10 Ways to Successfully Navigate Your Patient Advocacy JourneyEmbarking on a patient advocacy journey is a meaningful and impactful endeavor. However, there are moments when uncertainty creeps in, and you find yourself unsure about the next steps. Here... By Aaron Blocker2 min readBookmark for laterReactions0reactionsComments1 comments
Ethical Dilemmas in Chronic Illness AdvocacyIn my journey as a chronic illness advocate, I frequently encounter ethical dilemmas. These challenges, though complex, are so important to my role. Navigating these ethical issues often requires sensitivity... By Racquel H. Dozier2 min readBookmark for laterReactions0reactionsComments0 comments
Blessed the Broken HeartTake a look, a good one & I promise you’ll find yourself interested our journey. Similar to several others I was medically gaslighted with “You look fine”, “Others are sicker... By Jessica1202 min readBookmark for laterReactions0reactionsComments6 comments
3 Practical Ways for Health Advocates to Safeguard Peace and Mental Health OnlineLiving with a chronic or terminal illness, or navigating a health journey, can be a formidable and isolating experience. Many people today turn to social media and online platforms to... By Elle Cole4 min readBookmark for laterReactions0reactionsComments8 comments
Dealing With Imposter Syndrome as a Chronic Illness AdvocateToday, I want to talk about something that has been weighing on my mind lately—a feeling that many of us, especially those of us advocating for chronic illness, know all... By Cynthia Covert3 min readBookmark for laterReactions0reactionsComments5 comments
Strategies to Prevent Burnout in Patient AdvocacyAdvocating for patients is a noble cause that comes with its unique challenges and rewards. Patient leaders often start their journey with great enthusiasm and dedication, aiming to make a... By Jed Finley2 min readBookmark for laterReactions0reactionsComments5 comments
Harnessing Social Media for Patient LeadershipIn today's digital age, social media has emerged as a powerful tool for patient leaders. It helps to advocate, educate, and connect with communities globally. Through platforms like Facebook, Instagram... By Racquel H. Dozier3 min readBookmark for laterReactions0reactionsComments1 comments
The Importance of Prioritizing Conferences as a Health AdvocateAs an advocate, author, and speaker, I can attest to the profound impact of conferences on my caregiver journey and how visiting conferences helped me develop into a more focused... By Elle Cole3 min readBookmark for laterReactions0reactionsComments0 comments
Remembering Ellen ReedWe are extremely saddened to say that on August 9, 2024, Ellen Reed passed away. Ellen was a valued member of both the AdvanceOvarianCancer.net community and the SocialHealthNetwork.com community, and... By SocialHealthNetwork.com Team2 min readBookmark for laterReactions0reactionsComments1 comments
Advocating for Psoriasis Awareness in Washington, D.C.I have been a psoriasis advocate for over ten years now. It started when I joined the National Psoriasis Foundation (NPF). One of the things that the National Psoriasis Foundation... By Vickie Wilkerson3 min readBookmark for laterReactions0reactionsComments0 comments
Forgiving My Limitations as an Online Health AdvocateThis blog is inspired by a forum question by fellow SHN writer, Raquel Dozier, on the topic of forgiveness and forgiving ourselves as advocates. It got me thinking about the... By Teresa Alabata2 min readBookmark for laterReactions0reactionsComments8 comments
Through the PainWhen I was 27 years old, I was diagnosed with A.S. I had problems since high school but A.S. was hard to diagnose back then. I have been a personal... By Frazieractorman1 min readBookmark for laterReactions0reactionsComments4 comments
When There’s More Than Meets the Eye: Coping With an Invisible IllnessIt can feel like a blessing and a curse at the same time. Being diagnosed with a chronic illness for which there is no cure, that’s invisible. You have the... By Natalie Hayden3 min readBookmark for laterReactions0reactionsComments1 comments
Connexion 2024 Forums Round-UpConnexion 2024 offered countless takeaways and learnings that can help propel you forward on your journey into health leadership. Here at the Social Health Network, we want to set you... By SocialHealthNetwork.com Team1 min readBookmark for laterReactions0reactionsComments0 comments
Needing a Break From AdvocacyIt has been ten years since I first started my psoriasis advocacy. I am always eager to be involved in anything that will help educate people about psoriasis. Whether it... By Vickie Wilkerson3 min readBookmark for laterReactions0reactionsComments10 comments
Menopause and Chronic Illness a Journey to Finding ReliefAs a woman who has lived with chronic illness for many years, I thought I had a good handle on managing my symptoms. However, when menopause arrived, I found myself... By Racquel H. Dozier3 min readBookmark for laterReactions0reactionsComments0 comments
The Evolution of Health Advocacy and Health ActivismOver the past decade, the landscape of health advocacy has undergone a remarkable transformation. From the way we perceive healthcare to the tools we use for activism (because, let’s face... By Elle Cole4 min readBookmark for laterReactions0reactionsComments0 comments
The Secret to Building Your Advocacy Social Media BrandI started trying to find my voice after chronic illness turned my life upside down. I had no clue what I was doing, felt like an imposter, and could barely... By Kristine Hoestermann4 min readBookmark for laterReactions0reactionsComments1 comments
Getting Used for Clickbait: My Biggest Advocacy Interview MistakeI used to think that all advocacy was good advocacy. I would jump on any opportunity that came my way to collaborate with an organization, providing I had the spoons for it. I figured the more organizations... By JamesHollens3 min readBookmark for laterReactions0reactionsComments10 comments
Tips for Your First Conference: Based on My First ExperienceAs a Social Health Network and patient advocate, it is entirely possible that you will have the opportunity to attend a conference event at one point or another. As an... By Tatiana Corbitt2 min readBookmark for laterReactions0reactionsComments5 comments
