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Active 3 days ago

What are you most proud of?

Within your personal life, health journey, or advocacy work, what are you most proud of, or what accomplishment fills you with the most pride?...

FeaturedActive 3 days ago

Patient & Caregiver Advocate Bulletin Board

* Are you looking for other Patient Advocates to help with a project? * Want to share information about an upcoming event? * Working on an exciting project that you'd...

FeaturedActive 6 days ago

Tis the season for conferences!

The season is upon us! Let's share & talk about all things CONFERENCES! - Which have you attended, or are you planning to attend? - We'd LOVE for you to...

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Chronically Ill and Alone: Do You Have Fears of Being Sick and Single?

One topic of discussion that isn't often broached often are our feelings and fears of being single and chronically ill. Many of us are not married nor have a significant...

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What type of advocacy are you currently involved in or hoping to be?

Our community would love to learn & hear more about your advocacy efforts. Join in on the conversation! What type of advocacy are you currently involved in or hoping to...

Who to contact about a study opportunity

First off, I am apologizing in advance...I should totally know this, but was diagnosed with MS in April, and my brain is still broken. I was approached by a company...

Disease Specific Medical Conferences

Hello fellow advocates!! I was wondering how many of you attend conferences related to your specific diseases? We want to be the best patient leader that we can. I think...

Connect with people who are like me

I am a consumer with a intellectual disability and spinal cord injury I like to connect with people who are like me and participate in online meetings and outings and...

Introduce Yourself!

Welcome! We’re so glad to have you here! 😊 You’re joining a community with the most inspiring people you’ll ever meet! Take a moment to introduce yourself! Where are you...

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What have you found helpful in getting started sharing your health advocacy journey?

If you are an experienced health leader and advocate, what advice or tips can you give to someone looking to get started in health advocacy?...

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