My Experience on the Patient Leadership CouncilEditor's note: This article was written by Patient Leader Lisa Marie Basile, who writes and moderates on AxialSpondyloarthritis.net. You can read more...reactionscomments
Interview: Hope's Idiopathic Condylar Resorption JourneyRecently we had the pleasure of interviewing Health Leader Hope Tocci, who wanted to share her experience living with Idiopathic Condylar Resorption...reactions1comment
Community Views: Becoming a Patient LeaderThe journey of advocacy takes many twists and turns. For some, it is easy to get started, while for others it takes...reactionscomments
Navigating Professional Relationships as a Patient Leader: An Interview With Kathy Reagan YoungWhile she was first focused on patient leadership within the multiple sclerosis (MS) community, Kathy Reagan-Young realized she wanted to elevate her...reactions16comments
Let’s Talk Medical Gaslighting: A Panel DiscussionIn this replay session, we aim to not only learn about medical gaslighting but also identify examples in our own lives when...reactionscomments
Replay: Connexion Opening Session With Health Union's Executive TeamHealth Union hosted their 7th annual Connexion conference for Health Leaders on July 25th and 26th, 2023. Health Leaders from around the...reactionscomments
Navigating Copyright as a Patient Leader: An Interview With Gerry LanganBeing a Patient Leader in the chronic, terminal, and rare disease communities is no easy feat. You're constantly balancing managing your health...reactions5comments
The Biggest Misunderstandings About Health AdvocacyChoosing to become an advocate means sharing a health journey. To educate others, advocates share personal details about their health. They become...reactionscomments
Impact of Social Health and Community on Living With IllnessSocial health communities positively impact life with illness. Connecting with others and sharing stories is powerful. You share triumphs and challenges. It...reactionscomments
Community Views: How Chronic Pain Affects Patient LeadersGenerally, pain that lasts longer than 3 to 6 months is considered chronic pain. It is pain that stretches beyond the expected...reactionscomments
Participatory Medicine and the Patient Leader: An Interview With Danny Sands, MDAs patients and caregivers, we often look to our doctors and other healthcare practitioners for the answers to our health problems. But...reactions3comments
Creating and Managing Your Personal Brand: An Interview With Elle ColeFor well over a decade, Elle Cole has been a distinguished Patient Leader within the sickle cell disease and type 1 diabetes...reactions2comments
Social Health Awards: The Mutual Value and Impact for Patients and IndustryThe Social Health Awards is the only awards program judged by patients and industry alike that recognizes health leaders for their hard...reactions1comment
REPLAY: How To Use TikTok to Further Your AdvocacyTikTok allows its users to create short videos that are captivating, creative, and authentic. With over 14 million daily users, it has...reactions2comments
Expert Perspectives: A Conversation on the Role of Responsible Patient LeadershipHealth Union recently partnered with researchers at the University of Colorado to look at the unique role Patient Leaders play in sharing...reactions1comment
Replay: Unlocking Health Leader OpportunitiesJulie Croner, VP of Community Development, shares exciting new ways for Health Leaders to interact with their community and get paid for...reactions2comments
Replay: The Story You Need to Tell Writing WorkshopApril Johnson Stearns, founder and editor-in-chief of WILDFIRE Magazine, led a writing workshop for Social Health Network Health Leaders interested in using...reactionscomments
Watch Now: How to Identify, Prevent, and Treat BurnoutAs a patient leader, it’s easy to get burned out. And burnout, unidentified and untreated, can become something more severe, like depression...reactionscomments
A Guide to Dealing With Burnout as a Patient AdvocatePatient advocacy is an extremely important part of changing the landscape for the better for all patients, but it comes with its...reactions2comments
Our Health Leaders' Proudest Moments From 2022The end of the year is often a time for reflection. Many moments make up those 365 days. We asked Patient Leaders...reactionscomments
