Advocacy: My WhyEditor's Note: This article was written by Julie Salazar and originally appeared on our partner site AdvancedOvarianCancer.net. From a young age, my...reactionscomments
Getting Comfortable Speaking About End of Life Care and DeathEditor's note: Read Ellen's first article titled "It Isn't Over Until It's Over: Deciding to Stop Chemotherapy" here. An early memory: At...reactions2comments
Navigating Stress, Anxiety, and Depression as Patient AdvocatesAs patient advocates, we dedicate ourselves to supporting others through their healthcare journeys. However, amidst our commitment to others, it's crucial not...reactionscomments
Using Airport Assistance When TravelingWhen I was first diagnosed with psoriasis and psoriatic arthritis, I could never imagine the journey my condition would open for me...reactions1comment
U.S. Service Dog Law BasicsHave you ever considered getting a service dog to help with your medical condition? Service dogs are dogs that are trained to...reactions2comments
Breaking Up Is Hard To Do: When It’s Time To Find a New ProviderYou can start to sense when the relationship has run its course. Maybe clinic appointments are feeling rushed. Maybe you don’t feel...reactions1comment
The Emotional Side of Managing Endometrial CancerAs Mariah Carey once sang, “you’ve got me feeling emotions, deeper than I’ve ever dreamed of.” She was singing about a romantic...reactionscomments
The Difficult Journey of Endometrial Cancer TreatmentIt was during the Thanksgiving holiday in 2018 when I answered the phone. It was my oncologist. He told me my blood...reactions1comment
Navigating an Endometrial Cancer Diagnosis: Advice From a PatientIf I could go back to my June 2022 self and tell her what was around the bend: a cancer diagnosis, starting...reactionscomments
Living With Chronic Illness as a Black Woman: A Personal StoryI have been living with chronic illnesses for over 20 years. I was diagnosed with lupus and rheumatoid arthritis (RA) in the...reactions6comments
What to Know About Health Leader CompensationTime and time again, we hear the question, “How much should I charge for my patient advocacy expertise?” It’s an ongoing and...reactions14comments
Navigating Copyright as a Patient Leader: An Interview With Gerry LanganBeing a Patient Leader in the chronic, terminal, and rare disease communities is no easy feat. You're constantly balancing managing your health...reactions5comments
Participatory Medicine and the Patient Leader: An Interview With Danny Sands, MDAs patients and caregivers, we often look to our doctors and other healthcare practitioners for the answers to our health problems. But...reactions3comments
Replay: The Story You Need to Tell Writing WorkshopApril Johnson Stearns, founder and editor-in-chief of WILDFIRE Magazine, led a writing workshop for Social Health Network Health Leaders interested in using...reactionscomments
