What's Your Talent???...What talents or skills sets, that may not be typical for advocacy, do you use as part of your awareness, support and advocacy projects? As for me, I am a...reactions4repliesCommunityAdvocacyAwareness
Minding Your Mental Health as a Content Creator...During our live event on March 21st, we discussed caring for your mental well-being in the digital age, specifically for patient advocates and caregivers. Panelists Ilana Jacqueline and Jessica Lipkin...reactions2repliesDigital CreationMental HealthSocial Media
What Health Leaders Are Saying: Benefits of the Patient Leader Certification...Health Union's Patient Leader Certification is the first of its kind. This program helps sharpen and improve health advocacy skills. Divided into 12 lessons, this program goes at your own...reactions4comments
Using Airport Assistance When Traveling...When I was first diagnosed with psoriasis and psoriatic arthritis, I could never imagine the journey my condition would open for me. I thought it was a curse and nothing...reactions1comment
How I Generate Income as an Advocate...There are different avenues to generate extra money through patient and healthcare advocacy. Here are some ways I generated income as a patient & advocate. 1) Build relationships with health...reactions11comments
Shoshana Lipson...Shoshana was a member of our Patient Leadership Council in 2024 and submitted content for us throughout the year. Shoshana Lipson is a patient advocate and the founder of the...
Why Patients, Caregivers, Advocates, and Health Leaders Share Our Health Journeys...There are many reasons why patients, caregivers, and advocates share our health journeys. My non-exhaustive list is below.Despite all of these important reasons, one thing we often don’t talk about...reactionscomments
Life Modifications...I have had to make some modifications to fit advocacy in my schedule. I have had to rely heavily on time management and proper planning to be able to fit...reactions2repliesAdvocacy
Daniel Garza...Daniel was a member of our Patient Leadership Council in 2024 and submitted content for us throughout the year. Daniel G Garza has been a Patient Leader for over 20...
Please Stand By, I Am Having Technical Difficulties.......Living my life with fibromyalgia and brain fog… Chronic fatigue and chronic pain is a constant companion of mine but rarely do I complain. I’m simply used to it. However...reactions8comments
Kristine Hoestermann...Kristine was a member of our Patient Leadership Council in 2024 and submitted content for us throughout the year. Kristine Hoestermann is a rare disease patient living with OCD and...
Replay: Minding Your Mental Health as a Content Creator...Watch the video below and join us as we discuss caring for your mental well-being in the digital age, tailored specifically for patient advocates and caregivers. Learn practical strategies and...reactionscomments
FeaturedHave you ever considered getting or do you have a service, working, therapy, or emotional support animal to help with your medical condition?...Share a picture of your furry-loved companion (does not have to be for your medical condition)! We'd love to see them! If you have a service, working, therapy, or emotional...reactions195repliesCopingTips & AdviceAwareness
Moving beyond issues...How do you stay motivated to move beyond the issues of your chronic condition? What keeps you pushing through?...reactions1replyCoping
Is Advocacy Your Side Gig or Career?...I have found such a great way to make a little change from speaking and writing about my health condition. At first, I felt bad making money off of my...reactions60repliesAdvocacy
Will you take our In America survey and help others understand the impact of living with chronic and terminal health conditions? ...To learn more about the challenges of living with chronic and terminal health conditions, we are conducting our In America survey. By taking our survey, you can bring awareness to...reactions3replies
How I Made Patient Advocacy and Health Leadership My Career...I decided to turn down my first big girl job a year after college. I have cystic fibrosis (CF), and my life had other plans in store-keeping up, in that...reactions11comments
Amy Russell-Parliman...Amy was a member of our Patient Leadership Council in 2024 and submitted content for us throughout the year. Amy Ellen Parliman lives life by faith and enjoys spreading kindness...
Cynthia Covert...Cynthia was a member of our Patient Leadership Council in 2024 and submitted content for us throughout the year. Cynthia Covert was diagnosed with Psoriatic Arthritis in 2003. She founded...
Jed Finley...Jed was a member of our Patient Leadership Council in 2024 and submitted content for us throughout the year. Jed Finley was diagnosed with ankylosing spondylitis at the age of...
