Tips for Landing a Paid Campaign With Health UnionInterested in being part of a paid influencer campaign with Health Union's Social Health Network? On a regular basis, we’re looking for patient leaders like you to represent your community...Reactions0reactionsComments0 comments
3 Strategies To Land Paid Social Media Campaigns as a Patient Leader in 2025In the growing world of patient influencers, landing paid social media campaigns requires more than just a great story — it’s about strategic visibility and engagement. Brands and organizations increasingly...Reactions0reactionsComments0 comments
Coming Face-to-Face With Those You've HelpedI have thought this many times over the last 14 years while advocating...Then, every once in a while, I’m shown again why I do this and why I enjoy doing...Reactions0reactionsComments2 comments
Understanding the Side Effects of Advanced Endometrial Cancer TreatmentIf you or a loved one is facing advanced endometrial cancer – such as dMMR endometrial cancer – you may have questions about treatment side effects. Endometrial cancer affects the...Reactions0reactionsComments0 comments
Treatment Options for dMMR Endometrial CancerSome people with endometrial cancer have a specific subtype called dMMR. This stands for “deficient mismatch repair.” It means cells have trouble fixing DNA damage. Cancers with dMMR tend to...Reactions0reactionsComments0 comments
What Is dMMR Endometrial Cancer and Who Is at Risk?Endometrial cancer is the most common type of gynecological cancer in the United States, accounting for about 66,000 new cases each year. And it is the sixth most common cancer...Reactions0reactionsComments0 comments
Advocating for Your Rights in the WorkplaceOftentimes it is scary to let your employer know that you have a chronic illness. It can be a time where you may fear there may be some retaliation because...Reactions0reactionsComments2 comments
Predicting Advocacy Trends for 2025The Social Health Network recently gathered for its final Patient Leadership Council (PLC) meeting of 2024. In this meeting, Health Leaders spanning many condition spaces were invited and asked to...Reactions0reactionsComments2 comments
Inspiring Patient Leader Kim Nash on Our PL Certification and How Advocacy Changed Her LifeSince we launched the Patient Leader Certification in 2023, we've had hundreds of Patient Leaders expand their knowledge base with the program. The Patient Leader Certification Program is the only...Reactions0reactionsComments0 comments
Taking Colon Cancer Signs SeriouslyColon cancer is rising among young people, yet its symptoms are often overlooked due to age related biases. In 2024, colorectal cancer became the leading cause of cancer-related deaths in...Reactions0reactionsComments1 comments
Ten Challenges of Advocating for Chronic Illness on Social MediaAdvocating for chronic illness on social media is no walk in the park. We face a myriad of challenges, from trolls peddling snake oil to well-meaning but misguided advice-givers who...Reactions0reactionsComments4 comments
The Benefits of a Smaller Social Media FollowingAs an online health advocate for eczema warriors, it has often felt overwhelming for me to navigate the many online social media distractions of what is popular versus what content...Reactions0reactionsComments3 comments
Media Representation of Disability and Chronic IllnessLiving with a chronic illness and/or disability can weigh heavily on a person. So when someone with a disability or chronic illness gets any sort of spotlight, it can be...Reactions0reactionsComments16 comments
How to Partner With Your Doctor for Better CareDo you have a great relationship with your primary or speciality doctor? When I ask people I know this question, they often say no. If "no" is the answer then...Reactions0reactionsComments5 comments
Laughter as Medicine: Using Humor in Health AdvocacyChronic illness is no laughing matter, but that doesn’t mean we can’t have some laughs when we advocate about it. Our bodies are always joking around with us, so it’s only right...Reactions0reactionsComments1 comments
Burnout is Real: Self-Care Strategies for the Long HaulAnyone else used to be a fiery advocate and now you feel more like a slightly warm teabag? You know those times when your emails sometimes bounce off your inbox...Reactions0reactionsComments3 comments
Filtering Personalities and Patient AdvocacyAddressing your advocacy comes with huge responsibilities, especially for those who bring their vocal experiences to a larger public audience. We establish and build our advocacy network with others who...Reactions0reactionsComments1 comments
Being Compensated for Your Advocacy is PossibleHave you heard that you can be compensated for your advocacy work? It is a true statement. It might not happen as soon as you start your advocacy journey but...Reactions0reactionsComments9 comments
Are You Advocating For the Right Reasons?When I first started my psoriasis advocacy, I was on fire to help make any changes that I could. Over 10 years later and I am still very much on...Reactions0reactionsComments3 comments
Ethics Of Making Money From My Health AdvocacySometimes as an online health advocate I question if it is ethical for me to make money off my online health advocacy. When I first tried treating my eczema as...Reactions0reactionsComments8 comments