Articles

Never in my wildest dreams did I picture myself as a chronic illness advocate. Seriously, if you had told me as a kid that one day I'd be fighting for...

The hat for advocacy involves various components. Your advocacy can consist of many of possibilities: I’m going to delve in further with the latter as there have been many eyes...

Parenting is a challenging responsibility, especially when it comes to raising children who are passionate about their health and the well-being of others. As a mom of twins who watch...

Living with a chronic illness can be a challenging and isolating experience. The physical and emotional toll it takes on individuals often requires a level of understanding and support that...

Starting anything new can be daunting. One of the most frequent questions I receive from those wanting to break into the patient advocacy space is how to get started, how...

Are you looking to grow your health leadership skills? Perhaps you want an online space where you can share your health journey and connect with other Health Leaders. Or, maybe...

The day my doctor told me I had multiple sclerosis, I felt like my life had been ripped apart. I was a bodybuilder, a gym owner, a man who defined...

When our daughter was diagnosed with the rare disease known as sickle cell anemia at just a few weeks old, our lives took an unexpected turn. We were faced with...

HealtheVoices, Johnson & Johnson’s one-of-a-kind leadership program for online health advocates, is now accepting attendee and speaker applications for its annual conference, September 27-29, 2024 in Princeton, New Jersey!  Now...

Health Union's Patient Leader Certification is the first of its kind. This program helps sharpen and improve health advocacy skills. Divided into 12 lessons, this program goes at your own...

When I was first diagnosed with psoriasis, I could never imagine the journey my condition would open for me. I thought it was a curse and nothing good could come...

There are many reasons why patients, caregivers, and advocates share our health journeys. My non-exhaustive list is below.Despite all of these important reasons, one thing we often don’t talk about...

I decided to turn down my first big girl job a year after college. I have cystic fibrosis (CF), and my life had other plans in store-keeping up, in that...

Have you ever considered getting a service dog to help with your medical condition? Service dogs are dogs that are trained to help their owners with their disability. Disabilities are...

In the digital age, having a following often comes hand in hand with unexpected direct messages asking for financial help. It’s a perplexing yet frequent occurrence—individuals assuming an advocate’s/public figure’s...

You can start to sense when the relationship has run its course. Maybe clinic appointments are feeling rushed. Maybe you don’t feel heard or understood. Maybe you don’t feel comfortable...

Living with lupus feels like navigating a complicated maze full of unexpected twists and turns. Lupus, a chronic autoimmune disease, can impact various organs and systems in the body, causing...

In the ever-evolving landscape of healthcare, the concepts of patient-centered care and patient leadership have become increasingly vital in shaping the quality and effectiveness of how medical care is given...

In the realm of patient advocacy, passion and dedication are often the driving forces behind the invaluable support provided to individuals navigating the complex world of healthcare. Often, we advocates...

Patient advocacy doesn’t have to be a one-size-fits-all approach. Art is an underrated form of patient advocacy that can be beneficial, not only for the artist, but also for the...