Living With Fibromyalgia and Axial Spondyloarthritis: My StoryAfter many years of trial and error with doctors, my axial spondyloarthritis (AxSpa) was under control with a prescription of biologics and...reactionscomments
What Kind of Social Health Network Advocate Are You?In this day and age, there are so many mediums available for advocacy. Exploring the best options for advocacy is a very...reactions8comments
How My Struggle With Chronic Illness Unexpectedly Turned Into AdvocacyNever in my wildest dreams did I picture myself as a chronic illness advocate. Seriously, if you had told me as a...reactions1comment
Choosing The Best Means for Advocacy on Social PlatformsThe hat for advocacy involves various components. Your advocacy can consist of many of possibilities: I’m going to delve in further with...reactions2comments
Empowering Parents To Raise Healthy AdvocatesParenting is a challenging responsibility, especially when it comes to raising children who are passionate about their health and the well-being of...reactions4comments
How to Become a Patient Advocate: Tips for Taking the PlungeStarting anything new can be daunting. One of the most frequent questions I receive from those wanting to break into the patient...reactions4comments
A Journey to SelfMy journey started at the age of 14. I was competing competitively for cheerleading and assumed the activities associated were the cause...reactions3comments
Why I Became an MS AdvocateThe day my doctor told me I had multiple sclerosis, I felt like my life had been ripped apart. I was a...reactions1comment
My Reason for Advocating (and Journaling Prompts To Find Yours)Many of us are Social Health Network advocates here. We advocate for people that suffer from illnesses that we may or may...reactionscomments
APPLY NOW! HealtheVoices 2024 Conference for AdvocatesHealtheVoices, Johnson & Johnson’s one-of-a-kind leadership program for online health advocates, is now accepting attendee and speaker applications for its annual conference...reactions1comment
How I Generate Income as an AdvocateThere are different avenues to generate extra money through patient and healthcare advocacy. Here are some ways I generated income as a...reactions11comments
Why Patients, Caregivers, Advocates, and Health Leaders Share Our Health JourneysThere are many reasons why patients, caregivers, and advocates share our health journeys. My non-exhaustive list is below.Despite all of these important...reactionscomments
How I Made Patient Advocacy and Health Leadership My CareerI decided to turn down my first big girl job a year after college. I have cystic fibrosis (CF), and my life...reactions11comments
Out of Necessity: Creating Lupus in Color to Help OthersLiving with lupus feels like navigating a complicated maze full of unexpected twists and turns. Lupus, a chronic autoimmune disease, can impact...reactions2comments
How Patient-Centered Care and Patient Advocacy Go Hand-in-HandIn the ever-evolving landscape of healthcare, the concepts of patient-centered care and patient leadership have become increasingly vital in shaping the quality...reactions1comment
The Art of Getting Paid for Patient Advocacy WorkIn the realm of patient advocacy, passion and dedication are often the driving forces behind the invaluable support provided to individuals navigating...reactions2comments
Art as Patient Advocacy: Healing, Expression & Community ConnectionPatient advocacy doesn’t have to be a one-size-fits-all approach. Art is an underrated form of patient advocacy that can be beneficial, not...reactionscomments
How I Got a Governor's Proclamation for Disease AwarenessOne of the things I wish that was available when I started my advocacy is that there would exist a handbook that...reactionscomments
Getting to Know Our Social Health Network MembersThe new Social Health Network (SHN) provides space to connect with other Patient Leaders. In August, we posted several prompts to the...reactionscomments
Fibromyalgia and Mental Health: The High Cost Survivors of Trauma PayRecently, I compiled a data analysis report. The data was collected through the Fibromyalgia Care Society of America’s (FCSA) application. It was important...reactions2comments
