People and Tools That Have Helped Us With Our Advocacy JourneysBehind advocates are people and resources that help them thrive. Family members or friends, apps or tools, each person’s supports are unique. The Social Health Network’s Facebook group recently asked...reactions1comment
Meet the 2023 Social Health Awards FinalistsWe’re excited to announce our 2023 Social Health Awards finalists! It's been an incredible experience for our judges (and our team) to get to know our Health Leaders better through...reactionscomments
Announcing the 2023 Social Health Awards Winners!The Social Health Awards honor and recognize the efforts of patients and caregivers within their communities and at the industry level. Our Health Leaders constantly amaze us through their unique...reactionscomments
My Experience on the Patient Leadership CouncilEditor's note: This article was written by Patient Leader Lisa Marie Basile, who writes and moderates on AxialSpondyloarthritis.net. You can read more of her articles on AxialSpondyloarthritis.net here. You can...reactionscomments
Interview: Hope's Idiopathic Condylar Resorption JourneyRecently we had the pleasure of interviewing Health Leader Hope Tocci, who wanted to share her experience living with Idiopathic Condylar Resorption. You can read her story below. I would...reactions1comment
Community Views: Becoming a Patient LeaderThe journey of advocacy takes many twists and turns. For some, it is easy to get started, while for others it takes time to find a niche. Reaching the point...reactionscomments
Navigating Professional Relationships as a Patient Leader: An Interview With Kathy Reagan YoungWhile she was first focused on patient leadership within the multiple sclerosis (MS) community, Kathy Reagan-Young realized she wanted to elevate her footprint as a Patient Leader and help others...reactions15comments
Let’s Talk Medical Gaslighting: A Panel DiscussionIn this replay session, we aim to not only learn about medical gaslighting but also identify examples in our own lives when we have been gaslighted. We hear from Patient...reactionscomments
Replay: Connexion Opening Session With Health Union's Executive TeamHealth Union hosted their 7th annual Connexion conference for Health Leaders on July 25th and 26th, 2023. Health Leaders from around the world joined virtually and connected, engaged, and learned...reactionscomments
Navigating Copyright as a Patient Leader: An Interview With Gerry LanganBeing a Patient Leader in the chronic, terminal, and rare disease communities is no easy feat. You're constantly balancing managing your health and providing your community content, information, and support...reactions5comments
The Biggest Misunderstandings About Health AdvocacyChoosing to become an advocate means sharing a health journey. To educate others, advocates share personal details about their health. They become vulnerable to help others on similar journeys. Unfortunately...reactionscomments
Impact of Social Health and Community on Living With IllnessSocial health communities positively impact life with illness. Connecting with others and sharing stories is powerful. You share triumphs and challenges. It changes how you feel about your condition. We...reactionscomments
Community Views: How Chronic Pain Affects Patient LeadersGenerally, pain that lasts longer than 3 to 6 months is considered chronic pain. It is pain that stretches beyond the expected timeline for typical healing. Chronic pain is common...reactionscomments
Participatory Medicine and the Patient Leader: An Interview With Danny Sands, MDAs patients and caregivers, we often look to our doctors and other healthcare practitioners for the answers to our health problems. But what if we told you that to manage...reactions3comments
Creating and Managing Your Personal Brand: An Interview With Elle ColeFor well over a decade, Elle Cole has been a distinguished Patient Leader within the sickle cell disease and type 1 diabetes spaces. Through authoring books, blog posts, podcast episodes...reactions2comments
Social Health Awards: The Mutual Value and Impact for Patients and IndustryThe Social Health Awards is the only awards program judged by patients and industry alike that recognizes health leaders for their hard work and dedication to drive meaningful connections and...reactions1comment
REPLAY: How To Use TikTok to Further Your AdvocacyTikTok allows its users to create short videos that are captivating, creative, and authentic. With over 14 million daily users, it has become a rapidly growing space for Patient Leaders...reactionscomments
Expert Perspectives: A Conversation on the Role of Responsible Patient LeadershipHealth Union recently partnered with researchers at the University of Colorado to look at the unique role Patient Leaders play in sharing health-related information with their social media followers. The...reactionscomments
Replay: Unlocking Health Leader OpportunitiesJulie Croner, VP of Community Development, shares exciting new ways for Health Leaders to interact with their community and get paid for their advocacy efforts. Getting involved in those opportunities...reactions1comment
Replay: The Story You Need to Tell Writing WorkshopApril Johnson Stearns, founder and editor-in-chief of WILDFIRE Magazine, led a writing workshop for Social Health Network Health Leaders interested in using their voice to advocate for themselves and others...reactionscomments
