotional...Reactions0reactionsComments88 repliesCopingTips & AdviceAwareness
Active todayBusiness or AdvocacyOn your public advocacy journey have you found it challenging moving towards the business elements? For many being a patient advocate is about sharing our voice and stories, but in...Reactions0reactionsComments1 repliesAdvocacyAwarenessTips & Advice
Active todayWithin your advocacy, what term(s) resonate with you most?How do you typically refer to your community leadership, and/or what terms resonate with you most? Health Advoacay? Patient Advocate? Patient/Caregiver Health Leadership? Patient/Caregiver Activist? Other?...Reactions0reactionsComments36 repliesAdvocacy
Active yesterdayWhat are you most proud of?Within your personal life, health journey, or advocacy work, what are you most proud of, or what accomplishment fills you with the most pride?...Reactions0reactionsComments6 repliesCommunity