After Leukemia, Dealing With Skin CancerEditor's note: This article was written by Ronni Gordon and first appeared on Blood-Cancer.com. Heading to my checkup the other day at...reactionscomments
Surprised by a Nightmare About GVHD of the SkinEditor's note: This article was written by Ronni Gordon and first appeared on Blood-Cancer.com. Blood cancer survivors: Have you ever had a...reactionscomments
The "Good" CancerEditor's note: This article was written by Tyler Goodwin and originally appeared on Blood-Cancer.com. I have heard some people say non-Hodgkins follicular...reactionscomments
"Alphabet Soup:" Explaining ECP for GVHD of the SkinEditor's note: This article was written by Ronni Gordon and first appeared on Blood-Cancer.com. When I tell people that I had four...reactionscomments
More Than Hair Loss: Navigating the Mental and Physical Journey of AlopeciaWhen I was a senior in high school in 2011, I first noticed a small round bald patch on the crown of...reactionscomments
My Hair Loss and Diagnosis JourneyAlopecia did NOT enter my life quietly. It arrived with handfuls of shed hair, thinning patches, bath water covered in a film...reactionscomments
Compensated Video Interview for HER2- Breast Cancer Patient LeadersThe Social Health Network is looking for engaged breast cancer Patient Leaders who are living with HER2- breast cancer to share their...reactions1comment
When There’s More Than Meets the Eye: Coping With an Invisible IllnessIt can feel like a blessing and a curse at the same time. Being diagnosed with a chronic illness for which there...reactions1comment
My Journey into Chronic Illness Advocacy and Tips for New AdvocatesNever in my wildest dreams did I picture myself as a chronic illness advocate. Seriously, if you had told me as a...reactions1comment
My Journey With Central Centrifugal Cicatricial AlopeciaI am a short (5’0”) girl from South Carolina that has always had a lot of personality, and my hair was truly...reactionscomments
Losing My Hair: I Am Not Okay!How long can I pretend? It is okay to not be okay. For so long I have been a strong daughter, sister...reactionscomments
What Is Alopecia?Alopecia is the medical term for hair loss. It is a very common condition that affects millions of people worldwide. Hair loss...reactionscomments
Treatment Options for AlopeciaHair loss, also called alopecia, affects millions of people in the United States. There are many ways to manage and treat alopecia...reactionscomments
Breaking Up Is Hard To Do: When It’s Time To Find a New ProviderYou can start to sense when the relationship has run its course. Maybe clinic appointments are feeling rushed. Maybe you don’t feel...reactions1comment
Compliance is Not a Choice: What Every Health Leader Must Know About RegulationsYou've built a thriving online community. You share your health journey, your clinical expertise, and your insights with an audience that trusts...reactions6comments
Contribute Your Story & Experience with the Idiopathic Hypersomnia Community!The Social Health Network is seeking passionate individuals to share their personal or caregiving experiences with the idiopathic hypersomnia (IH) online community...reactions1comment
10 Ways to Successfully Navigate Your Patient Advocacy JourneyEmbarking on a patient advocacy journey is a meaningful and impactful endeavor. However, there are moments when uncertainty creeps in, and you...reactions3comments
How I Became a Patient AdvocateTwenty years ago, when I was first diagnosed with a lifelong illness, I would never have imagined what that diagnose would mean...reactions2comments
Dealing With Imposter Syndrome as a Chronic Illness AdvocateToday, I want to talk about something that has been weighing on my mind lately—a feeling that many of us, especially those...reactions9comments
Ten Challenges of Advocating for Chronic Illness on Social MediaAdvocating for chronic illness on social media is no walk in the park. We face a myriad of challenges, from trolls peddling...reactions4comments
