Choosing The Best Means for Advocacy on Social PlatformsThe hat for advocacy involves various components. Your advocacy can consist of many of possibilities: I’m going to delve in further with the latter as there have been many eyes...reactions2comments
Empowering Parents To Raise Healthy AdvocatesParenting is a challenging responsibility, especially when it comes to raising children who are passionate about their health and the well-being of others. As a mom of twins who watch...reactions4comments
How to Become a Patient Advocate: Tips for Taking the PlungeStarting anything new can be daunting. One of the most frequent questions I receive from those wanting to break into the patient advocacy space is how to get started, how...reactions3comments
A Journey to SelfMy journey started at the age of 14. I was competing competitively for cheerleading and assumed the activities associated were the cause of my swollen feet, drastic weight loss, and...reactions2comments
Why I Became an MS AdvocateThe day my doctor told me I had multiple sclerosis, I felt like my life had been ripped apart. I was a bodybuilder, a gym owner, a man who defined...reactions1comment
My Reason for Advocating (and Journaling Prompts To Find Yours)Many of us are Social Health Network advocates here. We advocate for people that suffer from illnesses that we may or may not also suffer from. Sometimes we are patients...reactionscomments
APPLY NOW! HealtheVoices 2024 Conference for AdvocatesHealtheVoices, Johnson & Johnson’s one-of-a-kind leadership program for online health advocates, is now accepting attendee and speaker applications for its annual conference, September 27-29, 2024 in Princeton, New Jersey! Now...reactions1comment
How I Generate Income as an AdvocateThere are different avenues to generate extra money through patient and healthcare advocacy. Here are some ways I generated income as a patient & advocate. 1) Build relationships with health...reactions11comments
Why Patients, Caregivers, Advocates, and Health Leaders Share Our Health JourneysThere are many reasons why patients, caregivers, and advocates share our health journeys. My non-exhaustive list is below.Despite all of these important reasons, one thing we often don’t talk about...reactionscomments
How I Made Patient Advocacy and Health Leadership My CareerI decided to turn down my first big girl job a year after college. I have cystic fibrosis (CF), and my life had other plans in store-keeping up, in that...reactions11comments
Out of Necessity: Creating Lupus in Color to Help OthersLiving with lupus feels like navigating a complicated maze full of unexpected twists and turns. Lupus, a chronic autoimmune disease, can impact various organs and systems in the body, causing...reactions2comments
How Patient-Centered Care and Patient Advocacy Go Hand-in-HandIn the ever-evolving landscape of healthcare, the concepts of patient-centered care and patient leadership have become increasingly vital in shaping the quality and effectiveness of how medical care is given...reactions1comment
The Art of Getting Paid for Patient Advocacy WorkIn the realm of patient advocacy, passion and dedication are often the driving forces behind the invaluable support provided to individuals navigating the complex world of healthcare. Often, we advocates...reactions2comments
Art As AdvocacyPatient advocacy doesn’t have to be a one-size-fits-all approach. Art is an underrated form of patient advocacy that can be beneficial, not only for the artist, but also for the...reactionscomments
How I Got a Governor's Proclamation for Disease AwarenessOne of the things I wish that was available when I started my advocacy is that there would exist a handbook that gives you insight into what you can do...reactionscomments
Getting to Know Our Social Health Network MembersThe new Social Health Network (SHN) provides space to connect with other Patient Leaders. In August, we posted several prompts to the Social Health Network Facebook page to act as...reactionscomments
Fibromyalgia and Mental Health: The High Cost Survivors of Trauma PayRecently, I compiled a data analysis report. The data was collected through the Fibromyalgia Care Society of America’s (FCSA) application. It was important that I understood the needs of the 351 people waiting for our...reactions2comments
Building Relationships With LegislatorsAs an advocate focused mostly on healthcare policy and legislative advocacy, I am often asked how I connect with, and establish relationships with my legislators. Here are some of my...reactions6comments
Expanding Your Value as a Patient Key Opinion LeaderAs a Patient Leader, you've answered the call to help other patients and caregivers in your community. Day in and day out, you're entrenched in your community's conversation. By sharing...reactions2comments
My Journey in Becoming a Health AdvocateMy journey as a health care advocate started years ago when I became a CNA (Certified Nurses Assistant) I have always enjoyed helping others. As a teenager, I knew when...reactions9comments
