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If you could tell your younger self one piece of advice, what would it be?

Whether it be related to your advocacy, health, relationships, personal matters, etc, we all know that hindsight is 20/20, so what is the one piece of advice that you would...

Disease Specific Medical Conferences

Hello fellow advocates!! I was wondering how many of you attend conferences related to your specific diseases? We want to be the best patient leader that we can. I think...

Business or Advocacy

On your public advocacy journey have you found it challenging moving towards the business elements? For many being a patient advocate is about sharing our voice and stories, but in...

Talking To Young Spoonies

If you were diagnosed with a chronic illness when you were young, or you currently work with young spoonies, I would love everyone to share your tips and experiences on...

Type 1 Diabetic Miss Arizona

Hi there! I am the current National American Miss Arizona (2023-2024) and am a type 1 diabetic. It’s been an awesome journey breaking stereotypes for those of us with chronic...

Health involves all aspects of life, but programs are confined and don't cross communicate

I am so tired. I have had to learn so much of the policy in every single program I have needed to apply to. I feel overwhelmed and have developed...

What's Your Talent???

What talents or skills sets, that may not be typical for advocacy, do you use as part of your awareness, support and advocacy projects? As for me, I am a...

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