How I Maintain My Mental Health While Advocating OnlineAdvocating for chronic illness awareness online can be both rewarding and challenging. It’s a role that demands a lot from us emotionally...reactionscomments
How to Get Paid for Your Patient Advocacy WorkTime and time again, we hear the question, “How much should I charge for my patient advocacy expertise?” It’s an ongoing and...reactions14comments
Night Sweats and Insomnia Are a NightmareEditor's note: This article was originally written by Amy Pilkington and published on our partner site SleepDisorders.net.I have a preferred temperature range...reactions4comments
Overcoming Menopause in My 30sEditor's Note: This article was written by ShaRhonda Wise and originally published on our partner site, AdvancedOvarianCancer.net.Menopause was the furthest thing from...reactionscomments
My 2 Year Post-Hysterectomy AnniversaryEditor's note: This article was written by Shireen Hand and originally published on our partner site, Endometriosis.net.2 years ago, I went through...reactions1comment
Cooler Nights, Menopause, and InsomniaEditor's note: This article was originally written by Amy Pilkington and published on our partner site SleepDisorders.net.Let me start by saying that...reactionscomments
Is It Perimenopause Or Just My Endometriosis?Editor's note: This article was written by Jessa F. and originally published on our partner site, Endometriosis.net.As an endometriosis patient, I have...reactions1comment
Navigating Privacy With AlopeciaWhen I was first approached about writing articles about my alopecia journey, my first question was “Can I write under a pseudonym?"...reactionscomments
Chutes and LaddersEditor's Note: This article was written by Elle C. and originally appeared on Blood-Cancer.com. Two months before my stem cell transplant, I...reactionscomments
Now for Something Different: GVHD of the FingernailEditor's note: This article was written by Ronni Gordon and first appeared on Blood-Cancer.com. Since the days when I started out as...reactionscomments
After Leukemia, Dealing With Skin CancerEditor's note: This article was written by Ronni Gordon and first appeared on Blood-Cancer.com. Heading to my checkup the other day at...reactionscomments
Surprised by a Nightmare About GVHD of the SkinEditor's note: This article was written by Ronni Gordon and first appeared on Blood-Cancer.com. Blood cancer survivors: Have you ever had a...reactionscomments
The "Good" CancerEditor's note: This article was written by Tyler Goodwin and originally appeared on Blood-Cancer.com. I have heard some people say non-Hodgkins follicular...reactionscomments
"Alphabet Soup:" Explaining ECP for GVHD of the SkinEditor's note: This article was written by Ronni Gordon and first appeared on Blood-Cancer.com. When I tell people that I had four...reactionscomments
More Than Hair Loss: Navigating the Mental and Physical Journey of AlopeciaWhen I was a senior in high school in 2011, I first noticed a small round bald patch on the crown of...reactionscomments
My Hair Loss and Diagnosis JourneyAlopecia did NOT enter my life quietly. It arrived with handfuls of shed hair, thinning patches, bath water covered in a film...reactionscomments
My Journey With Central Centrifugal Cicatricial AlopeciaI am a short (5’0”) girl from South Carolina that has always had a lot of personality, and my hair was truly...reactionscomments
Losing My Hair: I Am Not Okay!How long can I pretend? It is okay to not be okay. For so long I have been a strong daughter, sister...reactionscomments
Breaking Up Is Hard To Do: When It’s Time To Find a New ProviderYou can start to sense when the relationship has run its course. Maybe clinic appointments are feeling rushed. Maybe you don’t feel...reactions1comment
Navigating an Endometrial Cancer Diagnosis: Advice From a PatientIf I could go back to my June 2022 self and tell her what was around the bend: a cancer diagnosis, starting...reactionscomments