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Forgiveness

Being an advocate can be super stressful. Sometimes we blame ourselves for things we have no control over. We become our own worst critic. Today my journal prompt had me...

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What have you found helpful in getting started sharing your health advocacy journey?

If you are an experienced health leader and advocate, what advice or tips can you give to someone looking to get started in health advocacy?...

Talking To Young Spoonies

If you were diagnosed with a chronic illness when you were young, or you currently work with young spoonies, I would love everyone to share your tips and experiences on...

Website issue

When I go to click the button to go to my dashboard I get this error...

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Are you prepared if something were to happen to you?

Health & Wellness Beyond the Doctor End-of-Life care can be difficult to discuss. Have you talked with your family and caretakers to discuss palliative care? Have you spoken with your...

Type 1 Diabetic Miss Arizona

Hi there! I am the current National American Miss Arizona (2023-2024) and am a type 1 diabetic. It’s been an awesome journey breaking stereotypes for those of us with chronic...

Multiple Health Issues

Hi! I am Cindy, from Richmond, Vermont. I have a number of health issues - Rheumatoid Arthritis, Lung Cancer and Heart Attack survivor, sleep apnea, high blood pressure, and high...

What Is Your Awareness Day?

I try my best to support other patients, by promoting awareness on social media, on their designated awareness day. What is the medical condition you promote awareness/support and advocate for?...

Health involves all aspects of life, but programs are confined and don't cross communicate

I am so tired. I have had to learn so much of the policy in every single program I have needed to apply to. I feel overwhelmed and have developed...

What's Your Talent???

What talents or skills sets, that may not be typical for advocacy, do you use as part of your awareness, support and advocacy projects? As for me, I am a...

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