Navigating Stress, Anxiety, and Depression as Patient AdvocatesAs patient advocates, we dedicate ourselves to supporting others through their healthcare journeys. However, amidst our commitment to others, it's crucial not to neglect our own mental health. Stress, anxiety...reactionscomments
Everything You Need to Know About the Social Health AwardsThe Social Health Awards were created to embody the mission of the Social Health Network: to empower Patient Leaders. Previously known as the WEGO Health Awards, this program has proven...reactions6comments
Choosing The Best Means for Advocacy on Social PlatformsThe hat for advocacy involves various components. Your advocacy can consist of many of possibilities: I’m going to delve in further with the latter as there have been many eyes...reactions2comments
Empowering Parents To Raise Healthy AdvocatesParenting is a challenging responsibility, especially when it comes to raising children who are passionate about their health and the well-being of others. As a mom of twins who watch...reactions4comments
Running an Online Support Group for Those Living With Chronic IllnessLiving with a chronic illness can be a challenging and isolating experience. The physical and emotional toll it takes on individuals often requires a level of understanding and support that...reactions2comments
How to Become a Patient Advocate: Tips for Taking the PlungeStarting anything new can be daunting. One of the most frequent questions I receive from those wanting to break into the patient advocacy space is how to get started, how...reactions3comments
Getting Started on SocialHealthNetwork.comAre you looking to grow your health leadership skills? Perhaps you want an online space where you can share your health journey and connect with other Health Leaders. Or, maybe...reactions1comment
Why I Became an MS AdvocateThe day my doctor told me I had multiple sclerosis, I felt like my life had been ripped apart. I was a bodybuilder, a gym owner, a man who defined...reactions1comment
Balancing Advocacy and Privacy: A Parent's Journey in National Health AdvocacyWhen our daughter was diagnosed with the rare disease known as sickle cell anemia at just a few weeks old, our lives took an unexpected turn. We were faced with...reactions4comments
My Reason for Advocating (and Journaling Prompts To Find Yours)Many of us are Social Health Network advocates here. We advocate for people that suffer from illnesses that we may or may not also suffer from. Sometimes we are patients...reactionscomments
APPLY NOW! HealtheVoices 2024 Conference for AdvocatesHealtheVoices, Johnson & Johnson’s one-of-a-kind leadership program for online health advocates, is now accepting attendee and speaker applications for its annual conference, September 27-29, 2024 in Princeton, New Jersey! Now...reactions1comment
What Health Leaders Are Saying: Benefits of the Patient Leader CertificationHealth Union's Patient Leader Certification is the first of its kind. This program helps sharpen and improve health advocacy skills. Divided into 12 lessons, this program goes at your own...reactionscomments
Using Airport Assistance When TravelingWhen I was first diagnosed with psoriasis and psoriatic arthritis, I could never imagine the journey my condition would open for me. I thought it was a curse and nothing...reactions1comment
Why Patients, Caregivers, Advocates, and Health Leaders Share Our Health JourneysThere are many reasons why patients, caregivers, and advocates share our health journeys. My non-exhaustive list is below.Despite all of these important reasons, one thing we often don’t talk about...reactionscomments
Replay: Minding Your Mental Health as a Content CreatorWatch the video below and join us as we discuss caring for your mental well-being in the digital age, tailored specifically for patient advocates and caregivers. Learn practical strategies and...reactionscomments
How I Made Patient Advocacy and Health Leadership My CareerI decided to turn down my first big girl job a year after college. I have cystic fibrosis (CF), and my life had other plans in store-keeping up, in that...reactions11comments
U.S. Service Dog Law BasicsHave you ever considered getting a service dog to help with your medical condition? Service dogs are dogs that are trained to help their owners with their disability. Disabilities are...reactions2comments
Navigating DM Requests for Money: 3 Thoughtful Responses for AdvocatesIn the digital age, having a following often comes hand in hand with unexpected direct messages asking for financial help. It’s a perplexing yet frequent occurrence—individuals assuming an advocate’s/public figure’s...reactions8comments
Breaking Up Is Hard To Do: When It’s Time To Find a New ProviderYou can start to sense when the relationship has run its course. Maybe clinic appointments are feeling rushed. Maybe you don’t feel heard or understood. Maybe you don’t feel comfortable...reactions1comment
Out of Necessity: Creating Lupus in Color to Help OthersLiving with lupus feels like navigating a complicated maze full of unexpected twists and turns. Lupus, a chronic autoimmune disease, can impact various organs and systems in the body, causing...reactions2comments