joanna-bodner
Within your personal life, health journey, or advocacy work, what are you most proud of, or what accomplishment fills you with the most pride?
RobertaG Member
As Co-Founder of The Shane Foundation, (maternal fetal health advocacy) I am most proud that my patient education proposal to the ACOG Council in 2018 resulted in the creation of the ACOG AIM "Urgent Maternal Warning Signs" program and the "CDC Hear Her" program. Both of these programs educate women to become "their own first line of defense" in recognizing and reporting critical symptoms which potentially indicate conditions responsible for the leading causes of maternal death.
The three leading causes of US maternal deaths are preeclampsia, cardiovascular disease and VTE. The Shane Foundation website, (shanefoundation.org) addresses all three with special focus on VTE (which can be related to the other two).
The website presents a "visual-learning" pogram enabling ALL women, regardless of their level of education, to understand these complex medical issues.
rhiannonnicks Member
When I went to Washington DC with the Arthritis Foundation and was a Platinum Ambassador I was in awe and glad I got to tell my story to some of the Representatives. I was actually Platinum Ambassador 2 years but did not get to go to DC the 2nd time because my Lupus was flaring badly. I am proud of my BOOK that is published about my life and these illnesses and or diseases. I have 2 more that are in the process of being published. I love doing my blog and keeping on contact with others though FB, Instagram and the Social Media Network site.Laura at the AF really helped. me and Tiffany... plus MANY OTHERS right here at "Health Union" and Social Media Network. I commend each of you for helping us HELP OTHERS!
DonnaFA Community Admin
90sLupusWarrior Member
leap4artnyc Member
I am proud of several things. But most recently I am proud of the fact that my art is often selected to be online. Often that painting has been done during a bad MS episode. I have even done artwork when my eyesight is iffy.
At the beginning of my MS venture I was in a doctorate program. I had never had trouble with reading during my Masters program but I didn’t have or didn’t know I had MS.
During my doctorate there were times I needed more time. I hardly ever asked for the time. But it was forgot know it was there.
I believe now that we should pay attention to ourself and feeling but at the same time don’t give up trying.
DonnaFA Community Admin
CommunityMember7a1a37 Member
Being an inspiration to others with epilepsy. I've had it since the age of 2, am 61 now, and being a support group facilitator for 30 years, I've seen too many people who immediately thought their world has ended after being diagnosed. Just because it meant they couldn't drive, either had to make temporary moves at work or go on disability, they did no research at all about the overwhelming number of famous people impacted mankind even with it: i.e., Socrates, Caesar, Einstein, Sir Isaac Newton, St. Paul, James Madison to name just a few. They have to learn the difference of what is a fantasy in their life and what is a dream! I'm compassionate to their early grieving--they have to get it out of their system--but then I metaphorically "shake them up", and set about helping them ask questions of their doctors and agencies that are immediately applicable to THEIR case and not just ALL people. God has blessed me with talents and opportunities to teach overseas, write a book, be a TV news professionally, and now the opportunity to show these people the successes of other people with epilepsy in my own YouTube podcast, Epilepsy Gangster. The older I get, the lazier I tend to feel about getting the job done (maybe a partial influence of my meds), but I thank God for selecting me to have the privilege of guiding people whose hearts are more broken than mine ever was.
leap4artnyc Member
leap4artnyc Member
This is wonderful. I think the people who actually have a disease can give the most. Bravo.