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Are you prepared if something were to happen to you?

Health & Wellness Beyond the Doctor End-of-Life care can be difficult to discuss. Have you talked with your family and caretakers to discuss palliative care? Have you spoken with your...

Type 1 Diabetic Miss Arizona

Hi there! I am the current National American Miss Arizona (2023-2024) and am a type 1 diabetic. It’s been an awesome journey breaking stereotypes for those of us with chronic...

Multiple Health Issues

Hi! I am Cindy, from Richmond, Vermont. I have a number of health issues - Rheumatoid Arthritis, Lung Cancer and Heart Attack survivor, sleep apnea, high blood pressure, and high...

What Is Your Awareness Day?

I try my best to support other patients, by promoting awareness on social media, on their designated awareness day. What is the medical condition you promote awareness/support and advocate for?...

Health involves all aspects of life, but programs are confined and don't cross communicate

I am so tired. I have had to learn so much of the policy in every single program I have needed to apply to. I feel overwhelmed and have developed...

What's Your Talent???

What talents or skills sets, that may not be typical for advocacy, do you use as part of your awareness, support and advocacy projects? As for me, I am a...

Life Modifications

I have had to make some modifications to fit advocacy in my schedule. I have had to rely heavily on time management and proper planning to be able to fit...

Moving beyond issues

How do you stay motivated to move beyond the issues of your chronic condition? What keeps you pushing through?...

Breaking Silos...

FOOD FOR THOUGHT: We often talk about "breaking the silo" within our own communities, but how often are we breaking silos, to collaborate with Patient Leaders in other spaces other...

Will you take our In America survey and help others understand the impact of living with chronic and terminal health conditions?

To learn more about the challenges of living with chronic and terminal health conditions, we are conducting our In America survey. By taking our survey, you can bring awareness to...

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