5 Reasons to Consider the Health Union Patient Leader Certification ProgramIn the realm of healthcare advocacy and patient empowerment, the role of Patient Leaders has gained significant importance. Patient Leaders play a...reactions11comments
Community Views: Most Rewarding Advocacy ExperienceBeing a health advocate is such a powerful experience for a variety of reasons. To learn more about the ways this role...reactionscomments
A How-To Guide for Self-Advocacy: Why Patient Advocacy is ImportantAfter the initial shock of a chronic or terminal illness diagnosis, questions arise. What does this mean? How do I manage the...reactions2comments
Connexion Replay: A Look At Health LeadershipHealth Leaders wear many hats. Some lead support groups, some advocate for their loved ones at the doctor's office, some work with...reactionscomments
REPLAY: How to Advocate for a Terminal Condition PanelWe were joined by panelists Olivia Salvo, Sarita Edwards, and Abigail Johnston as they discussed the differences, challenges, and opportunities they encountered...reactionscomments
People and Tools That Have Helped Us With Our Advocacy JourneysBehind advocates are people and resources that help them thrive. Family members or friends, apps or tools, each person’s supports are unique...reactions1comment
Meet the 2023 Social Health Awards FinalistsWe’re excited to announce our 2023 Social Health Awards finalists! It's been an incredible experience for our judges (and our team) to...reactionscomments
Announcing the 2023 Social Health Awards Winners!The Social Health Awards honor and recognize the efforts of patients and caregivers within their communities and at the industry level. Our...reactionscomments
My Experience on the Patient Leadership CouncilEditor's note: This article was written by Patient Leader Lisa Marie Basile, who writes and moderates on AxialSpondyloarthritis.net. You can read more...reactionscomments
Interview: Hope's Idiopathic Condylar Resorption JourneyRecently we had the pleasure of interviewing Health Leader Hope Tocci, who wanted to share her experience living with Idiopathic Condylar Resorption...reactions1comment
Community Views: Becoming a Patient LeaderThe journey of advocacy takes many twists and turns. For some, it is easy to get started, while for others it takes...reactionscomments
Navigating Professional Relationships as a Patient Leader: An Interview With Kathy Reagan YoungWhile she was first focused on patient leadership within the multiple sclerosis (MS) community, Kathy Reagan-Young realized she wanted to elevate her...reactions16comments
Let’s Talk Medical Gaslighting: A Panel DiscussionIn this replay session, we aim to not only learn about medical gaslighting but also identify examples in our own lives when...reactionscomments
Replay: Connexion Opening Session With Health Union's Executive TeamHealth Union hosted their 7th annual Connexion conference for Health Leaders on July 25th and 26th, 2023. Health Leaders from around the...reactionscomments
Navigating Copyright as a Patient Leader: An Interview With Gerry LanganBeing a Patient Leader in the chronic, terminal, and rare disease communities is no easy feat. You're constantly balancing managing your health...reactions5comments
The Biggest Misunderstandings About Health AdvocacyChoosing to become an advocate means sharing a health journey. To educate others, advocates share personal details about their health. They become...reactionscomments
Impact of Social Health and Community on Living With IllnessSocial health communities positively impact life with illness. Connecting with others and sharing stories is powerful. You share triumphs and challenges. It...reactionscomments
Community Views: How Chronic Pain Affects Patient LeadersGenerally, pain that lasts longer than 3 to 6 months is considered chronic pain. It is pain that stretches beyond the expected...reactionscomments
Participatory Medicine and the Patient Leader: An Interview With Danny Sands, MDAs patients and caregivers, we often look to our doctors and other healthcare practitioners for the answers to our health problems. But...reactions3comments
Creating and Managing Your Personal Brand: An Interview With Elle ColeFor well over a decade, Elle Cole has been a distinguished Patient Leader within the sickle cell disease and type 1 diabetes...reactions2comments
