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What are you favorite conferences to attend?

Share any conferences that you love going to--whether they're about advocacy, your specific condition, or something else!...

Within your advocacy, what term(s) resonate with you most?

How do you typically refer to your community leadership, and/or what terms resonate with you most? Health Advoacay? Patient Advocate? Patient/Caregiver Health...

Is Advocacy Your Side Gig or Career?

I have found such a great way to make a little change from speaking and writing about my health condition. At first...

Balancing Beauty Routines with Sensitive Skin or Eye Conditions

Hi everyone, I wanted to start a conversation about how health conditions affect our approach to beauty. For example, some people with...

Help with managing neuropathic amyotrophy

Hello, my girlfriend was diagnosed with neuropathic amyotrophy. The pain is in her right shoulder, and she can't move her arm much...

ماهي النصائح لاعداد احصائيات وطنية للامراض المزمنة

أهمية وجود قاعدة بيانات وطنية موحدة. الاعتماد على السجلات الصحية الإلكترونية وتقارير المستشفيات. تدريب الكوادر على جمع وتحليل البيانات. توحيد معايير التصنيف...

Sharing Mental Health Books with Those Who Need Them Most

As someone who has written and published a book on mental health, one of my biggest goals has been making sure it...

How is Technology Improving the Healthcare Industry?

I’ve been exploring how digital solutions are changing the way healthcare works today. It’s clear that technology is doing more than just...

If you could tell your younger self one piece of advice, what would it be?

Whether it be related to your advocacy, health, relationships, personal matters, etc, we all know that hindsight is 20/20, so what is...

How do I get more involved with conferences and speaking?

How do I get more involved with conferences and speaking I spoke at the Crohn’s and colitis foundation fall symposium and part...

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