Patient & Caregiver Advocate Bulletin Board
* Are you looking for other Patient Advocates to help with a project?
* Want to share information about an upcoming event?
* Working on an exciting project that you'd like to share or talk more about?
Maybe you want to profile other’s stories on your blog or podcast, or perhaps you are working on a local event that you’d love to get other Patient Advocates involved in or attend.
Feel free to post information about any events, activities, or projects you'd like to spread the word about or share!
And don’t forget, if you'd like to connect with other members - Per our Community Rules, while personal contact information cannot be shared (e.g., email address), please feel free to provide your social media handles or ensure they are added to your SHN profile.
*Please do not use this thread for any capital gain (examples: selling of services, recruitment for projects which you’ll receive compensation for) or solicitation (example: GoFundMe).
The Social Health Network has the right to remove postings that we deem violate our Community Rules. https://health-union.com/community-rules/
Cayenne Wellness Center and Children’s Foundation is hosting a 24-hour Sickle Cell Marathon on June 19th, running from 12:00 AM EST to 11:59 PM PST.
We are currently seeking enthusiastic co-hosts to help maintain the flow of the event throughout the day. Please note: all speakers for the sessions have already been selected. Co-hosts will appear on the Zoom screen and play a key role in keeping the event moving smoothly, filling any gaps between sessions to ensure there is no downtime.
If you’re interested in supporting this global initiative, please contact Carley Cole at Carley.Cole.CayenneWellness(at)gmail.com.
learn more about the event here: https://sicklecellday.com 
I would like to invite you to my patient presentation on June 11, 11am MST (Mountain Time). Registration link and details below. This event is hosted by Canopy Art and Wellness as part of the “See Me, Hear Me” art show.
Register here: https://www.eventbrite.ca/e/patient-advocacy-through-graphic-healing-tickets-1384255849509
Healing Through Story: Patient Advocacy in Pictures
After developing an allergy that is poorly understood by the public and healthcare professionals, Joan found she had to advocate for herself. So she made books. Despite the stumbling blocks, every book became a stepping stone on a path of self-advocacy and restoration of identity. From writing and illustrating two storybooks featuring the first children's book character with her allergy, she found that these books fostered empathy and community. Join in for a session where she will highlight some of the challenges of patient advocacy and book-making, as well as share resources that have been most helpful.
About the speaker
Joan Tu is the author of The Green Soap Girl & the Itchy Allergy, which has been peer-reviewed and included in the Green Chemistry Teaching and Learning Community library. Her book The Green Soap Girl Goes to the Beach was funded by Calgary Arts Development which enabled her to raise further awareness about methylisothiazolinone allergy. She was formerly a medical student at the Cumming School of Medicine, University of Calgary, however left the program after developing severe contact dermatitis from not being diagnosed correctly for 2.5 years. She has since continued to promote equity by producing educational resources and publishing them under the brand MedULingo.
If you're working on a project to support patients in underserved areas, that’s an amazing initiative! Are you looking for patient advocates, healthcare professionals, or organizations to collaborate with? Let me know what you have in mind, and I can help brainstorm ways to connect with the right people.
Hello! I would love to collaborate with people on my YouTube channel. I interview disabled/chronically ill individuals and we chat about our daily challenges, tips on how to overcome those challenges, and spread awareness. Check out my YouTube if you are interested, DM me! Thanks.
https://www.youtube.com/@docdogndisabilities
