Change of FriendsHave you found that your work in advocacy has changed the dynamics of your friend circle? How accurate is the saying that quality vs quantity of friendships is key, especially...Reactions0reactionsComments17 repliesCopingFriends & FamilyIntimacy & Relationships
On the Road to Remissionhttps://www.amazon.com/dp/B08QRB3H3G...Reactions0reactionsComments2 repliesAwareness
Have you ever, or do you want to, publish a book about your story?Share your journey to getting a book published about your health advocacy below. Let us know if you have any tips or tricks for those who want to get started...Reactions0reactionsComments5 repliesAwarenessAdvocacyTips & Advice
I didn't even know how to pronounce Sarcoidosis I'm 48 years old I was diagnosed with a rare disease called Sarcoidosis in 2010. I told my dr u have what I knew nothing about it it can attack...Reactions0reactionsComments1 replies
Do You Deal With Imposter Syndrome? Let's talk!Hello everyone. There was recently a topic posted by Admin about dealing with Imposter Syndrome. It hit home. It's not something I freely talk about with others in real life...Reactions0reactionsComments4 replies
FeaturedChronically Ill and Alone: Do You Have Fears of Being Sick and Single?One topic of discussion that isn't often broached often are our feelings and fears of being single and chronically ill. Many of us are not married nor have a significant...Reactions0reactionsComments16 repliesCommunityCoping
FeaturedWhat type of advocacy are you currently involved in or hoping to be?Our community would love to learn & hear more about your advocacy efforts. Join in on the conversation! What type of advocacy are you currently involved in or hoping to...Reactions0reactionsComments24 repliesCommunityAdvocacy
Busting the Myths: What Patient Advocacy Really MeansA common misconception surrounding patient advocacy and patient - centered care is that it solely involves speaking on behalf of patients who may feel powerless or unable to voice their...Reactions0reactionsComments3 repliesAdvocacy
Coping with a New Diagnosis and Managing Side EffectsHere's a structure to guide the discussion: Introductory Post: "I was recently diagnosed with [OCD]. I'm still learning about the condition, and I'm feeling overwhelmed by the side effects of...Reactions0reactionsComments3 repliesNewly DiagnosedSide Effects
Advocacy CliquesThis may be a touchy subject but here it goes. Have you ever experiences advocacy cliques during your advocacy of your specific chronic illness? You know the ones that only...Reactions0reactionsComments0 repliesSocial Health