Articles

Editor's note: This article was written by Patient Leader Lisa Marie Basile, who writes and moderates on AxialSpondyloarthritis.net. You can read more of her articles on AxialSpondyloarthritis.net here. You can...

Recently we had the pleasure of interviewing Health Leader Hope Tocci, who wanted to share her experience living with Idiopathic Condylar Resorption. You can read her story below. I would...

The journey of advocacy takes many twists and turns. For some, it is easy to get started, while for others it takes time to find a niche. Reaching the point...

While she was first focused on patient leadership within the multiple sclerosis (MS) community, Kathy Reagan-Young realized she wanted to elevate her footprint as a Patient Leader and help others...

In this replay session, we aim to not only learn about medical gaslighting but also identify examples in our own lives when we have been gaslighted. We hear from Patient...

Health Union hosted their 7th annual Connexion conference for Health Leaders on July 25th and 26th, 2023. Health Leaders from around the world joined virtually and connected, engaged, and learned...

Being a Patient Leader in the chronic, terminal, and rare disease communities is no easy feat. You're constantly balancing managing your health and providing your community content, information, and support...

Choosing to become an advocate means sharing a health journey. To educate others, advocates share personal details about their health. They become vulnerable to help others on similar journeys. Unfortunately...

Social health communities positively impact life with illness. Connecting with others and sharing stories is powerful. You share triumphs and challenges. It changes how you feel about your condition. We...

Generally, pain that lasts longer than 3 to 6 months is considered chronic pain. It is pain that stretches beyond the expected timeline for typical healing. Chronic pain is common...

As patients and caregivers, we often look to our doctors and other healthcare practitioners for the answers to our health problems. But what if we told you that to manage...

For well over a decade, Elle Cole has been a distinguished Patient Leader within the sickle cell disease and type 1 diabetes spaces. Through authoring books, blog posts, podcast episodes...

The Social Health Awards is the only awards program judged by patients and industry alike that recognizes health leaders for their hard work and dedication to drive meaningful connections and...

TikTok allows its users to create short videos that are captivating, creative, and authentic. With over 14 million daily users, it has become a rapidly growing space for Patient Leaders...

Health Union recently partnered with researchers at the University of Colorado to look at the unique role Patient Leaders play in sharing health-related information with their social media followers. The...

Julie Croner, VP of Community Development, shares exciting new ways for Health Leaders to interact with their community and get paid for their advocacy efforts. Getting involved in those opportunities...

April Johnson Stearns, founder and editor-in-chief of WILDFIRE Magazine, led a writing workshop for Social Health Network Health Leaders interested in using their voice to advocate for themselves and others...

As a patient leader, it’s easy to get burned out. And burnout, unidentified and untreated, can become something more severe, like depression. So how do we identify burnout? What can...

Patient advocacy is an extremely important part of changing the landscape for the better for all patients, but it comes with its own set of challenges. Burnout is something that...

The end of the year is often a time for reflection. Many moments make up those 365 days. We asked Patient Leaders to think about the last year. On the...