Community Views: How Chronic Pain Affects Patient LeadersGenerally, pain that lasts longer than 3 to 6 months is considered chronic pain. It is pain that stretches beyond the expected...reactions1comment
Fibromyalgia & Mental Health: This Didn’t Happen Overnight!If you are a person living with fibromyalgia, it is very likely that you are also affected by mental health. Due to...reactions2comments
Media Representation of Disability and Chronic IllnessLiving with a chronic illness and/or disability can weigh heavily on a person. So when someone with a disability or chronic illness...reactions16comments
Fibromyalgia and Mental Health: The High Cost Survivors of Trauma PayRecently, I compiled a data analysis report. The data was collected through the Fibromyalgia Care Society of America’s (FCSA) application. It was important...reactions2comments
Meet Some of Our 2022 Content Creators!In 2022, the Social Health Network partnered with several incredible patient leaders to create impactful social media campaigns. As part of this...reactionscomments
Being Compensated for Your Advocacy is PossibleHave you heard that you can be compensated for your advocacy work? It is a true statement. It might not happen as...reactions9comments
How I Got a Governor's Proclamation for Disease AwarenessOne of the things I wish that was available when I started my advocacy is that there would exist a handbook that...reactionscomments
Needing a Break From AdvocacyIt has been ten years since I first started my psoriasis advocacy. I am always eager to be involved in anything that...reactions10comments
The Secret to Building Your Advocacy Social Media BrandI started trying to find my voice after chronic illness turned my life upside down. I had no clue what I was...reactions1comment
Harnessing Social Media for Patient LeadershipIn today's digital age, social media has emerged as a powerful tool for patient leaders. It helps to advocate, educate, and connect...reactions1comment
Connexion 2024 Forums Round-UpConnexion 2024 offered countless takeaways and learnings that can help propel you forward on your journey into health leadership. Here at the...reactionscomments
What’s The Secret to Landing a Social Media Campaign?Through the Social Health Network, you’ll be able to learn a lot about branding yourself as a professional Health Leader. We want...reactions2comments
Replay: Unlocking Health Leader OpportunitiesJulie Croner, VP of Community Development, shares exciting new ways for Health Leaders to interact with their community and get paid for...reactions2comments
How I Made Patient Advocacy and Health Leadership My CareerI decided to turn down my first big girl job a year after college. I have cystic fibrosis (CF), and my life...reactions11comments
The Evolution of Health Advocacy and Health ActivismOver the past decade, the landscape of health advocacy has undergone a remarkable transformation. From the way we perceive healthcare to the...reactionscomments
Expanding Presence, Gaining Visibility, and Advocating For MyselfMany of us in chronic disease communities are well connected on social media and often share our personal experiences with our health...reactions5comments
Getting Used for Clickbait: My Biggest Advocacy Interview MistakeI used to think that all advocacy was good advocacy. I would jump on any opportunity that came my way to collaborate with an organization, providing I had...reactions10comments
2024 Social Health Awards WinnersThe Social Health Awards honor and recognize the efforts of patients and caregivers within their communities and at the industry level. Our...reactions4comments
Spending Time Building Relationships With My Congressional MembersThere is so much I am still learning about being an advocate even though I have been one for ten plus years...reactions3comments
How To Create an Advocacy Poster for a Conference (and Other Conference Tips!)Many patient advocates may have had the pleasure of observing, and in some cases showcasing, an abstract or poster at a conference...reactions8comments
