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Life Modifications

I have had to make some modifications to fit advocacy in my schedule. I have had to rely heavily on time management and proper planning to be able to fit...

Moving beyond issues

How do you stay motivated to move beyond the issues of your chronic condition? What keeps you pushing through?...

Breaking Silos...

FOOD FOR THOUGHT: We often talk about "breaking the silo" within our own communities, but how often are we breaking silos, to collaborate with Patient Leaders in other spaces other...

Will you take our In America survey and help others understand the impact of living with chronic and terminal health conditions?

To learn more about the challenges of living with chronic and terminal health conditions, we are conducting our In America survey. By taking our survey, you can bring awareness to...

All The Single Spoonies... All The Single Spoonies... All The Single Spoonies... Put Your Hands Up....

As we move out of the month of January into the month of February, we are bombarded with messages of Valentine's Day being "The Day Of Love" and celebrating couples...

How To Advocate For Your Healthcare

At one point or another, we learn often through trial and error, how to advocate for our healthcare needs... Let's share our insights on improving our skills sets and knowledge...

How do you manage your professional life while dealing with a chronic condition?

How have you managed your professional life while dealing with a chronic illness or being a caregiver of someone with a chronic illness?...

Do the holidays impact you?

Navigating the holidays can be challenging when living with a chronic or terminal condition. Do they impact you emotionally and/or physically? Do you typically get extra questions about your health...

Anyone?

can any tester relate?...

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