Introduce Yourself!
Welcome! We’re so glad to have you here! 😊
You’re joining a community with the most inspiring people you’ll ever meet!
Take a moment to introduce yourself!
Where are you from?
What do you advocate for?
What condition do you live with?
Is there anything else you want to share about yourself or your health journey?
I’m Hollie Amadio, 35, from Maryland.
I live with Multiple Sclerosis, and a rare disease called Hereditary Angioedema.
My journey hasn’t been ideal. It’s been messy and tough—but it’s also made me fierce.
I advocate for chronic illness and rare disease communities, focusing on healthcare access, patient rights, and legislative change.
Hello, I am Jamie. I was diagnosed with ATS Hypo Periodic Paralysis as well as a few other rare diseases. I am passionate to spread awareness about little known diseases, and I am appreiative to be here. Thank you all.
Hi Everyone. My name is Alan and I'm from Boise Idaho. I'm answering this because of my rheumatoid arthritis, chronic pain, atrial fibrillation, type 2 diabetes, and severe osteoarthritis diagnoses.
Hi everyone! My name is Andrea but I go by Ann or Annie. I was diagnosed with Ms in 2009 after a few years of going to different doctors and them explaining to me how I needed to be on some type of antidepressant. Fast forward a few more years. POMS
, welcome, Annie! We're glad you're here! That's incredibly frustrating! Did they give you any treatment for the MS? Hopefully, your current healthcare team is more in tune with your needs. - Warmly, Donna (Team Member)
