How Patient-Centered Care and Patient Advocacy Go Hand-in-HandIn the ever-evolving landscape of healthcare, the concepts of patient-centered care and patient leadership have become increasingly vital in shaping the quality...reactions1comment
The Art of Getting Paid for Patient Advocacy WorkIn the realm of patient advocacy, passion and dedication are often the driving forces behind the invaluable support provided to individuals navigating...reactions2comments
Art as Patient Advocacy: Healing, Expression & Community ConnectionPatient advocacy doesn’t have to be a one-size-fits-all approach. Art is an underrated form of patient advocacy that can be beneficial, not...reactionscomments
How I Got a Governor's Proclamation for Disease AwarenessOne of the things I wish that was available when I started my advocacy is that there would exist a handbook that...reactionscomments
Getting to Know Our Social Health Network MembersThe new Social Health Network (SHN) provides space to connect with other Patient Leaders. In August, we posted several prompts to the...reactionscomments
10 Insights for Those Living With Chronic Conditions and Their CaregiversAs a passionate advocate for those living with multiple chronic conditions, I've walked alongside numerous individuals facing ongoing health challenges. I've witnessed...reactions5comments
Fibromyalgia and Mental Health: The High Cost Survivors of Trauma PayRecently, I compiled a data analysis report. The data was collected through the Fibromyalgia Care Society of America’s (FCSA) application. It was important...reactions2comments
Building Relationships With LegislatorsAs an advocate focused mostly on healthcare policy and legislative advocacy, I am often asked how I connect with, and establish relationships...reactions6comments
Expanding Your Value as a Patient Key Opinion LeaderAs a Patient Leader, you've answered the call to help other patients and caregivers in your community. Day in and day out...reactions2comments
The Emotional Side of Managing Endometrial CancerAs Mariah Carey once sang, “you’ve got me feeling emotions, deeper than I’ve ever dreamed of.” She was singing about a romantic...reactionscomments
The Difficult Journey of Endometrial Cancer TreatmentIt was during the Thanksgiving holiday in 2018 when I answered the phone. It was my oncologist. He told me my blood...reactions1comment
Navigating an Endometrial Cancer Diagnosis: Advice From a PatientIf I could go back to my June 2022 self and tell her what was around the bend: a cancer diagnosis, starting...reactionscomments
My Journey in Becoming a Health AdvocateMy journey as a health care advocate started years ago when I became a CNA (Certified Nurses Assistant) I have always enjoyed...reactions9comments
Replay: Connexion Advocacy Crafting Session With Carolyn RotellaHealthcare advocacy as a Health Leader is deeply meaningful work--it can also quickly lead to burnout. Crafting effective health advocacy strategies requires...reactionscomments
How To Use Social Media as a Patient LeaderPatient advocacy can take many forms. Some examples are writing your senators in favor of research funding, leading a support group, or...reactions2comments
Replay: Connexion Patient Leader Certification LaunchThe Health Union Patient Leader Certification Program offers a comprehensive toolkit for Patient Leaders seeking to elevate their impact in the healthcare...reactionscomments
Webinar Replay: Navigating the Holidays While Living With a Terminal or Chronic ConditionWith the arrival of cold weather, the onset of darkness, and the start of the busy holiday season, a sense of vulnerability...reactionscomments
Importance of Patient PerspectivesLiving with a chronic illness comes along with a few facts of life - the first is that our experience of our...reactionscomments
What’s The Secret to Landing a Social Media Campaign?Through the Social Health Network, you’ll be able to learn a lot about branding yourself as a professional Health Leader. We want...reactions2comments
Living With Chronic Illness as a Black Woman: A Personal StoryI have been living with chronic illnesses for over 20 years. I was diagnosed with lupus and rheumatoid arthritis (RA) in the...reactions6comments
