FeaturedPatient & Caregiver Advocate Bulletin Board* Are you looking for other Patient Advocates to help with a project? * Want to share information about an upcoming event? * Working on an exciting project that you'd...Reactions0reactionsComments10 repliesCommunityAdvocacy
New Health Leader - Brief SummaryHi, my name is Mike Hellman and I’ve been living with HIV for 40 years now. In 1985 I went to a very old Health Department clinic to get a...Reactions0reactionsComments3 replies
How can we best assist you?What are you looking for at the Social Health Network? Do you like trainings, networking, or something else?...Reactions0reactionsComments16 repliesAdvocacy
Medical Gaslighting: Tell Me a Time You Were Dismissed By Your DoctorCan you remember a time when you were medically gaslit? Medical gaslighting is the act of a healthcare provider ignoring or dismissing a patient's concerns or complaints and leaving them...Reactions0reactionsComments44 repliesCopingTips & Advice
My Migraine Story In my 30's I developed serious headaches. My Dr at the time gave me a prescription for Imitrex, but I found it didn't work. So I was recommended to go...Reactions0reactionsComments1 replies
How do you leverage social media as a Health Leader?The internet and social media has created amazing opportunities for patient leaders to reach various healthcare communities. Patients go online to get answers and find support. Healthcare companies want to...Reactions0reactionsComments2 repliesAdvocacyHealth LeadershipSocial Media
Invisible Disabilities Awareness Week▪️In the U.S., Invisible Disabilities Awareness Week is October 20th – 26th, 2024. ▪️I live with Fibromyalgia, Ankylosing Spondylitis, Arthritis, Migraine Disorder, Degenerative Disc Disease, Irritable Bowel Syndrome, Anxiety, Ehlers...Reactions0reactionsComments8 repliesAwareness
Change of FriendsHave you found that your work in advocacy has changed the dynamics of your friend circle? How accurate is the saying that quality vs quantity of friendships is key, especially...Reactions0reactionsComments21 repliesCopingFriends & FamilyIntimacy & Relationships
On the Road to Remissionhttps://www.amazon.com/dp/B08QRB3H3G...Reactions0reactionsComments2 repliesAwareness
Have you ever, or do you want to, publish a book about your story?Share your journey to getting a book published about your health advocacy below. Let us know if you have any tips or tricks for those who want to get started...Reactions0reactionsComments5 repliesAwarenessAdvocacyTips & Advice