In America: What’s That?To learn more about the challenges of living with chronic, rare, and terminal health conditions, we are conducting our In America survey...reactionscomments
Replay: Connexion Advocacy Crafting Session With Carolyn RotellaHealthcare advocacy as a Health Leader is deeply meaningful work--it can also quickly lead to burnout. Crafting effective health advocacy strategies requires...reactionscomments
How To Use Social Media as a Patient LeaderPatient advocacy can take many forms. Some examples are writing your senators in favor of research funding, leading a support group, or...reactions2comments
Replay: Connexion Patient Leader Certification LaunchThe Health Union Patient Leader Certification Program offers a comprehensive toolkit for Patient Leaders seeking to elevate their impact in the healthcare...reactionscomments
Webinar Replay: Navigating the Holidays While Living With a Terminal or Chronic ConditionWith the arrival of cold weather, the onset of darkness, and the start of the busy holiday season, a sense of vulnerability...reactionscomments
Importance of Patient PerspectivesLiving with a chronic illness comes along with a few facts of life - the first is that our experience of our...reactionscomments
What’s The Secret to Landing a Social Media Campaign?Through the Social Health Network, you’ll be able to learn a lot about branding yourself as a professional Health Leader. We want...reactions2comments
Living With Chronic Illness as a Black Woman: A Personal StoryI have been living with chronic illnesses for over 20 years. I was diagnosed with lupus and rheumatoid arthritis (RA) in the...reactions6comments
How I Became a Patient AdvocateTwenty years ago, when I was first diagnosed with a lifelong illness, I would never have imagined what that diagnose would mean...reactions2comments
Advocating Like a Journalist: Tips for Sharing Newsworthy ContentSo much of how we advocate involves storytelling and creating content that leaves a lasting impression. It can be overwhelming to know...reactions2comments
Getting Involved in Health Policy AdvocacyGetting to know your local senators and representatives and getting involved in health policy advocacy is a great way to make a...reactionscomments
The Cycle of Patient and Health AdvocacyAt the Social Health Network, our job is to help support you as you grow from a patient or caregiver to a...reactionscomments
What to Know About Health Leader CompensationTime and time again, we hear the question, “How much should I charge for my patient advocacy expertise?” It’s an ongoing and...reactions14comments
Fibromyalgia & Mental Health: This Didn’t Happen Overnight!If you are a person living with fibromyalgia, it is very likely that you are also affected by mental health. Due to...reactions2comments
Expanding Presence, Gaining Visibility, and Advocating For MyselfMany of us in chronic disease communities are well connected on social media and often share our personal experiences with our health...reactions2comments
When You Can't Be Physically There to AdvocateI came into the Patient Leadership Council as a contributing author and moderator for BladderCancer.net. I was honored to be my Mom's...reactions4comments
An Interview With Kelly Cervantes, Author of Normal Broken: The Grief Companion...Kelly Cervantes is an award-winning writer, speaker, and advocate. We had the privilege of interviewing her in light of her upcoming book:...reactions1comment
Meeting a New Doctor, Again? 3 Simple Steps to PrepareWhen you’re a seasoned patient, it can feel like a drag to meet a new doctor for the umpteenth time. But for...reactionscomments
Advice for Getting Started in AdvocacyThe journey to begin advocacy can feel overwhelming. Many questions arise. How do I start? What do I say? Does anyone want...reactionscomments
What Does Advocacy Burnout Look Like for You?Burnout can be defined as a state of prolonged physical or mental stress. Its symptoms can include exhaustion, depression, anxiety, lack of...reactions2comments
