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Legislative/Healthcare Policy Advocacy

Are you involved in health policy advocacy or looking to get started? Join in on the conversation & share your experiences! - How did you get started? - What tips/advice...

Talking To Young Spoonies

If you were diagnosed with a chronic illness when you were young, or you currently work with young spoonies, I would love everyone to share your tips and experiences on...

Featured

Have you experienced imposter syndrome?

Do you become overwhelmed in speaking heavily on a subject and then wonder how effective you are in sharing, and whether you are qualified to advocate at all on the...

Health involves all aspects of life, but programs are confined and don't cross communicate

I am so tired. I have had to learn so much of the policy in every single program I have needed to apply to. I feel overwhelmed and have developed...

All The Single Spoonies... All The Single Spoonies... All The Single Spoonies... Put Your Hands Up....

As we move out of the month of January into the month of February, we are bombarded with messages of Valentine's Day being "The Day Of Love" and celebrating couples...

How To Advocate For Your Healthcare

At one point or another, we learn often through trial and error, how to advocate for our healthcare needs... Let's share our insights on improving our skills sets and knowledge...

Do the holidays impact you?

Navigating the holidays can be challenging when living with a chronic or terminal condition. Do they impact you emotionally and/or physically? Do you typically get extra questions about your health...

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