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Invisible Disabilities Awareness Week

▪️In the U.S., Invisible Disabilities Awareness Week is October 20th – 26th, 2024. ▪️I live with Fibromyalgia, Ankylosing Spondylitis, Arthritis, Migraine Disorder, Degenerative Disc Disease, Irritable Bowel Syndrome, Anxiety, Ehlers...

On the Road to Remission

https://www.amazon.com/dp/B08QRB3H3G...

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Have you ever considered getting or do you have a service, working, therapy, or emotional support animal to help with your medical condition?

Share a picture of your furry-loved companion (does not have to be for your medical condition)! We'd love to see them! If you have a service, working, therapy, or emotional...

Have you ever, or do you want to, publish a book about your story?

Share your journey to getting a book published about your health advocacy below. Let us know if you have any tips or tricks for those who want to get started...

Are you passionate about sharing your journey with chronic pain conditions?

Do you want to inspire others and spread awareness about living with illness? We want to hear from you! Become a guest on Butterfly Chats Podcast and share your story...

If you could tell your younger self one piece of advice, what would it be?

Whether it be related to your advocacy, health, relationships, personal matters, etc, we all know that hindsight is 20/20, so what is the one piece of advice that you would...

How do I get more involved with conferences and speaking?

How do I get more involved with conferences and speaking I spoke at the Crohn’s and colitis foundation fall symposium and part of there task force and a member of...

Disease Specific Medical Conferences

Hello fellow advocates!! I was wondering how many of you attend conferences related to your specific diseases? We want to be the best patient leader that we can. I think...

Business or Advocacy

On your public advocacy journey have you found it challenging moving towards the business elements? For many being a patient advocate is about sharing our voice and stories, but in...

Talking To Young Spoonies

If you were diagnosed with a chronic illness when you were young, or you currently work with young spoonies, I would love everyone to share your tips and experiences on...

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