Advocacy Isn’t a Competition: The Power of Quality Over QuantityIn the world of chronic illness advocacy, it’s easy to feel the pressure to keep up with others who seem to post...reactionscomments
Community Views: Most Rewarding Advocacy ExperienceBeing a health advocate is such a powerful experience for a variety of reasons. To learn more about the ways this role...reactionscomments
When There’s More Than Meets the Eye: Coping With an Invisible IllnessIt can feel like a blessing and a curse at the same time. Being diagnosed with a chronic illness for which there...reactions1comment
My Journey into Chronic Illness Advocacy and Tips for New AdvocatesNever in my wildest dreams did I picture myself as a chronic illness advocate. Seriously, if you had told me as a...reactions1comment
Compliance is Not a Choice: What Every Health Leader Must Know About RegulationsYou've built a thriving online community. You share your health journey, your clinical expertise, and your insights with an audience that trusts...reactions6comments
10 Ways to Successfully Navigate Your Patient Advocacy JourneyEmbarking on a patient advocacy journey is a meaningful and impactful endeavor. However, there are moments when uncertainty creeps in, and you...reactions3comments
How I Became a Patient AdvocateTwenty years ago, when I was first diagnosed with a lifelong illness, I would never have imagined what that diagnose would mean...reactions2comments
Dealing With Imposter Syndrome as a Chronic Illness AdvocateToday, I want to talk about something that has been weighing on my mind lately—a feeling that many of us, especially those...reactions9comments
Ten Challenges of Advocating for Chronic Illness on Social MediaAdvocating for chronic illness on social media is no walk in the park. We face a myriad of challenges, from trolls peddling...reactions4comments
How I Carved Out My Niche in the World of Chronic Illness AdvocacyNavigating the world of chronic illness is kind of like trying to solve a Rubik’s Cube, blindfolded, and with one hand tied...reactions10comments
REPLAY: How To Use TikTok to Further Your AdvocacyTikTok allows its users to create short videos that are captivating, creative, and authentic. With over 14 million daily users, it has...reactions4comments
Art as Patient Advocacy: Healing, Expression & Community ConnectionPatient advocacy doesn’t have to be a one-size-fits-all approach. Art is an underrated form of patient advocacy that can be beneficial, not...reactionscomments
How To Use Social Media as a Patient LeaderPatient advocacy can take many forms. Some examples are writing your senators in favor of research funding, leading a support group, or...reactions2comments
Tips for Your First Conference: Based on My First ExperienceAs a Social Health Network and patient advocate, it is entirely possible that you will have the opportunity to attend a conference...reactions5comments
Importance of Patient PerspectivesLiving with a chronic illness comes along with a few facts of life - the first is that our experience of our...reactionscomments
Sharing Your Story as a Health Advocate: Promotes Research, Understanding, and CommunityAs a health advocate, your journey and experiences can hold tremendous value for not only yourself, but also for the broader community...reactionscomments
How to Become a Patient Advocate: Tips for Taking the PlungeStarting anything new can be daunting. One of the most frequent questions I receive from those wanting to break into the patient...reactions3comments
Advice for Getting Started in AdvocacyThe journey to begin advocacy can feel overwhelming. Many questions arise. How do I start? What do I say? Does anyone want...reactionscomments
The Art of Getting Paid for Patient Advocacy WorkIn the realm of patient advocacy, passion and dedication are often the driving forces behind the invaluable support provided to individuals navigating...reactions2comments
Advocating Like a Journalist: Tips for Sharing Newsworthy ContentSo much of how we advocate involves storytelling and creating content that leaves a lasting impression. It can be overwhelming to know...reactions2comments
