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Have you experienced imposter syndrome?

Do you become overwhelmed in speaking heavily on a subject and then wonder how effective you are in sharing, and whether you are qualified to advocate at all on the...

Multiple Health Issues

Hi! I am Cindy, from Richmond, Vermont. I have a number of health issues - Rheumatoid Arthritis, Lung Cancer and Heart Attack survivor, sleep apnea, high blood pressure, and high...

Minding Your Mental Health as a Content Creator

During our live event on March 21st, we discussed caring for your mental well-being in the digital age, specifically for patient advocates and caregivers. Panelists Ilana Jacqueline and Jessica Lipkin...

What Is Your Awareness Day?

I try my best to support other patients, by promoting awareness on social media, on their designated awareness day. What is the medical condition you promote awareness/support and advocate for?...

Health involves all aspects of life, but programs are confined and don't cross communicate

I am so tired. I have had to learn so much of the policy in every single program I have needed to apply to. I feel overwhelmed and have developed...

What's Your Talent???

What talents or skills sets, that may not be typical for advocacy, do you use as part of your awareness, support and advocacy projects? As for me, I am a...

Life Modifications

I have had to make some modifications to fit advocacy in my schedule. I have had to rely heavily on time management and proper planning to be able to fit...

Moving beyond issues

How do you stay motivated to move beyond the issues of your chronic condition? What keeps you pushing through?...

Breaking Silos...

FOOD FOR THOUGHT: We often talk about "breaking the silo" within our own communities, but how often are we breaking silos, to collaborate with Patient Leaders in other spaces other...

Will you take our In America survey and help others understand the impact of living with chronic and terminal health conditions?

To learn more about the challenges of living with chronic and terminal health conditions, we are conducting our In America survey. By taking our survey, you can bring awareness to...

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