How Learning About Health Literacy Changed the Way I Advocate for Myself and Others...For most of my life, navigating the healthcare system felt like I was lost in a foreign country. Medical terms flew over...reactions2comments
This Is Anxiety......The month of May is Mental health Awareness Month. Many people struggle with Mental Health Conditions. In addition, many people who develop...reactions11comments
Lessons Learned From Starting an Awareness Brand & Finding Your Unique Voice in Advocacy...My health journey began like any other - I was a healthy, active, young adult with big dreams and ambitions for my...reactionscomments
My Reason for Advocating (and Journaling Prompts To Find Yours)...Many of us are Social Health Network advocates here. We advocate for people that suffer from illnesses that we may or may...reactionscomments
Navigating Stress, Anxiety, and Depression as Patient Advocates...As patient advocates, we dedicate ourselves to supporting others through their healthcare journeys. However, amidst our commitment to others, it's crucial not...reactionscomments
About Zipper...Well, a long time ago in a faraway place I used to wrestle and play football. I got a ride to MIT...reactions2comments
Choosing The Best Means for Advocacy on Social Platforms...The hat for advocacy involves various components. Your advocacy can consist of many of possibilities: I’m going to delve in further with...reactions2comments
Replay: Minding Your Mental Health as a Content Creator...Watch the video below and join us as we discuss caring for your mental well-being in the digital age, tailored specifically for...reactionscomments
When You Can't Be Physically There to Advocate...I came into the Patient Leadership Council as a contributing author and moderator for BladderCancer.net. I was honored to be my Mom's...reactions4comments
Webinar Replay: Navigating the Holidays While Living With a Terminal or Chronic Condition...With the arrival of cold weather, the onset of darkness, and the start of the busy holiday season, a sense of vulnerability...reactionscomments
Why I Became an MS Advocate...The day my doctor told me I had multiple sclerosis, I felt like my life had been ripped apart. I was a...reactions2comments
Barking Mad, My Recovery Story...Im an 86 year old woman who had to retire as a speech language pathologist ten years ago due to encroaching dementia...reactions3comments
Acceptance...After diagnosis with parkinsons I was frightened and confused. I wanted to learn as much as possible but took on too much...reactions2comments
A Journey to Self...My journey started at the age of 14. I was competing competitively for cheerleading and assumed the activities associated were the cause...reactions3comments
Building Relationships With Legislators...As an advocate focused mostly on healthcare policy and legislative advocacy, I am often asked how I connect with, and establish relationships...reactions7comments
The Biggest Misunderstandings About Health Advocacy...Choosing to become an advocate means sharing a health journey. To educate others, advocates share personal details about their health. They become...reactionscomments
People and Tools That Have Helped Us With Our Advocacy Journeys...Behind advocates are people and resources that help them thrive. Family members or friends, apps or tools, each person’s supports are unique...reactions1comment
U.S. Service Dog Law Basics...Have you ever considered getting a service dog to help with your medical condition? Service dogs are dogs that are trained to...reactions2comments
Love and Resilience: My Journey With HIV...Growing up in the quiet town of Kasangati, Uganda, life was a mix of joys and sorrows. Losing my parents to illness...reactions1comment
Balancing Advocacy and Privacy: A Parent's Journey in National Health Advocacy...When our daughter was diagnosed with the rare disease known as sickle cell anemia at just a few weeks old, our lives...reactions4comments
