living

This month, we are thrilled to be offering a signed book giveaway, featuring one of the Social Health Network's very own Health Leaders! Three lucky winners will receive a signed...

I now find myself in Hospice Teams diligently assessing each organ system during their weekly visits. Particularly, the scientific data remains of interest. Is there an advance of the disease?...

Editor's note: Read Ellen's first article titled "It Isn't Over Until It's Over: Deciding to Stop Chemotherapy" here. An early memory: At three years old, nine of our family members...

As patient advocates, we dedicate ourselves to supporting others through their healthcare journeys. However, amidst our commitment to others, it's crucial not to neglect our own mental health. Stress, anxiety...

When I was first diagnosed with psoriasis, I could never imagine the journey my condition would open for me. I thought it was a curse and nothing good could come...

Have you ever considered getting a service dog to help with your medical condition? Service dogs are dogs that are trained to help their owners with their disability. Disabilities are...

You can start to sense when the relationship has run its course. Maybe clinic appointments are feeling rushed. Maybe you don’t feel heard or understood. Maybe you don’t feel comfortable...

The In America survey is now closed. To learn more about the challenges of living with chronic, rare, and terminal health conditions, we are conducting our In America survey. By...

I have been living with chronic illnesses for over 20 years. I was diagnosed with lupus and rheumatoid arthritis (RA) in the prime of my life. As a black woman...

Time and time again, we hear the question, “How much should I charge for my patient advocacy expertise?” It’s an ongoing and worthy debate for patient advocates in the health...

Being a Patient Leader in the chronic, terminal, and rare disease communities is no easy feat. You're constantly balancing managing your health and providing your community content, information, and support...

As patients and caregivers, we often look to our doctors and other healthcare practitioners for the answers to our health problems. But what if we told you that to manage...

April Johnson Stearns, founder and editor-in-chief of WILDFIRE Magazine, led a writing workshop for Social Health Network Health Leaders interested in using their voice to advocate for themselves and others...