Yolanda Brunson-Sarrabo...Yolanda was a member of our Patient Leadership Council in 2024 and submitted content for us throughout the year. Yolanda is founder of Spitfir Productions brand development catering small businesses...
David Lyons...David was a member of our Patient Leadership Council in 2024 and submitted content for us throughout the year. David Lyons was diagnosed with multiple sclerosis (MS) in 2006 at...
U.S. Service Dog Law Basics...Have you ever considered getting a service dog to help with your medical condition? Service dogs are dogs that are trained to help their owners with their disability. Disabilities are...reactions2comments
Navigating DM Requests for Money: 3 Thoughtful Responses for Advocates...In the digital age, having a following often comes hand in hand with unexpected direct messages asking for financial help. It’s a perplexing yet frequent occurrence—individuals assuming an advocate’s/public figure’s...reactions8comments
FeaturedChronically Ill and Alone: Do You Have Fears of Being Sick and Single?...One topic of discussion that isn't often broached often are our feelings and fears of being single and chronically ill. Many of us are not married nor have a significant...reactions17repliesCommunityCoping
Breaking Up Is Hard To Do: When It’s Time To Find a New Provider...You can start to sense when the relationship has run its course. Maybe clinic appointments are feeling rushed. Maybe you don’t feel heard or understood. Maybe you don’t feel comfortable...reactions1comment
Heal Yourself...I was raised by a Nurse in the medical model and went on to become a nurse myself. I believed that when we are sick, we need a doctor and...reactions4comments
Out of Necessity: Creating Lupus in Color to Help Others...Living with lupus feels like navigating a complicated maze full of unexpected twists and turns. Lupus, a chronic autoimmune disease, can impact various organs and systems in the body, causing...reactions2comments
How Patient-Centered Care and Patient Advocacy Go Hand-in-Hand...In the ever-evolving landscape of healthcare, the concepts of patient-centered care and patient leadership have become increasingly vital in shaping the quality and effectiveness of how medical care is given...reactions1comment
FeaturedAre you prepared if something were to happen to you?...Health & Wellness Beyond the Doctor End-of-Life care can be difficult to discuss. Have you talked with your family and caretakers to discuss palliative care? Have you spoken with your...reactions8repliesInsurance & DisabilityCaregiving
The Art of Getting Paid for Patient Advocacy Work...In the realm of patient advocacy, passion and dedication are often the driving forces behind the invaluable support provided to individuals navigating the complex world of healthcare. Often, we advocates...reactions2comments
Art As Advocacy...Patient advocacy doesn’t have to be a one-size-fits-all approach. Art is an underrated form of patient advocacy that can be beneficial, not only for the artist, but also for the...reactionscomments
All The Single Spoonies... All The Single Spoonies... All The Single Spoonies... Put Your Hands Up.... ...As we move out of the month of January into the month of February, we are bombarded with messages of Valentine's Day being "The Day Of Love" and celebrating couples...reactions2repliesTips & AdviceFriends & FamilyIntimacy & Relationships
How I Got a Governor's Proclamation for Disease Awareness...One of the things I wish that was available when I started my advocacy is that there would exist a handbook that gives you insight into what you can do...reactionscomments
Getting to Know Our Social Health Network Members...The new Social Health Network (SHN) provides space to connect with other Patient Leaders. In August, we posted several prompts to the Social Health Network Facebook page to act as...reactionscomments
How To Advocate For Your Healthcare...At one point or another, we learn often through trial and error, how to advocate for our healthcare needs... Let's share our insights on improving our skills sets and knowledge...reactions2repliesNewly DiagnosedTips & AdviceAdvocacy
How do you manage your professional life while dealing with a chronic condition?...How have you managed your professional life while dealing with a chronic illness or being a caregiver of someone with a chronic illness?...reactions2repliesCoping
Breaking Silos......FOOD FOR THOUGHT: We often talk about "breaking the silo" within our own communities, but how often are we breaking silos, to collaborate with Patient Leaders in other spaces other...reactions2repliesCommunity
10 Insights for Those Living With Chronic Conditions and Their Caregivers...As a passionate advocate for those living with multiple chronic conditions, I've walked alongside numerous individuals facing ongoing health challenges. I've witnessed firsthand the difficult nuances of the healthcare journey...reactions5comments
What tips do you have for others that have helped you decrease your stress?...Have you discovered any strategies for managing stress or improving your overall well-being?...reactions5repliesCoping
