Welcome! We’re so glad to have you here! 😊
You’re joining a community with the most inspiring people you’ll ever meet!
Take a moment to introduce yourself!
Where are you from?
What do you advocate for?
Is there anything else you want to share about yourself or your health journey?
I'm Collins Isaac,a cataract and diabetes advocate.
It is great to meet everyone as this platform has become helpful in navigating IBD specifically Crohn’s for me, but this has become a familiar place that is supportive and encouraging with the information provided by others who also fight hard! Every day is a challenge to so many of us, however, my hope is that one day with funding for research IBD will be that of the past. I reside outside of Houston Texas and there was an in-person group that met monthly prior to 2020 but has since dissolved. I have been working on gaining folks in all aspects of their own care to caring for others because not one journey is the same - just the IBD name. I advocate for people with intellectual and developmental disabilities on the local and state level however more so the local level. It's been a journey to gain perspectives from others as their support provides lighting purple much brighter. Well, that is all for now.
Hey Everyone! It's Me Jed! (But you already knew that)
Im excited for this new revamped community by the Social Health Network.
If you don't know me (or didn't know me before)
I'm currently in St Louis, Mo and I am a patient leader and advocate for Ankylosing Spondylitis (AS) and/or Axial-Spondyloarthritis (AxSpA). If you have no idea what that is, feel free to reach out and learn a bit more. If you are an AS/AxSpA patient and you need advice, I am always here to help.
Together we are stronger!
Thank you for taking the time to share such warm & supportive sentiments! Wishing you a good day!