Taking Colon Cancer Signs SeriouslyColon cancer is rising among young people, yet its symptoms are often overlooked due to age related biases. In 2024, colorectal cancer became the leading cause of cancer-related deaths in...Reactions0reactionsComments0 comments
Ten Challenges of Advocating for Chronic Illness on Social MediaAdvocating for chronic illness on social media is no walk in the park. We face a myriad of challenges, from trolls peddling snake oil to well-meaning but misguided advice-givers who...Reactions0reactionsComments1 comments
The Benefits of a Smaller Social Media FollowingAs an online health advocate for eczema warriors, it has often felt overwhelming for me to navigate the many online social media distractions of what is popular versus what content...Reactions0reactionsComments3 comments
Media Representation of Disability and Chronic IllnessLiving with a chronic illness and/or disability can weigh heavily on a person. So when someone with a disability or chronic illness gets any sort of spotlight, it can be...Reactions0reactionsComments6 comments
How to Partner With Your Doctor for Better CareDo you have a great relationship with your primary or speciality doctor? When I ask people I know this question, they often say no. If "no" is the answer then...Reactions0reactionsComments5 comments
Laughter as Medicine: Using Humor in Health AdvocacyChronic illness is no laughing matter, but that doesn’t mean we can’t have some laughs when we advocate about it. Our bodies are always joking around with us, so it’s only right...Reactions0reactionsComments1 comments
Filtering Personalities and Patient AdvocacyAddressing your advocacy comes with huge responsibilities, especially for those who bring their vocal experiences to a larger public audience. We establish and build our advocacy network with others who...Reactions0reactionsComments1 comments
Being Compensated for Your Advocacy is PossibleHave you heard that you can be compensated for your advocacy work? It is a true statement. It might not happen as soon as you start your advocacy journey but...Reactions0reactionsComments9 comments
Are You Advocating For the Right Reasons?When I first started my psoriasis advocacy, I was on fire to help make any changes that I could. Over 10 years later and I am still very much on...Reactions0reactionsComments3 comments
Ethics Of Making Money From My Health AdvocacySometimes as an online health advocate I question if it is ethical for me to make money off my online health advocacy. When I first tried treating my eczema as...Reactions0reactionsComments8 comments
10 Ways to Successfully Navigate Your Patient Advocacy JourneyEmbarking on a patient advocacy journey is a meaningful and impactful endeavor. However, there are moments when uncertainty creeps in, and you find yourself unsure about the next steps. Here...Reactions0reactionsComments3 comments
Ethical Dilemmas in Chronic Illness AdvocacyIn my journey as a chronic illness advocate, I frequently encounter ethical dilemmas. These challenges, though complex, are so important to my role. Navigating these ethical issues often requires sensitivity...Reactions0reactionsComments0 comments
Blessed the Broken HeartTake a look, a good one & I promise you’ll find yourself interested our journey. Similar to several others I was medically gaslighted with “You look fine”, “Others are sicker...Reactions0reactionsComments6 comments
3 Practical Ways for Health Advocates to Safeguard Peace and Mental Health OnlineLiving with a chronic or terminal illness, or navigating a health journey, can be a formidable and isolating experience. Many people today turn to social media and online platforms to...Reactions0reactionsComments11 comments
Dealing With Imposter Syndrome as a Chronic Illness AdvocateToday, I want to talk about something that has been weighing on my mind lately—a feeling that many of us, especially those of us advocating for chronic illness, know all...Reactions0reactionsComments9 comments
Strategies to Prevent Burnout in Patient AdvocacyAdvocating for patients is a noble cause that comes with its unique challenges and rewards. Patient leaders often start their journey with great enthusiasm and dedication, aiming to make a...Reactions0reactionsComments5 comments
Harnessing Social Media for Patient LeadershipIn today's digital age, social media has emerged as a powerful tool for patient leaders. It helps to advocate, educate, and connect with communities globally. Through platforms like Facebook, Instagram...Reactions0reactionsComments1 comments
The Importance of Prioritizing Conferences as a Health AdvocateAs an advocate, author, and speaker, I can attest to the profound impact of conferences on my caregiver journey and how visiting conferences helped me develop into a more focused...Reactions0reactionsComments0 comments
Remembering Ellen ReedWe are extremely saddened to say that on August 9, 2024, Ellen Reed passed away. Ellen was a valued member of both the AdvanceOvarianCancer.net community and the SocialHealthNetwork.com community, and...Reactions0reactionsComments1 comments
Advocating for Psoriasis Awareness in Washington, D.C.I have been a psoriasis advocate for over ten years now. It started when I joined the National Psoriasis Foundation (NPF). One of the things that the National Psoriasis Foundation...Reactions0reactionsComments0 comments
