Have you ever, or do you want to, publish a book about your story?
Share your journey to getting a book published about your health advocacy below. Let us know if you have any tips or tricks for those who want to get started in writing, but aren't sure where to begin. Also, share a link to your book!!
Hello everyone. Yes, I have written a number of books about living with certain conditions such as double vision, leg length discrepancy, total knee replacement, and fractured jaw. I am currently updating my website and revamping my laptop, so no links yet. Plus, I am writing another book about living in a body cast for two years. Writing books is time consuming, but well worth it. Thanks for reading. 😀
Thank you Racquel. I can’t wait to check out your link.
I would like some guidance when it’s time. Just to get me started in the right direction.
~ Janet
I have three published books. Two of them are poetry based on the pain and suffering of those with chronic illness and chronic pain. My 3rd book is about my own personal journey through 30 years of fighting to find out what was wrong with me. I have three others that are started. Two of them are nearly finished. After having severe osteoporosis, I took two falls. In 2023, I fractured my collarbone, shoulder blade, and two ribs. It took over 8 months to get my collarbone surgery. It would not grow back together. Later in 2023, I fell and fractured my left femur down by my knee prosthesis. I had to have major surgery on it. I did my rehabilitation at home. I lost one of my pups when I fell in 2021 and fractured my right hip. I was in inpatient rehabilitation for 6 weeks. One of my pups mourned himself to passing away. He would not eat nor drink. My son brought him to me one night. He passed away in my arms in the rehab hospital. After that happened, I swore I would never leave one of them again. I have had so many other issues healthwise and just life itself that I had to put my other books on hold. I hope to get those published within the next year.
Thank you! Osteoporosis is a nightmare. I will not keep myself down. None of the illnesses and diseases will keep me down. If I am outside working in the yard, I feel my best. I also feel better when my Doxie, Bella, is by my side. thats fantastic. I loved everything outdoors. Let someone else do the housework. I also have asthma, allergies and COPD, as well as the orthopedic, etc. I hope that you can enjoy working in your yard for as long as you choose to do so.
We both do better with a dog by our side. Bella is a pretty name. They do make the world go round don’t they?
~ Janet
Yes, I thought about it several times. Having Lupus for 35 years and having Lupus Nephritis and other autoimmune diseases and still thriving sounds like a must read of inspiration for fellow advocates. Especially for newly diagnosed warriors.
, That is the precise reason it's important to tell it 😀 And sometimes, it's not even about the condition, it's about the spirit with which you meet it! Yours feels indomitable <3 - Warmly, Donna (Team Member) my heart goes out to you. I have a friend with Lupus.
