What Is Your Awareness Day?I try my best to support other patients, by promoting awareness on social media, on their designated awareness day. What is the medical condition you promote awareness/support and advocate for?...reactions1reply
Health involves all aspects of life, but programs are confined and don't cross communicateI am so tired. I have had to learn so much of the policy in every single program I have needed to apply to. I feel overwhelmed and have developed...reactionsrepliesAwarenessAdvocacyTips & Advice
What's Your Talent???What talents or skills sets, that may not be typical for advocacy, do you use as part of your awareness, support and advocacy projects? As for me, I am a...reactions4repliesCommunityAdvocacyAwareness
Life ModificationsI have had to make some modifications to fit advocacy in my schedule. I have had to rely heavily on time management and proper planning to be able to fit...reactions2repliesAdvocacy
Moving beyond issuesHow do you stay motivated to move beyond the issues of your chronic condition? What keeps you pushing through?...reactions1replyCoping
Breaking Silos...FOOD FOR THOUGHT: We often talk about "breaking the silo" within our own communities, but how often are we breaking silos, to collaborate with Patient Leaders in other spaces other...reactions2repliesCommunity
Will you take our In America survey and help others understand the impact of living with chronic and terminal health conditions? To learn more about the challenges of living with chronic and terminal health conditions, we are conducting our In America survey. By taking our survey, you can bring awareness to...reactions3replies
All The Single Spoonies... All The Single Spoonies... All The Single Spoonies... Put Your Hands Up.... As we move out of the month of January into the month of February, we are bombarded with messages of Valentine's Day being "The Day Of Love" and celebrating couples...reactions2repliesTips & AdviceFriends & FamilyIntimacy & Relationships
How To Advocate For Your HealthcareAt one point or another, we learn often through trial and error, how to advocate for our healthcare needs... Let's share our insights on improving our skills sets and knowledge...reactions2repliesNewly DiagnosedTips & AdviceAdvocacy
How do you manage your professional life while dealing with a chronic condition?How have you managed your professional life while dealing with a chronic illness or being a caregiver of someone with a chronic illness?...reactions2repliesCoping