advocacy

Embarking on a patient advocacy journey is a meaningful and impactful endeavor. However, there are moments when uncertainty creeps in, and you...

Twenty years ago, when I was first diagnosed with a lifelong illness, I would never have imagined what that diagnose would mean...

Today, I want to talk about something that has been weighing on my mind lately—a feeling that many of us, especially those...

Advocating for chronic illness on social media is no walk in the park. We face a myriad of challenges, from trolls peddling...

Navigating the world of chronic illness is kind of like trying to solve a Rubik’s Cube, blindfolded, and with one hand tied...

TikTok allows its users to create short videos that are captivating, creative, and authentic. With over 14 million daily users, it has...

Patient advocacy doesn’t have to be a one-size-fits-all approach. Art is an underrated form of patient advocacy that can be beneficial, not...

Patient advocacy can take many forms. Some examples are writing your senators in favor of research funding, leading a support group, or...

As a Social Health Network and patient advocate, it is entirely possible that you will have the opportunity to attend a conference...

Living with a chronic illness comes along with a few facts of life - the first is that our experience of our...

As a health advocate, your journey and experiences can hold tremendous value for not only yourself, but also for the broader community...

Starting anything new can be daunting. One of the most frequent questions I receive from those wanting to break into the patient...

The journey to begin advocacy can feel overwhelming. Many questions arise. How do I start? What do I say? Does anyone want...

In the realm of patient advocacy, passion and dedication are often the driving forces behind the invaluable support provided to individuals navigating...

So much of how we advocate involves storytelling and creating content that leaves a lasting impression. It can be overwhelming to know...

In today's fast-paced healthcare system, people living with chronic illnesses and their loved ones often find themselves navigating a complex maze of...

On June 26, 2024, hundreds of Health Leaders, advocates, speakers, and award nominees gathered together for the 8th annual Connexion conference. It...

We’re excited to announce our 2023 Social Health Awards finalists! It's been an incredible experience for our judges (and our team) to...

We are extremely saddened to say that on August 9, 2024, Ellen Reed passed away. Ellen was a valued member of both...

Editor's note: This article was written by Patient Leader Lisa Marie Basile, who writes and moderates on AxialSpondyloarthritis.net. You can read more...