Art as Patient Advocacy: Healing, Expression & Community ConnectionPatient advocacy doesn’t have to be a one-size-fits-all approach. Art is an underrated form of patient advocacy that can be beneficial, not...reactionscomments
How To Use Social Media as a Patient LeaderPatient advocacy can take many forms. Some examples are writing your senators in favor of research funding, leading a support group, or...reactions2comments
Tips for Your First Conference: Based on My First ExperienceAs a Social Health Network and patient advocate, it is entirely possible that you will have the opportunity to attend a conference...reactions5comments
Importance of Patient PerspectivesLiving with a chronic illness comes along with a few facts of life - the first is that our experience of our...reactionscomments
Sharing Your Story as a Health Advocate: Promotes Research, Understanding, and CommunityAs a health advocate, your journey and experiences can hold tremendous value for not only yourself, but also for the broader community...reactionscomments
How to Become a Patient Advocate: Tips for Taking the PlungeStarting anything new can be daunting. One of the most frequent questions I receive from those wanting to break into the patient...reactions3comments
Advice for Getting Started in AdvocacyThe journey to begin advocacy can feel overwhelming. Many questions arise. How do I start? What do I say? Does anyone want...reactionscomments
The Art of Getting Paid for Patient Advocacy WorkIn the realm of patient advocacy, passion and dedication are often the driving forces behind the invaluable support provided to individuals navigating...reactions2comments
Advocating Like a Journalist: Tips for Sharing Newsworthy ContentSo much of how we advocate involves storytelling and creating content that leaves a lasting impression. It can be overwhelming to know...reactions2comments
How to Avoid Advocacy FatigueIn today's fast-paced healthcare system, people living with chronic illnesses and their loved ones often find themselves navigating a complex maze of...reactions5comments
Connexion 2024 Highlights and ReplaysOn June 26, 2024, hundreds of Health Leaders, advocates, speakers, and award nominees gathered together for the 8th annual Connexion conference. It...reactionscomments
Meet the 2023 Social Health Awards FinalistsWe’re excited to announce our 2023 Social Health Awards finalists! It's been an incredible experience for our judges (and our team) to...reactionscomments
Remembering Ellen ReedWe are extremely saddened to say that on August 9, 2024, Ellen Reed passed away. Ellen was a valued member of both...reactions1comment
My Experience on the Patient Leadership CouncilEditor's note: This article was written by Patient Leader Lisa Marie Basile, who writes and moderates on AxialSpondyloarthritis.net. You can read more...reactionscomments
Ready To Help Crown the 2025 Social Health Awards Winners? Sign Up To Be a JudgeThis is set to be our most empowering awards season yet, and we need your unique insight to help us celebrate truly...reactionscomments
Announcing the 2023 Social Health Awards Winners!The Social Health Awards honor and recognize the efforts of patients and caregivers within their communities and at the industry level. Our...reactions2comments
From Lived Experience to Leadership: The Missing Link You Didn’t Know You NeededIf you’ve ever shared your health journey online, spoken up in a support group, or helped someone else feel less alone in...reactions2comments
Creating and Managing Your Personal Brand: An Interview With Elle ColeFor well over a decade, Elle Cole has been a distinguished Patient Leader within the sickle cell disease and type 1 diabetes...reactions2comments
Navigating Professional Relationships as a Patient Leader: An Interview With Kathy Reagan YoungWhile she was first focused on patient leadership within the multiple sclerosis (MS) community, Kathy Reagan-Young realized she wanted to elevate her...reactions16comments
Impact of Social Health and Community on Living With IllnessSocial health communities positively impact life with illness. Connecting with others and sharing stories is powerful. You share triumphs and challenges. It...reactionscomments