When You Can't Be Physically There to AdvocateI came into the Patient Leadership Council as a contributing author and moderator for BladderCancer.net. I was honored to be my Mom's...reactions4comments
Webinar Replay: Navigating the Holidays While Living With a Terminal or Chronic ConditionWith the arrival of cold weather, the onset of darkness, and the start of the busy holiday season, a sense of vulnerability...reactionscomments
Empowering Parents To Raise Healthy AdvocatesParenting is a challenging responsibility, especially when it comes to raising children who are passionate about their health and the well-being of...reactions4comments
Why I Became an MS AdvocateThe day my doctor told me I had multiple sclerosis, I felt like my life had been ripped apart. I was a...reactions2comments
Building Relationships With LegislatorsAs an advocate focused mostly on healthcare policy and legislative advocacy, I am often asked how I connect with, and establish relationships...reactions7comments
The Biggest Misunderstandings About Health AdvocacyChoosing to become an advocate means sharing a health journey. To educate others, advocates share personal details about their health. They become...reactionscomments
People and Tools That Have Helped Us With Our Advocacy JourneysBehind advocates are people and resources that help them thrive. Family members or friends, apps or tools, each person’s supports are unique...reactions1comment
U.S. Service Dog Law BasicsHave you ever considered getting a service dog to help with your medical condition? Service dogs are dogs that are trained to...reactions2comments
Balancing Advocacy and Privacy: A Parent's Journey in National Health AdvocacyWhen our daughter was diagnosed with the rare disease known as sickle cell anemia at just a few weeks old, our lives...reactions4comments
APPLY NOW! HealtheVoices 2024 Conference for AdvocatesHealtheVoices, Johnson & Johnson’s one-of-a-kind leadership program for online health advocates, is now accepting attendee and speaker applications for its annual conference...reactions1comment
Why Patients, Caregivers, Advocates, and Health Leaders Share Our Health JourneysThere are many reasons why patients, caregivers, and advocates share our health journeys. My non-exhaustive list is below.Despite all of these important...reactionscomments
REPLAY: How to Advocate for a Terminal Condition PanelWe were joined by panelists Olivia Salvo, Sarita Edwards, and Abigail Johnston as they discussed the differences, challenges, and opportunities they encountered...reactionscomments
What Does Advocacy Burnout Look Like for You?Burnout can be defined as a state of prolonged physical or mental stress. Its symptoms can include exhaustion, depression, anxiety, lack of...reactions2comments
Watch Now: How to Identify, Prevent, and Treat BurnoutAs a patient leader, it’s easy to get burned out. And burnout, unidentified and untreated, can become something more severe, like depression...reactionscomments
Living With Chronic Illness as a Black Woman: A Personal StoryI have been living with chronic illnesses for over 20 years. I was diagnosed with lupus and rheumatoid arthritis (RA) in the...reactions6comments
Navigating DM Requests for Money: 3 Thoughtful Responses for AdvocatesIn the digital age, having a following often comes hand in hand with unexpected direct messages asking for financial help. It’s a...reactions8comments
Replay: Connexion Patient Leader Certification LaunchThe Health Union Patient Leader Certification Program offers a comprehensive toolkit for Patient Leaders seeking to elevate their impact in the healthcare...reactionscomments
Meeting a New Doctor, Again? 3 Simple Steps to PrepareWhen you’re a seasoned patient, it can feel like a drag to meet a new doctor for the umpteenth time. But for...reactionscomments
An Interview With Kelly Cervantes, Author of Normal Broken: The Grief Companion...Kelly Cervantes is an award-winning writer, speaker, and advocate. We had the privilege of interviewing her in light of her upcoming book:...reactions1comment
Expert Perspectives: A Conversation on the Role of Responsible Patient LeadershipHealth Union recently partnered with researchers at the University of Colorado to look at the unique role Patient Leaders play in sharing...reactions1comment
