How Does the Autoimmune Registry Help the Autoimmune Disease Community?Living with one or multiple autoimmune diseases can be overwhelming, especially when there are often no answers to questions like why it...reactionscomments
Big Changes are Here for the 2025 Social Health Awards: What You Need to Know!Year after year, the Social Health Awards have proudly honored the incredible work of Health Leaders who uplift, educate, and empower communities...reactions6comments
Announcing the 2023 Social Health Awards Winners!The Social Health Awards honor and recognize the efforts of patients and caregivers within their communities and at the industry level. Our...reactions2comments
Social Media Content Creation OpportunityThe Social Health Network is seeking passionate individuals to share their personal experiences with many chronic and terminal health conditions. This is...reactionscomments
Navigating an Endometrial Cancer Diagnosis: Advice From a PatientIf I could go back to my June 2022 self and tell her what was around the bend: a cancer diagnosis, starting...reactionscomments
3 Strategies To Land Paid Social Media Campaigns as a Patient Leader in 2025In the growing world of patient influencers, landing paid social media campaigns requires more than just a great story — it’s about...reactions1comment
From Lived Experience to Leadership: The Missing Link You Didn’t Know You NeededIf you’ve ever shared your health journey online, spoken up in a support group, or helped someone else feel less alone in...reactions2comments
Creating and Managing Your Personal Brand: An Interview With Elle ColeFor well over a decade, Elle Cole has been a distinguished Patient Leader within the sickle cell disease and type 1 diabetes...reactions2comments
Navigating Professional Relationships as a Patient Leader: An Interview With Kathy Reagan YoungWhile she was first focused on patient leadership within the multiple sclerosis (MS) community, Kathy Reagan-Young realized she wanted to elevate her...reactions16comments
Navigating Copyright as a Patient Leader: An Interview With Gerry LanganBeing a Patient Leader in the chronic, terminal, and rare disease communities is no easy feat. You're constantly balancing managing your health...reactions5comments
10 Insights for Those Living With Chronic Conditions and Their CaregiversAs a passionate advocate for those living with multiple chronic conditions, I've walked alongside numerous individuals facing ongoing health challenges. I've witnessed...reactions5comments
Impact of Social Health and Community on Living With IllnessSocial health communities positively impact life with illness. Connecting with others and sharing stories is powerful. You share triumphs and challenges. It...reactionscomments
Community Views: How Chronic Pain Affects Patient LeadersGenerally, pain that lasts longer than 3 to 6 months is considered chronic pain. It is pain that stretches beyond the expected...reactions1comment
Fibromyalgia & Mental Health: This Didn’t Happen Overnight!If you are a person living with fibromyalgia, it is very likely that you are also affected by mental health. Due to...reactions2comments
Media Representation of Disability and Chronic IllnessLiving with a chronic illness and/or disability can weigh heavily on a person. So when someone with a disability or chronic illness...reactions16comments
Fibromyalgia and Mental Health: The High Cost Survivors of Trauma PayRecently, I compiled a data analysis report. The data was collected through the Fibromyalgia Care Society of America’s (FCSA) application. It was important...reactions2comments
Meet Some of Our 2022 Content Creators!In 2022, the Social Health Network partnered with several incredible patient leaders to create impactful social media campaigns. As part of this...reactionscomments
Being Compensated for Your Advocacy is PossibleHave you heard that you can be compensated for your advocacy work? It is a true statement. It might not happen as...reactions9comments
How I Got a Governor's Proclamation for Disease AwarenessOne of the things I wish that was available when I started my advocacy is that there would exist a handbook that...reactionscomments
