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Change of Friends

Have you found that your work in advocacy has changed the dynamics of your friend circle? How accurate is the saying that quality vs quantity of friendships is key, especially when faced with a chronic condition?

  1. I began blogging for an HIV website within months of my diagnosis, my previous journalism background turned me from newly diagnosed to speaking out. In the beginning my new friends were blog fans who began emailing me. Not long after I joined a women's HIV support group in Seattle, then found online ones. These days at least half of my close friends are HIV positive people I have collected on my journey. I have been diagnosed positive 15 years now, and keep collecting HIV activist community members in my circle. I even moved to a state where I knew no one, because my support is always with me on Zoom & other online spaces. I have 3-4 HIV Zooms after work weekly to keep me involved.

    1. , thank you for sharing the positive ways in which we can use technology and social media to further advocacy! - Warmly, Donna (Team Member)

    2. I'm happy to hear you've made friends along the way in a community that understands and understands the strides within the community. Keep at it, best!

  2. There are friends for seasons and then friends for a lot longer. When I first got sick with chronic illness, I quickly learned who my true friends are. Since then there has been a natural evolution. After my kidney transplant last year, I put my foot down on a lot of behavior from people. I had to cut out a friend. Even though I think about them once in a while, I haven't felt bad once.

    1. Yes, it's okay to think about them now and again, but then you learn to carry on to the next. We learn that life is about adjusting and readjusting and having people by your side through most of it says a lot about those true and blue. Best!

  3. Absolutely! I've lost some friends and gained others. Many don't understand the dedication that I as an advocate present day to day. Some have even said why do you talk about your chronic illness so much. I don't sweat it anymore. If you are with me run beside me. If you aren't run off the next exit and keep it moving away from me. ~Racquel~ Team member

    1. I totally get this ...especially keeping it moving. I haven't had this direct problem but I think as time goes and growth comes into play - the circle just gets smaller, and that's cool. Thank you for sharing!
      😀

    2. absolutely we have to get to a point where it’s okay. I took some time to get there lol 😂 ~Racquel~ team member

  4. My awareness and advocacy work has definitely changed my circle of friends. Lost some long time friends along the way but gained some new ones along the way. While it is unfair and disappointing that you lose some friends along the way, personally, I’d rather know who my support system is right away versus finding out too late. At the end, those who are truly your friends and support you and your mission will be there and will be cheering for you with every accomplishment you achieve.

    1. 🔥 💜

    2. exactly! 💜

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