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Are you passionate about sharing your journey with chronic pain conditions?

Do you want to inspire others and spread awareness about living with illness? We want to hear from you! Become a guest on Butterfly Chats Podcast and share your story...

Who to contact about a study opportunity

First off, I am apologizing in advance...I should totally know this, but was diagnosed with MS in April, and my brain is still broken. I was approached by a company...

Do you have questions about starting a career in advocacy?

There's a lot to consider before you begin you career in advocacy. Do you have questions about how to make money, get jobs, what content to create, how to start...

If you could tell your younger self one piece of advice, what would it be?

Whether it be related to your advocacy, health, relationships, personal matters, etc, we all know that hindsight is 20/20, so what is the one piece of advice that you would...

The Reality When You Live With a Rare Condition

The Reality of me living with a rare disease and what goes through my mind constantly. I wake every morning with the same awful cramps in my stomach that painful...

Disease Specific Medical Conferences

Hello fellow advocates!! I was wondering how many of you attend conferences related to your specific diseases? We want to be the best patient leader that we can. I think...

Business or Advocacy

On your public advocacy journey have you found it challenging moving towards the business elements? For many being a patient advocate is about sharing our voice and stories, but in...

Do you have an advocacy question?

Need advice or tips from our team of expert patient advocates? Ask it here!...

I need a job, is anyone hiring?

Goal Setting: How Do YOU Use Social Media as an Advanced Health Leader?

Have you started to set goals around your social media advocacy? Tell us your top three goals using the following bullet points as an example: * Reach x amount of...

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