Spending Time Building Relationships With My Congressional Members...There is so much I am still learning about being an advocate even though I have been one for ten plus years. My first trip to D.C. to meet with...reactions3comments
FeaturedActive 3 days agoPatient & Caregiver Advocate Bulletin Board...* Are you looking for other Patient Advocates to help with a project? * Want to share information about an upcoming event? * Working on an exciting project that you'd...reactions16repliesCommunityAdvocacy
The Power of a Growth Mindset in Your Health Leadership Journey...The concept of a growth mindset has gained traction in recent years. Coined by psychologist Carol Dweck, a “growth mindset” refers to the belief that a person’s abilities and intelligence...reactions2comments
It Isn't Over Until It's Over: Deciding to Stop Chemotherapy...Before all else, this article begins with a sincere statement of gratitude. To my delight, Social Health Network is again giving me a platform to share my voice. As you...reactionscomments
Business or Advocacy...On your public advocacy journey have you found it challenging moving towards the business elements? For many being a patient advocate is about sharing our voice and stories, but in...reactionsrepliesTips & AdviceAdvocacyAwareness
What to Expect From Connexion 2024...The Social Health Network is super excited to announce our 8th Connexion! Connexion is a unique conference that focuses on advancing advocacy efforts and bringing together hundreds of Health Leaders...reactionscomments
FeaturedWhat have you found helpful in getting started sharing your health advocacy journey?...If you are an experienced health leader and advocate, what advice or tips can you give to someone looking to get started in health advocacy?...reactions8repliesAdvocacyCommunity
Lessons Learned From Starting an Awareness Brand & Finding Your Unique Voice in Advocacy...My health journey began like any other - I was a healthy, active, young adult with big dreams and ambitions for my future. That all changed when I started experiencing...reactionscomments
Living With Fibromyalgia and Axial Spondyloarthritis: My Story...After many years of trial and error with doctors, my axial spondyloarthritis (AxSpa) was under control with a prescription of biologics and physiotherapy. On paper I should have been sorted...reactionscomments
What Kind of Social Health Network Advocate Are You?...In this day and age, there are so many mediums available for advocacy. Exploring the best options for advocacy is a very personal process. The best kind of advocacy is...reactions8comments
Navigating Stress, Anxiety, and Depression as Patient Advocates...As patient advocates, we dedicate ourselves to supporting others through their healthcare journeys. However, amidst our commitment to others, it's crucial not to neglect our own mental health. Stress, anxiety...reactionscomments
About Zipper...Well, a long time ago in a faraway place I used to wrestle and play football. I got a ride to MIT and decided I wanted to be a car...reactions2comments
Are you passionate about sharing your journey with chronic pain conditions?...Do you want to inspire others and spread awareness about living with illness? We want to hear from you! Become a guest on Butterfly Chats Podcast and share your story...reactions9repliesCopingAwareness
Everything You Need to Know About the Social Health Awards...The Social Health Awards were created to embody the mission of the Social Health Network: to empower Patient Leaders. Previously known as the WEGO Health Awards, this program has proven...reactions6comments
Within your advocacy, what term(s) resonate with you most?...How do you typically refer to your community leadership, and/or what terms resonate with you most? Health Advoacay? Patient Advocate? Patient/Caregiver Health Leadership? Patient/Caregiver Activist? Other?...reactions36repliesAdvocacy
How My Struggle With Chronic Illness Unexpectedly Turned Into Advocacy...Never in my wildest dreams did I picture myself as a chronic illness advocate. Seriously, if you had told me as a kid that one day I'd be fighting for...reactions1comment
Choosing The Best Means for Advocacy on Social Platforms...The hat for advocacy involves various components. Your advocacy can consist of many of possibilities: I’m going to delve in further with the latter as there have been many eyes...reactions2comments
Empowering Parents To Raise Healthy Advocates...Parenting is a challenging responsibility, especially when it comes to raising children who are passionate about their health and the well-being of others. As a mom of twins who watch...reactions4comments
Ellen Reed...We are extremely saddened to say that on August 9, 2024, Ellen Reed passed away. Ellen was a valued member of the SocialHealthNetwork.com community and an incredible advocate and avid...
Multiple Health Issues...Hi! I am Cindy, from Richmond, Vermont. I have a number of health issues - Rheumatoid Arthritis, Lung Cancer and Heart Attack survivor, sleep apnea, high blood pressure, and high...reactions2repliesAdvocacyHealthcare CollaborationInsurance & Disability
