Advocating for Your Rights in the WorkplaceOftentimes it is scary to let your employer know that you have a chronic illness. It can be a time where you...reactions2comments
Predicting Advocacy Trends for 2025The Social Health Network recently gathered for its final Patient Leadership Council (PLC) meeting of 2024. In this meeting, Health Leaders spanning...reactions2comments
"Alphabet Soup:" Explaining ECP for GVHD of the SkinEditor's note: This article was written by Ronni Gordon and first appeared on Blood-Cancer.com. When I tell people that I had four...reactionscomments
Inspiring Patient Leader Kim Nash on Our PL Certification and How Advocacy Changed Her LifeSince we launched the Patient Leader Certification in 2023, we've had hundreds of Patient Leaders expand their knowledge base with the program...reactionscomments
Taking Colon Cancer Signs SeriouslyColon cancer is rising among young people, yet its symptoms are often overlooked due to age related biases. In 2024, colorectal cancer...reactions1comment
Ten Challenges of Advocating for Chronic Illness on Social MediaAdvocating for chronic illness on social media is no walk in the park. We face a myriad of challenges, from trolls peddling...reactions4comments
The Benefits of a Smaller Social Media FollowingAs an online health advocate for eczema warriors, it has often felt overwhelming for me to navigate the many online social media...reactions3comments
Media Representation of Disability and Chronic IllnessLiving with a chronic illness and/or disability can weigh heavily on a person. So when someone with a disability or chronic illness...reactions16comments
How to Partner With Your Doctor for Better CareDo you have a great relationship with your primary or speciality doctor? When I ask people I know this question, they often...reactions5comments
Laughter as Medicine: Using Humor in Health AdvocacyChronic illness is no laughing matter, but that doesn’t mean we can’t have some laughs when we advocate about it. Our bodies are always...reactions1comment
Burnout is Real: Self-Care Strategies for the Long HaulAnyone else used to be a fiery advocate and now you feel more like a slightly warm teabag? You know those times...reactions4comments
Filtering Personalities and Patient AdvocacyAddressing your advocacy comes with huge responsibilities, especially for those who bring their vocal experiences to a larger public audience. We establish...reactions1comment
What Is Alopecia?Alopecia is the medical term for hair loss. It is a very common condition that affects millions of people worldwide. Hair loss...reactionscomments
Being Compensated for Your Advocacy is PossibleHave you heard that you can be compensated for your advocacy work? It is a true statement. It might not happen as...reactions9comments
Are You Advocating For the Right Reasons?When I first started my psoriasis advocacy, I was on fire to help make any changes that I could. Over 10 years...reactions3comments
Ethics Of Making Money From My Health AdvocacySometimes as an online health advocate I question if it is ethical for me to make money off my online health advocacy...reactions10comments
10 Ways to Successfully Navigate Your Patient Advocacy JourneyEmbarking on a patient advocacy journey is a meaningful and impactful endeavor. However, there are moments when uncertainty creeps in, and you...reactions3comments
Navigating a Colonoscopy: A Step-by-Step ExperienceColorectal cancer is one of the most preventable cancers with proper screening, yet screening rates remain well below a target of 80%...reactionscomments
Cancer Treatment: Immunotherapy Versus ChemotherapyMore people may know of chemotherapy or chemo as a cancer treatment. But immunotherapy is gaining traction, and for good reason. Immunotherapy...reactionscomments
Ethical Dilemmas in Chronic Illness AdvocacyIn my journey as a chronic illness advocate, I frequently encounter ethical dilemmas. These challenges, though complex, are so important to my...reactionscomments
