FeaturedActive todayHave you ever considered getting or do you have a service, working, therapy, or emotional support animal to help with your medical condition?Share a picture of your furry-loved companion (does not have to be for your medical condition)! We'd love to see them! If you have a service, working, therapy, or emotional...reactions195repliesCopingTips & AdviceAwareness
What tips do you have for others that have helped you decrease your stress?Have you discovered any strategies for managing stress or improving your overall well-being?...reactions5repliesCoping
Change of FriendsHave you found that your work in advocacy has changed the dynamics of your friend circle? How accurate is the saying that quality vs quantity of friendships is key, especially...reactions19repliesCopingFriends & FamilyIntimacy & Relationships
Medical Gaslighting: Tell Me a Time You Were Dismissed By Your DoctorCan you remember a time when you were medically gaslit? Medical gaslighting is the act of a healthcare provider ignoring or dismissing a patient's concerns or complaints and leaving them...reactions46repliesCopingTips & Advice
How does your disease or condition impact your social life?Juggling your health demands can be exhausting, using up all your time and energy. How has it affected your social life?...reactions40repliesTips & AdviceCoping
Take A Deep BreathThe holiday season is a time where many different emotions can take the reigns of one's mental. From joy to sadness, there's often a combination of emotions associated with the...reactions3repliesAdvocacyCommunityCoping
FeaturedChronically Ill and Alone: Do You Have Fears of Being Sick and Single?One topic of discussion that isn't often broached often are our feelings and fears of being single and chronically ill. Many of us are not married nor have a significant...reactions16repliesCommunityCoping
Are you passionate about sharing your journey with chronic pain conditions?Do you want to inspire others and spread awareness about living with illness? We want to hear from you! Become a guest on Butterfly Chats Podcast and share your story...reactions9repliesCopingAwareness
The Reality When You Live With a Rare ConditionThe Reality of me living with a rare disease and what goes through my mind constantly. I wake every morning with the same awful cramps in my stomach that painful...reactions1replyCoping
ForgivenessBeing an advocate can be super stressful. Sometimes we blame ourselves for things we have no control over. We become our own worst critic. Today my journal prompt had me...reactions10repliesCoping