My Journey into Chronic Illness Advocacy and Tips for New AdvocatesNever in my wildest dreams did I picture myself as a chronic illness advocate. Seriously, if you had told me as a...reactions1comment
My Journey With Central Centrifugal Cicatricial AlopeciaI am a short (5’0”) girl from South Carolina that has always had a lot of personality, and my hair was truly...reactionscomments
Losing My Hair: I Am Not Okay!How long can I pretend? It is okay to not be okay. For so long I have been a strong daughter, sister...reactionscomments
What Is Alopecia?Alopecia is the medical term for hair loss. It is a very common condition that affects millions of people worldwide. Hair loss...reactionscomments
Treatment Options for AlopeciaHair loss, also called alopecia, affects millions of people in the United States. There are many ways to manage and treat alopecia...reactionscomments
Breaking Up Is Hard To Do: When It’s Time To Find a New ProviderYou can start to sense when the relationship has run its course. Maybe clinic appointments are feeling rushed. Maybe you don’t feel...reactions1comment
Compliance is Not a Choice: What Every Health Leader Must Know About RegulationsYou've built a thriving online community. You share your health journey, your clinical expertise, and your insights with an audience that trusts...reactions6comments
Contribute Your Story & Experience with the Idiopathic Hypersomnia Community!The Social Health Network is seeking passionate individuals to share their personal or caregiving experiences with the idiopathic hypersomnia (IH) online community...reactions1comment
10 Ways to Successfully Navigate Your Patient Advocacy JourneyEmbarking on a patient advocacy journey is a meaningful and impactful endeavor. However, there are moments when uncertainty creeps in, and you...reactions3comments
How I Became a Patient AdvocateTwenty years ago, when I was first diagnosed with a lifelong illness, I would never have imagined what that diagnose would mean...reactions2comments
Dealing With Imposter Syndrome as a Chronic Illness AdvocateToday, I want to talk about something that has been weighing on my mind lately—a feeling that many of us, especially those...reactions9comments
Ten Challenges of Advocating for Chronic Illness on Social MediaAdvocating for chronic illness on social media is no walk in the park. We face a myriad of challenges, from trolls peddling...reactions4comments
How I Carved Out My Niche in the World of Chronic Illness AdvocacyNavigating the world of chronic illness is kind of like trying to solve a Rubik’s Cube, blindfolded, and with one hand tied...reactions10comments
REPLAY: How To Use TikTok to Further Your AdvocacyTikTok allows its users to create short videos that are captivating, creative, and authentic. With over 14 million daily users, it has...reactions4comments
Art as Patient Advocacy: Healing, Expression & Community ConnectionPatient advocacy doesn’t have to be a one-size-fits-all approach. Art is an underrated form of patient advocacy that can be beneficial, not...reactionscomments
How To Use Social Media as a Patient LeaderPatient advocacy can take many forms. Some examples are writing your senators in favor of research funding, leading a support group, or...reactions2comments
Tips for Your First Conference: Based on My First ExperienceAs a Social Health Network and patient advocate, it is entirely possible that you will have the opportunity to attend a conference...reactions5comments
Importance of Patient PerspectivesLiving with a chronic illness comes along with a few facts of life - the first is that our experience of our...reactionscomments
HER2+ Breast Cancer Experience OpportunityThe Social Health Network is seeking passionate individuals to share their personal experiences with breast cancer, particularly those diagnosed with HER2+ type...reactionscomments
Compensated Opportunity for Patients Who Have Had the Shingles VaccineThe Social Health Network is looking for patient leaders to share their journey to help promote educational resources for the community about...reactionscomments
