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New Health Leader - Brief Summary

Hi, my name is Mike Hellman and I’ve been living with HIV for 40 years now. In 1985 I went to a very old Health Department clinic to get a...

My Migraine Story

In my 30's I developed serious headaches. My Dr at the time gave me a prescription for Imitrex, but I found it didn't work. So I was recommended to go...

Invisible Disabilities Awareness Week

▪️In the U.S., Invisible Disabilities Awareness Week is October 20th – 26th, 2024. ▪️I live with Fibromyalgia, Ankylosing Spondylitis, Arthritis, Migraine Disorder, Degenerative Disc Disease, Irritable Bowel Syndrome, Anxiety, Ehlers...

I didn't even know how to pronounce Sarcoidosis

I'm 48 years old I was diagnosed with a rare disease called Sarcoidosis in 2010. I told my dr u have what I knew nothing about it it can attack...

Do You Deal With Imposter Syndrome? Let's talk!

Hello everyone. There was recently a topic posted by Admin about dealing with Imposter Syndrome. It hit home. It's not something I freely talk about with others in real life...

Featured

Chronically Ill and Alone: Do You Have Fears of Being Sick and Single?

One topic of discussion that isn't often broached often are our feelings and fears of being single and chronically ill. Many of us are not married nor have a significant...

Busting the Myths: What Patient Advocacy Really Means

A common misconception surrounding patient advocacy and patient - centered care is that it solely involves speaking on behalf of patients who may feel powerless or unable to voice their...

Coping with a New Diagnosis and Managing Side Effects

Here's a structure to guide the discussion: Introductory Post: "I was recently diagnosed with [OCD]. I'm still learning about the condition, and I'm feeling overwhelmed by the side effects of...

Advocacy Cliques

This may be a touchy subject but here it goes. Have you ever experiences advocacy cliques during your advocacy of your specific chronic illness? You know the ones that only...

Misconceptions

What are some common misconceptions people have about patient advocacy?...

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