What to Know About Health Leader CompensationTime and time again, we hear the question, “How much should I charge for my patient advocacy expertise?” It’s an ongoing and...reactions14comments
Fibromyalgia & Mental Health: This Didn’t Happen Overnight!If you are a person living with fibromyalgia, it is very likely that you are also affected by mental health. Due to...reactions2comments
Expanding Presence, Gaining Visibility, and Advocating For MyselfMany of us in chronic disease communities are well connected on social media and often share our personal experiences with our health...reactions5comments
When You Can't Be Physically There to AdvocateI came into the Patient Leadership Council as a contributing author and moderator for BladderCancer.net. I was honored to be my Mom's...reactions4comments
An Interview With Kelly Cervantes, Author of Normal Broken: The Grief Companion...Kelly Cervantes is an award-winning writer, speaker, and advocate. We had the privilege of interviewing her in light of her upcoming book:...reactions1comment
Meeting a New Doctor, Again? 3 Simple Steps to PrepareWhen you’re a seasoned patient, it can feel like a drag to meet a new doctor for the umpteenth time. But for...reactionscomments
Advice for Getting Started in AdvocacyThe journey to begin advocacy can feel overwhelming. Many questions arise. How do I start? What do I say? Does anyone want...reactionscomments
What Does Advocacy Burnout Look Like for You?Burnout can be defined as a state of prolonged physical or mental stress. Its symptoms can include exhaustion, depression, anxiety, lack of...reactions2comments
5 Reasons to Consider the Health Union Patient Leader Certification ProgramIn the realm of healthcare advocacy and patient empowerment, the role of Patient Leaders has gained significant importance. Patient Leaders play a...reactions11comments
Community Views: Most Rewarding Advocacy ExperienceBeing a health advocate is such a powerful experience for a variety of reasons. To learn more about the ways this role...reactionscomments
A How-To Guide for Self-Advocacy: Why Patient Advocacy is ImportantAfter the initial shock of a chronic or terminal illness diagnosis, questions arise. What does this mean? How do I manage the...reactions2comments
Connexion Replay: A Look At Health LeadershipHealth Leaders wear many hats. Some lead support groups, some advocate for their loved ones at the doctor's office, some work with...reactionscomments
REPLAY: How to Advocate for a Terminal Condition PanelWe were joined by panelists Olivia Salvo, Sarita Edwards, and Abigail Johnston as they discussed the differences, challenges, and opportunities they encountered...reactionscomments
People and Tools That Have Helped Us With Our Advocacy JourneysBehind advocates are people and resources that help them thrive. Family members or friends, apps or tools, each person’s supports are unique...reactions1comment
Meet the 2023 Social Health Awards FinalistsWe’re excited to announce our 2023 Social Health Awards finalists! It's been an incredible experience for our judges (and our team) to...reactionscomments
Announcing the 2023 Social Health Awards Winners!The Social Health Awards honor and recognize the efforts of patients and caregivers within their communities and at the industry level. Our...reactionscomments
My Experience on the Patient Leadership CouncilEditor's note: This article was written by Patient Leader Lisa Marie Basile, who writes and moderates on AxialSpondyloarthritis.net. You can read more...reactionscomments
Interview: Hope's Idiopathic Condylar Resorption JourneyRecently we had the pleasure of interviewing Health Leader Hope Tocci, who wanted to share her experience living with Idiopathic Condylar Resorption...reactions1comment
Community Views: Becoming a Patient LeaderThe journey of advocacy takes many twists and turns. For some, it is easy to get started, while for others it takes...reactionscomments
Navigating Professional Relationships as a Patient Leader: An Interview With Kathy Reagan YoungWhile she was first focused on patient leadership within the multiple sclerosis (MS) community, Kathy Reagan-Young realized she wanted to elevate her...reactions16comments
