Predicting Advocacy Trends for 2025The Social Health Network recently gathered for its final Patient Leadership Council (PLC) meeting of 2024. In this meeting, Health Leaders spanning...reactions2comments
The Benefits of a Smaller Social Media FollowingAs an online health advocate for eczema warriors, it has often felt overwhelming for me to navigate the many online social media...reactions3comments
Enter Our Giveaway: Medical Gaslighting Signed Book (*Giveaway Closed)**Please Note: This Giveaway is Now Closed** This month, we are thrilled to be offering a signed book giveaway, featuring one of...reactions1comment
Burnout is Real: Self-Care Strategies for the Long HaulAnyone else used to be a fiery advocate and now you feel more like a slightly warm teabag? You know those times...reactions6comments
Filtering Personalities and Patient AdvocacyAddressing your advocacy comes with huge responsibilities, especially for those who bring their vocal experiences to a larger public audience. We establish...reactions1comment
Are You Advocating For the Right Reasons?When I first started my psoriasis advocacy, I was on fire to help make any changes that I could. Over 10 years...reactions3comments
Ethics Of Making Money From My Health AdvocacySometimes as an online health advocate I question if it is ethical for me to make money off my online health advocacy...reactions10comments
Ethical Dilemmas in Chronic Illness AdvocacyIn my journey as a chronic illness advocate, I frequently encounter ethical dilemmas. These challenges, though complex, are so important to my...reactionscomments
3 Practical Ways for Health Advocates to Safeguard Peace and Mental Health OnlineLiving with a chronic or terminal illness, or navigating a health journey, can be a formidable and isolating experience. Many people today...reactions13comments
Advocating for Psoriasis Awareness in Washington, D.C.I have been a psoriasis advocate for over ten years now. It started when I joined the National Psoriasis Foundation (NPF). One...reactionscomments
The Importance of Prioritizing Conferences as a Health AdvocateAs an advocate, author, and speaker, I can attest to the profound impact of conferences on my caregiver journey and how visiting...reactionscomments
The Cycle of Patient and Health AdvocacyAt the Social Health Network, our job is to help support you as you grow from a patient or caregiver to a...reactionscomments
Forgiving My Limitations as an Online Health AdvocateThis blog is inspired by a forum question by fellow SHN writer, Raquel Dozier, on the topic of forgiveness and forgiving ourselves...reactions8comments
Replay: Connexion Advocacy Crafting Session With Carolyn RotellaHealthcare advocacy as a Health Leader is deeply meaningful work--it can also quickly lead to burnout. Crafting effective health advocacy strategies requires...reactionscomments
Our Health Leaders' Proudest Moments From 2022The end of the year is often a time for reflection. Many moments make up those 365 days. We asked Patient Leaders...reactionscomments
Connexion Replay: A Look At Health LeadershipHealth Leaders wear many hats. Some lead support groups, some advocate for their loved ones at the doctor's office, some work with...reactionscomments
Getting to Know Our Social Health Network MembersThe new Social Health Network (SHN) provides space to connect with other Patient Leaders. In August, we posted several prompts to the...reactionscomments
End of Life Care and Wrapping Up Unfinished BusinessI now find myself in Hospice Teams diligently assessing each organ system during their weekly visits. Particularly, the scientific data remains of...reactions2comments
Getting Comfortable Speaking About End of Life Care and DeathEditor's note: Read Ellen's first article titled "It Isn't Over Until It's Over: Deciding to Stop Chemotherapy" here. An early memory: At...reactions2comments
The Value of Health Advocates Collaborating With Nonprofits and BusinessesI am a health advocate, and I strongly believe in the power of collaboration to drive positive change in the healthcare industry...reactions4comments
