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Invisible Disabilities Awareness Week

▪️In the U.S., Invisible Disabilities Awareness Week is October 20th – 26th, 2024. ▪️I live with Fibromyalgia, Ankylosing Spondylitis, Arthritis, Migraine Disorder, Degenerative Disc Disease, Irritable Bowel Syndrome, Anxiety, Ehlers...

Are you passionate about sharing your journey with chronic pain conditions?

Do you want to inspire others and spread awareness about living with illness? We want to hear from you! Become a guest on Butterfly Chats Podcast and share your story...

Disease Specific Medical Conferences

Hello fellow advocates!! I was wondering how many of you attend conferences related to your specific diseases? We want to be the best patient leader that we can. I think...

Business or Advocacy

On your public advocacy journey have you found it challenging moving towards the business elements? For many being a patient advocate is about sharing our voice and stories, but in...

Type 1 Diabetic Miss Arizona

Hi there! I am the current National American Miss Arizona (2023-2024) and am a type 1 diabetic. It’s been an awesome journey breaking stereotypes for those of us with chronic...

Health involves all aspects of life, but programs are confined and don't cross communicate

I am so tired. I have had to learn so much of the policy in every single program I have needed to apply to. I feel overwhelmed and have developed...

What's Your Talent???

What talents or skills sets, that may not be typical for advocacy, do you use as part of your awareness, support and advocacy projects? As for me, I am a...

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