Why Patients, Caregivers, Advocates, and Health Leaders Share Our Health JourneysThere are many reasons why patients, caregivers, and advocates share our health journeys. My non-exhaustive list is below.Despite all of these important...reactionscomments
REPLAY: How to Advocate for a Terminal Condition PanelWe were joined by panelists Olivia Salvo, Sarita Edwards, and Abigail Johnston as they discussed the differences, challenges, and opportunities they encountered...reactionscomments
What Does Advocacy Burnout Look Like for You?Burnout can be defined as a state of prolonged physical or mental stress. Its symptoms can include exhaustion, depression, anxiety, lack of...reactions2comments
Watch Now: How to Identify, Prevent, and Treat BurnoutAs a patient leader, it’s easy to get burned out. And burnout, unidentified and untreated, can become something more severe, like depression...reactionscomments
Living With Chronic Illness as a Black Woman: A Personal StoryI have been living with chronic illnesses for over 20 years. I was diagnosed with lupus and rheumatoid arthritis (RA) in the...reactions6comments
Navigating DM Requests for Money: 3 Thoughtful Responses for AdvocatesIn the digital age, having a following often comes hand in hand with unexpected direct messages asking for financial help. It’s a...reactions8comments
Replay: Connexion Patient Leader Certification LaunchThe Health Union Patient Leader Certification Program offers a comprehensive toolkit for Patient Leaders seeking to elevate their impact in the healthcare...reactionscomments
Expanding Your Value as a Patient Key Opinion LeaderAs a Patient Leader, you've answered the call to help other patients and caregivers in your community. Day in and day out...reactions2comments
Meeting a New Doctor, Again? 3 Simple Steps to PrepareWhen you’re a seasoned patient, it can feel like a drag to meet a new doctor for the umpteenth time. But for...reactionscomments
An Interview With Kelly Cervantes, Author of Normal Broken: The Grief Companion...Kelly Cervantes is an award-winning writer, speaker, and advocate. We had the privilege of interviewing her in light of her upcoming book:...reactions1comment
Expert Perspectives: A Conversation on the Role of Responsible Patient LeadershipHealth Union recently partnered with researchers at the University of Colorado to look at the unique role Patient Leaders play in sharing...reactions1comment
Replay: Connexion Opening Session With Health Union's Executive TeamHealth Union hosted their 7th annual Connexion conference for Health Leaders on July 25th and 26th, 2023. Health Leaders from around the...reactionscomments
REPLAY: Caregiver PanelIn honor of National Family Caregivers Month in November, the Social Health Network hosted a panel to hear from community members Richard...reactions1comment
Patient Leadership Council: 2023 GoalsEach year, we have our Social Health Award winners join a small group of carefully selected Health Leaders to give feedback on...reactionscomments
Community Views: Becoming a Patient LeaderThe journey of advocacy takes many twists and turns. For some, it is easy to get started, while for others it takes...reactionscomments
Replay: The Story You Need to Tell Writing WorkshopApril Johnson Stearns, founder and editor-in-chief of WILDFIRE Magazine, led a writing workshop for Social Health Network Health Leaders interested in using...reactionscomments
Let’s Talk Medical Gaslighting: A Panel DiscussionIn this replay session, we aim to not only learn about medical gaslighting but also identify examples in our own lives when...reactionscomments
