Research ParticipationHi there! I am a PhD candidate at Queen’s University in the Department of Sociology. This message is to see if you...reactions1replyDigital CreationSocial Media
Rare Disease DayRare Disease day is 2/28. Let me know what you may do to acknowledge the day. It could be anything. Maybe you...reactionsrepliesDiagnosisEducationAdvocacy
FeaturedHave you started or completed our free Patient Leader Certification Program?Have you taken or started our Patient Leader Certification program? If so, share with us... What did you enjoy most about the...reactions113repliesAdvocacyCertification
What are you favorite conferences to attend?Share any conferences that you love going to--whether they're about advocacy, your specific condition, or something else!...reactions12repliesAdvocacyHealth Leadership
Introduce Yourself! Welcome! We’re so glad to have you here! 😊 You’re joining a community with the most inspiring people you’ll ever meet! Take...reactions42repliesCommunity
How to Start The ConversationHow do I approach apparently payment for an interview? Should I assume but how do I ask without offending anyone?"...reactions2repliesAdvocacySocial Media
What service would be helpful in your advocacy?We have exciting news! We're doing a giveaway, and we want it to be something helpful for your advocacy journey. Is there...reactions5replies
Conference Season TipsI just registered for my first conference since beginning my advocacy efforts. I had a few volunteer speaking engagements. My first paid...reactions4repliesAdvocacy
Minding Your Mental Health as a Content CreatorDuring our live event on March 21st, we discussed caring for your mental well-being in the digital age, specifically for patient advocates...reactions2repliesDigital CreationMental HealthSocial Media
Have you ever, or do you want to, publish a book about your story?Share your journey to getting a book published about your health advocacy below. Let us know if you have any tips or...reactions73repliesAwarenessAdvocacyTips & Advice