Running an Online Support Group for Those Living With Chronic Illness...Living with a chronic illness can be a challenging and isolating experience. The physical and emotional toll it takes on individuals often requires a level of understanding and support that...reactions2comments
How to Become a Patient Advocate: Tips for Taking the Plunge...Starting anything new can be daunting. One of the most frequent questions I receive from those wanting to break into the patient advocacy space is how to get started, how...reactions3comments
FeaturedHave you been part of a support group?...Have you ever started a support group? If you have not started one yourself but are part of one, what have you enjoyed most about it? Is yours virtual or...reactions17replies
Health involves all aspects of life, but programs are confined and don't cross communicate...I am so tired. I have had to learn so much of the policy in every single program I have needed to apply to. I feel overwhelmed and have developed...reactionsrepliesAwarenessAdvocacyTips & Advice
What Is Your Awareness Day?...I try my best to support other patients, by promoting awareness on social media, on their designated awareness day. What is the medical condition you promote awareness/support and advocate for?...reactions1reply
Barking Mad, My Recovery Story...Im an 86 year old woman who had to retire as a speech language pathologist ten years ago due to encroaching dementia symptoms. Four years later I was in a...reactions3comments
Acceptance...After diagnosis with parkinsons I was frightened and confused. I wanted to learn as much as possible but took on too much. By limiting my research to reliable sites and...reactions2comments
A Journey to Self...My journey started at the age of 14. I was competing competitively for cheerleading and assumed the activities associated were the cause of my swollen feet, drastic weight loss, and...reactions2comments
Getting Started on SocialHealthNetwork.com...Are you looking to grow your health leadership skills? Perhaps you want an online space where you can share your health journey and connect with other Health Leaders. Or, maybe...reactions1comment
FeaturedHave you experienced imposter syndrome?...Do you become overwhelmed in speaking heavily on a subject and then wonder how effective you are in sharing, and whether you are qualified to advocate at all on the...reactions18repliesAdvocacyCommunityTips & Advice
Why I Became an MS Advocate...The day my doctor told me I had multiple sclerosis, I felt like my life had been ripped apart. I was a bodybuilder, a gym owner, a man who defined...reactions1comment
Active 3 days agoHow do I get more involved with conferences and speaking? ...How do I get more involved with conferences and speaking I spoke at the Crohn’s and colitis foundation fall symposium and part of there task force and a member of...reactions8repliesAdvocacyAwarenessHealthcare Collaboration
Balancing Advocacy and Privacy: A Parent's Journey in National Health Advocacy...When our daughter was diagnosed with the rare disease known as sickle cell anemia at just a few weeks old, our lives took an unexpected turn. We were faced with...reactions4comments
Forgiveness...Being an advocate can be super stressful. Sometimes we blame ourselves for things we have no control over. We become our own worst critic. Today my journal prompt had me...reactions10repliesCoping
Love and Resilience: My Journey With HIV...Growing up in the quiet town of Kasangati, Uganda, life was a mix of joys and sorrows. Losing my parents to illness at a young age left me adrift, grappling...reactions1comment
My Reason for Advocating (and Journaling Prompts To Find Yours)...Many of us are Social Health Network advocates here. We advocate for people that suffer from illnesses that we may or may not also suffer from. Sometimes we are patients...reactionscomments
APPLY NOW! HealtheVoices 2024 Conference for Advocates...HealtheVoices, Johnson & Johnson’s one-of-a-kind leadership program for online health advocates, is now accepting attendee and speaker applications for its annual conference, September 27-29, 2024 in Princeton, New Jersey! Now...reactions1comment
What's Your Talent???...What talents or skills sets, that may not be typical for advocacy, do you use as part of your awareness, support and advocacy projects? As for me, I am a...reactions4repliesCommunityAdvocacyAwareness
Minding Your Mental Health as a Content Creator...During our live event on March 21st, we discussed caring for your mental well-being in the digital age, specifically for patient advocates and caregivers. Panelists Ilana Jacqueline and Jessica Lipkin...reactions2repliesDigital CreationMental HealthSocial Media
