Advocacy Isn’t a Competition: The Power of Quality Over QuantityIn the world of chronic illness advocacy, it’s easy to feel the pressure to keep up with others who seem to post...reactionscomments
Navigating Privacy With AlopeciaWhen I was first approached about writing articles about my alopecia journey, my first question was “Can I write under a pseudonym?"...reactionscomments
Chronic Hives Content OpportunityThe Social Health Network is looking for Patient Leaders who are living with chronic hives and have a strong writing ability to...reactionscomments
Community Views: Most Rewarding Advocacy ExperienceBeing a health advocate is such a powerful experience for a variety of reasons. To learn more about the ways this role...reactionscomments
Chutes and LaddersEditor's Note: This article was written by Elle C. and originally appeared on Blood-Cancer.com. Two months before my stem cell transplant, I...reactionscomments
Now for Something Different: GVHD of the FingernailEditor's note: This article was written by Ronni Gordon and first appeared on Blood-Cancer.com. Since the days when I started out as...reactionscomments
Treatment Side Effects - Graft-Versus-Host Disease (GVHD)Graft-versus-host disease (GVHD) is a potential complication from stem cell transplants, also known as bone marrow transplants. During a stem cell transplant...reactionscomments
More Than Hair Loss: Navigating the Mental and Physical Journey of AlopeciaWhen I was a senior in high school in 2011, I first noticed a small round bald patch on the crown of...reactionscomments
My Hair Loss and Diagnosis JourneyAlopecia did NOT enter my life quietly. It arrived with handfuls of shed hair, thinning patches, bath water covered in a film...reactionscomments
Compensated Video Interview for HER2- Breast Cancer Patient LeadersThe Social Health Network is looking for engaged breast cancer Patient Leaders who are living with HER2- breast cancer to share their...reactions1comment
When There’s More Than Meets the Eye: Coping With an Invisible IllnessIt can feel like a blessing and a curse at the same time. Being diagnosed with a chronic illness for which there...reactions1comment
My Journey into Chronic Illness Advocacy and Tips for New AdvocatesNever in my wildest dreams did I picture myself as a chronic illness advocate. Seriously, if you had told me as a...reactions1comment
My Journey With Central Centrifugal Cicatricial AlopeciaI am a short (5’0”) girl from South Carolina that has always had a lot of personality, and my hair was truly...reactionscomments
Losing My Hair: I Am Not Okay!How long can I pretend? It is okay to not be okay. For so long I have been a strong daughter, sister...reactionscomments
What Is Alopecia?Alopecia is the medical term for hair loss. It is a very common condition that affects millions of people worldwide. Hair loss...reactionscomments
Treatment Options for AlopeciaHair loss, also called alopecia, affects millions of people in the United States. There are many ways to manage and treat alopecia...reactionscomments
Breaking Up Is Hard To Do: When It’s Time To Find a New ProviderYou can start to sense when the relationship has run its course. Maybe clinic appointments are feeling rushed. Maybe you don’t feel...reactions1comment
Compliance is Not a Choice: What Every Health Leader Must Know About RegulationsYou've built a thriving online community. You share your health journey, your clinical expertise, and your insights with an audience that trusts...reactions6comments
Contribute Your Story & Experience with the Idiopathic Hypersomnia Community!The Social Health Network is seeking passionate individuals to share their personal or caregiving experiences with the idiopathic hypersomnia (IH) online community...reactions1comment
10 Ways to Successfully Navigate Your Patient Advocacy JourneyEmbarking on a patient advocacy journey is a meaningful and impactful endeavor. However, there are moments when uncertainty creeps in, and you...reactions3comments
