Dealing With Imposter Syndrome as a Chronic Illness Advocate...Today, I want to talk about something that has been weighing on my mind lately—a feeling that many of us, especially those of us advocating for chronic illness, know all...reactions9comments
Have you ever, or do you want to, publish a book about your story?...Share your journey to getting a book published about your health advocacy below. Let us know if you have any tips or tricks for those who want to get started...reactions39repliesTips & AdviceAwarenessAdvocacy
Accepting the Diagnosis...Well it started in the spring of 2016 when l told my wife l was having difficulty breathing. Thought maybe it was a cold or flu, but it persisted. So...reactions2comments
An Author's Guide to Self-Publishing a Book...We at the Social Health Network know that nothing is more important than your story. Many of you have shared with us that you'd like to share your story to...reactions8comments
The Financial Toxicity of Cancer Treatment...Cancer drugs are essential for people with cancer. These drugs can help some live longer without the cancer spreading. However, these drugs come with a high price tag. This can...reactions1comment
Tis the season for conferences! ...The season is upon us! Let's share & talk about all things CONFERENCES! - Which have you attended, or are you planning to attend? - We'd LOVE for you to...reactions18repliesAdvocacyTips & AdviceCommunity
Why People With Cancer Have Trouble Sleeping...If you have cancer or are a cancer survivor, you may have trouble sleeping. One study suggests that up to 95 percent of people who have cancer now or had...reactionscomments
Coping with a New Diagnosis and Managing Side Effects...Here's a structure to guide the discussion: Introductory Post: "I was recently diagnosed with [OCD]. I'm still learning about the condition, and I'm feeling overwhelmed by the side effects of...reactions3repliesNewly DiagnosedSide Effects
Strategies to Prevent Burnout in Patient Advocacy...Advocating for patients is a noble cause that comes with its unique challenges and rewards. Patient leaders often start their journey with great enthusiasm and dedication, aiming to make a...reactions5comments
Harnessing Social Media for Patient Leadership...In today's digital age, social media has emerged as a powerful tool for patient leaders. It helps to advocate, educate, and connect with communities globally. Through platforms like Facebook, Instagram...reactions1comment
What are you favorite conferences to attend?...Share any conferences that you love going to--whether they're about advocacy, your specific condition, or something else!...reactions4repliesHealth LeadershipAdvocacy
The Importance of Prioritizing Conferences as a Health Advocate...As an advocate, author, and speaker, I can attest to the profound impact of conferences on my caregiver journey and how visiting conferences helped me develop into a more focused...reactionscomments
Who to contact about a study opportunity...First off, I am apologizing in advance...I should totally know this, but was diagnosed with MS in April, and my brain is still broken. I was approached by a company...reactions8repliesCommunityResearch & Clinical Trials
Legacy...Over the years, SocialHealthNetwork.com has lost powerful voices in the community. Hear the stories of those advocates who are no longer with us as we celebrate their life and message...
Remembering Ellen Reed...We are extremely saddened to say that on August 9, 2024, Ellen Reed passed away. Ellen was a valued member of both the AdvanceOvarianCancer.net community and the SocialHealthNetwork.com community, and...reactions1comment
Resources for Cancer Caregivers...When your loved one has cancer, you, the caregiver, need help too. The type and frequency of help that's needed can vary dramatically from person to person, but extra support...reactionscomments
Quality of Life for People With Metastatic Colorectal Cancer...Metastatic colorectal cancer (mCRC) is a type of cancer that has spread from the colon or rectum to other parts of the body. This is an advanced stage of cancer...reactionscomments
Advocating for Psoriasis Awareness in Washington, D.C....I have been a psoriasis advocate for over ten years now. It started when I joined the National Psoriasis Foundation (NPF). One of the things that the National Psoriasis Foundation...reactionscomments
Forgiving My Limitations as an Online Health Advocate...This blog is inspired by a forum question by fellow SHN writer, Raquel Dozier, on the topic of forgiveness and forgiving ourselves as advocates. It got me thinking about the...reactions8comments
Through the Pain...When I was 27 years old, I was diagnosed with A.S. I had problems since high school but A.S. was hard to diagnose back then. I have been a personal...reactions9comments
