advocacy

In today's fast-paced healthcare system, people living with chronic illnesses and their loved ones often find themselves navigating a complex maze of...

On June 26, 2024, hundreds of Health Leaders, advocates, speakers, and award nominees gathered together for the 8th annual Connexion conference. It...

We’re excited to announce our 2023 Social Health Awards finalists! It's been an incredible experience for our judges (and our team) to...

We are extremely saddened to say that on August 9, 2024, Ellen Reed passed away. Ellen was a valued member of both...

Editor's note: This article was written by Patient Leader Lisa Marie Basile, who writes and moderates on AxialSpondyloarthritis.net. You can read more...

The Social Health Awards honor and recognize the efforts of patients and caregivers within their communities and at the industry level. Our...

If you’ve ever shared your health journey online, spoken up in a support group, or helped someone else feel less alone in...

For well over a decade, Elle Cole has been a distinguished Patient Leader within the sickle cell disease and type 1 diabetes...

While she was first focused on patient leadership within the multiple sclerosis (MS) community, Kathy Reagan-Young realized she wanted to elevate her...

Social health communities positively impact life with illness. Connecting with others and sharing stories is powerful. You share triumphs and challenges. It...

Generally, pain that lasts longer than 3 to 6 months is considered chronic pain. It is pain that stretches beyond the expected...

If you are a person living with fibromyalgia, it is very likely that you are also affected by mental health. Due to...

Living with a chronic illness and/or disability can weigh heavily on a person. So when someone with a disability or chronic illness...

Recently, I compiled a data analysis report. The data was collected through the Fibromyalgia Care Society of America’s (FCSA) application. It was important...

In 2022, the Social Health Network partnered with several incredible patient leaders to create impactful social media campaigns. As part of this...

Have you heard that you can be compensated for your advocacy work? It is a true statement. It might not happen as...

One of the things I wish that was available when I started my advocacy is that there would exist a handbook that...

It has been ten years since I first started my psoriasis advocacy. I am always eager to be involved in anything that...

I started trying to find my voice after chronic illness turned my life upside down. I had no clue what I was...

In today's digital age, social media has emerged as a powerful tool for patient leaders. It helps to advocate, educate, and connect...