How does your disease or condition impact your social life?

I can relate to how everyone feels. I wish i could hug you all. Back in 2006, i was diag. with MS. I was doin okay, managing with a few exacerbations. Then in 2017, i moved into "the house that gave me a death sentence." In the last 3yrs, ive been in the hospital 17 times. All starting with bouts of pneumonia and upper respiratory failure. I was intubated 7 of those times, one for 11 days. After the 1st few, a very smart e.r. dr. asked a 1st responder to come back to the house and take air quality readings. He did, and within an hr, the house was full of city inspectors, manafers, F.D., P.D., etc. A big orange sticker was slapped on the front door, HAZARD-KEEP OUT. and we had 20min to leave. Our furnace, hot water tank, a n.v d entire ventilation system were put in backwards and upside down! No bad air ever left the house. Even though i have 2 carbon monoxide detectors, the leak was low enough to just miss them going off. But because i have an auto immune disease, i couldnt fight off the damage from the poisoning. I was told this by my dr while i was in the hospital again for having seizures. They said i now have epilepsy.
I knew my lungs, esophagus, throat, and outlook was damaged. I just didnt know how much. In April of this year, a guy who was giving me a breathing tratment at yet another hospital stay, grabbed my hand and said, "I'm so sorry. You seem so sweet and so young." Ummm, huh? What exactly are you talking about? "Well it says here you hav ed end stage COPD. Terminal. You probably have a year or 2." Then i heard the earth crack. No dr said a word til then. As soon as i was out, i practically ran (well, ran is a strong word for copd'ers) but in my head i did, to my pulmonologist. I said, he has to be wrong, isnt he? Crickets. I got crickets. When i burst into tears, he said no one has a crystal ball. But you did know your lungs were damaged. It was like taking a bullet. But back to the house.
I have section 8. Their inspector came in June and asked me to come in the kitchen. He took a butter knife and flipped up a chunk of the bottom shelf under the sink. There was inches of black goo. Mold, black mold and mildew. The entire kitchen, living room and hallway had to be gutted. Leaks under the house, overflow of waste pipes, etc. Over years, again. 3 times i called maintenance over the 7yrs ive been here, for the waste pipe overflowing into the front yard and toilet, bathtub and sinks overflowing, but had no idea what i was living on. My drs lost their minds. They believe this was a worse contributor than the CO poisoning. The landlord was angry too. Angry he had to fix all this. He called one night after it was done. By done i mean he put new flooring over the damage. He said isnt it about time my family put me in a nursing home. I cant be M of much use anymore. He's tired of wasting time with me and now that hģ ees put this new flooring in, he thinks he can get another $400-600mth rent. So he's gonna evict me. Now i have this fight i have very little energy for. Im starting in hospice tomorrow. I dont know where to even begin with my landlord. Any charity, entity, organization that offers help? Ive applied. Ive neve rd felt so lost, alone and terrified. I dont want to die homeless. Last year my car died an awful death and couldnt be revived or replaced. So i dont even have a car to live in. Give up? Hell no. This happened to me, i didnt do the wrong. I refuse to be a victim. My dr said im not one to sit in the corner boo-hooing waiting for the worst to happen. I know there's help somewhere. But to be able to vent is one of thee best medicines. Your friends are dumb enough to ghost y oi u cause they dont know what to say? Find new ones. I had a few. It hurt, but i have more to worry about. And if anyone here needs help on finding or applying for assistance? Im your girl. Ive become a somewhat of an expert. Yes, thats a self considered title. Lol. But I'd hate to hear of those who are sick being alone and afraid like me. In a world where meanness is encouraged we can eliminate that. We have eachother. Thank you, everyone, for allowing me to write my novel. I apologize for the length. Please. Reach out if you even just need tk talk. Ill always be here.

My social life does not exist that is why this seems like a good outlet for me. Reading and researching take up a lot of my time. And I am looking to build my community.

My social life MS is mostly affected by my anxiety and fatigue. I often miss a lot of events with friends and family because I fear that I have to leave early.

Some of friends and family have stopped including in their plans. It often then makes me feel depressed.

Can anyone relate to this?

Epilepsy has kept me from driving for over 30 years. That's meant that I couldn't do things "spontaneously" or "on a whim". Everything had to be planned ahead of time when I had a driver available who was going in the direction I needed--and would be willing to wait for me to do whatever was necessary. It's caused friction with me and my wife because she is the primary bread winner, and her work schedule leaves her mentally and emotionally drained, which limits her availability to drive for me (bless her soul). We've been able to be patient about this this, and be as accomodating as possible and will be married for 20 years tomorrow.