Navigating Copyright as a Patient Leader: An Interview With Gerry LanganBeing a Patient Leader in the chronic, terminal, and rare disease communities is no easy feat. You're constantly balancing managing your health...reactions5comments
Using Airport Assistance When TravelingWhen I was first diagnosed with psoriasis and psoriatic arthritis, I could never imagine the journey my condition would open for me...reactions1comment
Participatory Medicine and the Patient Leader: An Interview With Danny Sands, MDAs patients and caregivers, we often look to our doctors and other healthcare practitioners for the answers to our health problems. But...reactions3comments
The Difficult Journey of Endometrial Cancer TreatmentIt was during the Thanksgiving holiday in 2018 when I answered the phone. It was my oncologist. He told me my blood...reactions1comment
The Emotional Side of Managing Endometrial CancerAs Mariah Carey once sang, “you’ve got me feeling emotions, deeper than I’ve ever dreamed of.” She was singing about a romantic...reactionscomments
My Diagnosis Story: Randalynn VaselEditor's note: This article was written by Randalynn Vasel and originally appeared on our partner site AdvancedOvarianCancer.net. January 19, 2017...it was the...reactionscomments
Enter Our Giveaway: Medical Gaslighting Signed Book (*Giveaway Closed)**Please Note: This Giveaway is Now Closed** This month, we are thrilled to be offering a signed book giveaway, featuring one of...reactions1comment
End of Life Care and Wrapping Up Unfinished BusinessI now find myself in Hospice Teams diligently assessing each organ system during their weekly visits. Particularly, the scientific data remains of...reactions2comments
Getting Comfortable Speaking About End of Life Care and DeathEditor's note: Read Ellen's first article titled "It Isn't Over Until It's Over: Deciding to Stop Chemotherapy" here. An early memory: At...reactions2comments
Navigating Stress, Anxiety, and Depression as Patient AdvocatesAs patient advocates, we dedicate ourselves to supporting others through their healthcare journeys. However, amidst our commitment to others, it's crucial not...reactionscomments
U.S. Service Dog Law BasicsHave you ever considered getting a service dog to help with your medical condition? Service dogs are dogs that are trained to...reactions2comments
Living With Chronic Illness as a Black Woman: A Personal StoryI have been living with chronic illnesses for over 20 years. I was diagnosed with lupus and rheumatoid arthritis (RA) in the...reactions6comments
Replay: The Story You Need to Tell Writing WorkshopApril Johnson Stearns, founder and editor-in-chief of WILDFIRE Magazine, led a writing workshop for Social Health Network Health Leaders interested in using...reactionscomments
