When There’s More Than Meets the Eye: Coping With an Invisible Illness...It can feel like a blessing and a curse at the same time. Being diagnosed with a chronic illness for which there is no cure, that’s invisible. You have the...reactions1comment
Busting the Myths: What Patient Advocacy Really Means...A common misconception surrounding patient advocacy and patient - centered care is that it solely involves speaking on behalf of patients who may feel powerless or unable to voice their...reactions3repliesAdvocacy
Connexion 2024 Forums Round-Up...Connexion 2024 offered countless takeaways and learnings that can help propel you forward on your journey into health leadership. Here at the Social Health Network, we want to set you...reactionscomments
My Diagnosis Story: Randalynn Vasel...Editor's note: This article was written by Randalynn Vasel and originally appeared on our partner site AdvancedOvarianCancer.net. January 19, 2017...it was the day a hard line was drawn in my...reactionscomments
Needing a Break From Advocacy...It has been ten years since I first started my psoriasis advocacy. I am always eager to be involved in anything that will help educate people about psoriasis. Whether it...reactions10comments
The Reality When You Live With a Rare Condition...The Reality of me living with a rare disease and what goes through my mind constantly. I wake every morning with the same awful cramps in my stomach that painful...reactions1replyCoping
Menopause and Chronic Illness a Journey to Finding Relief...As a woman who has lived with chronic illness for many years, I thought I had a good handle on managing my symptoms. However, when menopause arrived, I found myself...reactions1comment
End of Life Care and Wrapping Up Unfinished Business...I now find myself in Hospice Teams diligently assessing each organ system during their weekly visits. Particularly, the scientific data remains of interest. Is there an advance of the disease?...reactions2comments
The Evolution of Health Advocacy and Health Activism...Over the past decade, the landscape of health advocacy has undergone a remarkable transformation. From the way we perceive healthcare to the tools we use for activism (because, let’s face...reactionscomments
The Secret to Building Your Advocacy Social Media Brand...I started trying to find my voice after chronic illness turned my life upside down. I had no clue what I was doing, felt like an imposter, and could barely...reactions1comment
Treatment for Colorectal Cancer...Colorectal cancer (CRC) treatment depends on the stage of the cancer and where it is located in the body. There are several ways to treat CRC, and cancer doctors (oncologists)...reactionscomments
Managing Side Effects and Pain Related to Metastatic Colorectal Cancer...Metastatic colorectal cancer (mCRC), or end-stage colorectal cancer, can cause many symptoms that affect your daily life. Side effects from treatment can also be challenging to manage. Understanding how to...reactionscomments
Misconceptions ...What are some common misconceptions people have about patient advocacy?...reactions2repliesAdvocacy
Getting Used for Clickbait: My Biggest Advocacy Interview Mistake...I used to think that all advocacy was good advocacy. I would jump on any opportunity that came my way to collaborate with an organization, providing I had the spoons for it. I figured the more organizations...reactions10comments
Active 3 days agoConnect with people who are like me ...I am a consumer with a intellectual disability and spinal cord injury I like to connect with people who are like me and participate in online meetings and outings and...reactions4repliesAdvocacyCommunity
What are you most proud of?...Within your personal life, health journey, or advocacy work, what are you most proud of, or what accomplishment fills you with the most pride?...reactions45repliesCommunity
Mental health ...I’m interested in being a part of your board meeting...reactionsrepliesCertificationSocial MediaAdvocacy
Advocacy: My Why...Editor's Note: This article was written by Julie Salazar and originally appeared on our partner site AdvancedOvarianCancer.net. From a young age, my energy was enormous. My mother threw me into...reactionscomments
Tips for Your First Conference: Based on My First Experience...As a Social Health Network and patient advocate, it is entirely possible that you will have the opportunity to attend a conference event at one point or another. As an...reactions5comments
